Advancing Understanding of Hyperphagia in CP
New Study Sheds Light on Hyperphagia in Craniopharyngioma We’re thrilled to share the publication of …
RAWF
Hope for HO: The Wait is Over
In light of the recent FDA approval of setmelanotide for hypothalamic obesity, this commentary offers …
A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry
In 2024, the Raymond A. Wood Foundation launched a groundbreaking initiative that’s creating real momentum …
Nutrition & Lifestyle Considerations in Central Adrenal Insufficiency
Please note: Many individuals living with hypothalamic-pituitary conditions, including craniopharyngioma, may also experience central adrenal …
Inside the 2025 Edition of the DC’s Dancing Stars Gala!
Community, philanthropy, talent and dedication came together for an incredible night at the annual DC’s …
Navigating the Grief of Diagnosis
The Overlooked Grief of Diagnosis, Change, and Lost Expectations Contributed by Holly Gainsboro. Grief Is …
Back to School Safety for Students with Adrenal Insufficiency
Helping Students Thrive While Staying Safe For families of children with adrenal insufficiency, whether caused …
New Frontiers in Hypothalamic Obesity Research
Current Clinical Trials and Newly Released Data Offering Hope for HO For survivors of hypothalamic-pituitary …
International Experts Convene in Denver for 8th Postgraduate Course in Childhood Craniopharyngioma
The 8th Postgraduate Course in Childhood Craniopharyngioma (CP) took place on June 11–12 in Denver, …
One Year. 350 Voices. Countless Insights.
Celebrating the first anniversary of the Hypothalamic-Pituitary Brain Tumor Patient Registry—and the power of shared …
