
New Research Puts a Spotlight on Fatigue After Craniopharyngioma
How registry data is turning patient experience into evidence For people living with the long-term ... Read more

Chronic Disease Day: Why Raising Awareness Matters for Craniopharyngioma Survivors
Every year on July 10, Chronic Disease Day shines a spotlight on the millions of people living with chronic illnesses. ... Read more

Hypothalamic Syndrome: Finally, a Way to Describe What We’ve Been Living
Recognizing hypothalamic syndrome offers new hope for understanding, preventing, and treating the complex challenges faced ... Read more

Navigating the Grief of Diagnosis
The Overlooked Grief of Diagnosis, Change, and Lost Expectations Contributed by Holly Gainsboro. Grief Is ... Read more

Back to School Safety for Students with Adrenal Insufficiency
Helping Students Thrive While Staying Safe For families of children with adrenal insufficiency, whether caused ... Read more




