2022-2025 Goals and Objectives
The Raymond A. Wood Foundation sets out to achieve the following goals and objectives over the next 3 years:
Goal #1 Treatments & Outcomes
Facilitate the establishment of a standard-of-care that prioritizes the simultaneous optimization of survivorship and quality-of-life for patients.
Objective #1 Collaborate with the scientific community to create an interdisciplinary standard-of-care and develop a treatment decision-making matrix that prioritizes improved prognostic and quality of life outcomes.
Objective #2 Design and build a craniopharyngioma patient registry to advance research and drug development.
Objective #3 Support and assist in growing existing craniopharyngioma biobanks to enrich data to facilitate research on tumor treatment and post-treatment management.
Goal #2 Quality of Life
Attenuate the most treatment-elusive conditions affecting hypothalamic-pituitary tumor survivors’ poor quality of life.
Objective #1 Continue and grow approaches to manage diabetes insipidus from providing handheld blood analyzers, development of fluid logging mechanism and driving the development of a home-use sodium meter for adipsic diabetes insipidus patients.
Objective #2 Document the hypothalamic obesity patient experience and gather other relevant information from patients and caregivers for an FDA-approved drug.
Objective #3 Address the poorly understood and difficult-to-treat conditions including symptoms of hypothalamic syndrome, neurocognitive symptoms, and social impairment by building and coordinating a network of interdisciplinary scientific partners, biotech/pharma industry partners, and other associated-disease organizations.
Goal #3 Education & Outreach
Increase support to hypothalamic-pituitary brain tumor patients and their caregivers throughout the patient journey from diagnosis and treatment through survivorship.
Objective #1 Create and maintain a website on craniopharyngioma to provide updated information and essential resources on the tumor treatment and management of chronic conditions and issues facing long term survivors.
Objective #2 Provide accessible educational information and resources for all patients including pediatric and adult, non-English speakers, African diaspora, and other underserved populations at tumor diagnosis, treatment, and post-treatment encounter points.
Objective #3 Expand membership program and community engagement inclusive of the diverse patient population with resources that address newly diagnosed patients, transitions from pediatric to adulthood and adult patients.
Goal #4 Communication & Awareness
Increasing awareness of the challenges of hypothalamic-pituitary brain tumors and developing resources for the brain tumor community, healthcare providers and the general public.
Objective #1 Share helpful information and resources with healthcare providers in targeted geographical areas to increase referrals to RAWF particularly among the underserved patient communities.
Objective #2 Develop a communication plan to build awareness in the global patient community to increase awareness of the support resources provided by RAWF.
Objective #3 Grow board of directors and membership with representation from diverse patient communities to increase the foundation’s reach.
Goal #5 Development &Stewardship
Identify and pursue the most promising strategies to increase revenue to support our mission.
Objective #1 Invest in resources and capabilities to significantly expand revenues targeting a doubling of annual funds raised by 2025 and diversify our revenue portfolio with a focus on major giving, cultivating community fundraising and identifying and implementing new fundraising platforms.
Objective #2 Develop and implement a stewardship program that focuses on acquisition, retention and conversion to build mid-level giving, major giving and planned giving strategies that result in ongoing and meaningful investments for our donors.
Objective #3 Develop and expand relationships with corporate, organization and industry partners to grow sponsorships for research and patient programs.
Support Our Mission
Your support can make a lasting impact on our mission, empowering us to create positive change and transform lives of these brain tumor survivors. Join us in championing this cause, and together, we can pave the way for a brighter future, not only for these patients, but for brain research and patient support.
