Craniopharyngioma

HomeCraniopharyngioma

Sabrina: A radiant light and beacon of resilience

On July 15, 2024, Sabrina Studer’s world changed forever when she was diagnosed with a ... Read more

Aidan’s Journey: A story of strength and recovery

Overcoming the Challenges of a Rare Brain Tumor When Kelly’s son, Aidan, turned 13, she ... Read more

Aydan’s Journey with Craniopharyngioma

From Diagnosis to Hope: Aydan’s Brave Journey with Craniopharyngioma In April 2021, Aydan Arguello’s life ... Read more
Elder is the latest handheld blood analyzer patient

A Lifeline for Elder: How the Handheld Blood Analyzer is Changing Lives

Empowering Families, One Blood Test at a Time: Elder’s Journey with the Handheld Blood Analyzer ... Read more
Hypothalamic-Pituitary Patient Registry Logo

The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.

Research study is open to participants worldwide to advance understanding and treatments these rare diseases ... Read more

Navigating the Shadows: My Journey with Craniopharyngioma and Finding Gratitude Along the Way

My story is a very bitter one. I started to have virtually all the symptoms ... Read more
Sun coming through trees communicating hope

Illuminating Insights: Sharing a Recent Commentary on Our Research

The Raymond A. Wood Foundation is honored to share a significant development in our journey ... Read more
Craniopharyngioma diagrama

2022 Research Progress on Craniopharyngioma

by Nathalie Kayadjanian, Ph.D., RAWF Scientific Advisor Image Credit: National Cancer Institute While surgery and ... Read more
Aliyah

11-Year-Old Aliyah, Craniopharyngioma Survivor, Receives Medical Device

2019 was a year that changed Aliyah’s life forever when she was diagnosed with the ... Read more
Evie

A Story of a True Warrior – Meet Evie McCollum

Evie is a craniopharyngioma survivor who also battles adipsic diabetes insipidus Evie McCollum is a ... Read more
12 Next
EN