The Fiscal Year 2022 (July 2021 – June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.
Hello, I’m Leigha! I am a proud cranio warrior! I was diagnosed [with a craniopharyngioma] …
2019 was a year that changed Aliyah’s life forever when she was diagnosed with the …
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
Evie is a craniopharyngioma survivor who also battles adipsic diabetes insipidus Evie McCollum is a …
On December 11, 2021, Finn, a six-year-old from Spokane, WA, was airlifted from Sacred Heart ER to Seattle Children’s Hospital due to the complex growth of a tumor in his brain. which was causing vision loss and impaired brain function.
The Raymond A. Wood Foundation continues to add features to the website rawoodfoundation.org to better support our patient, survivor and caregiver community. Last month we launched a page for those who are newly diagnosed to find important resources and support. This month, we launched a page dedicated to giving patients access to clinical trials specific to craniopharyngioma and its comorbidities engineered by Power, a company whose mission is to “help more patients find treatments and speed up the process of medical science as we go.”
The Raymond A. Wood Foundation (RAWF), a rare disease patient advocacy organization, whose mission is to empower survivors of hypothalamic-pituitary (H-P) brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments, announces exciting changes to the foundation’s board of directors including the addition of Christine Selko and the election of Eugenie Hsu, Ph.D. as chairperson.
Contributed by Lynne Mathies, craniopharyngioma survivor and RAWF intern “At the end of the day, …
November is National Family Caregivers Month which is a time to recognize and honor caregivers while raising awareness of caregiving issues. We took some time with Crystal Carnahan, a certified life coach, who focuses on helping women prioritize themselves to expand into more joyful living, to talk about mindset in caregiving.
