Holiday Weekend Survival: Navigating BBQs with Hypothalamic Obesity
Memorial Day marks the unofficial start of summer, and the kickoff to a season of connection, sunshine, ... Read more
Hypothalamic Syndrome: Finally, a Way to Describe What We’ve Been Living
Recognizing hypothalamic syndrome offers new hope for understanding, preventing, and treating the complex challenges faced ... Read more
New Frontiers in Hypothalamic Obesity Research
Current Clinical Trials and Newly Released Data Offering Hope for HO For survivors of hypothalamic-pituitary ... Read more
Updates on Current and Pending Hypothalamic Obesity Clinical Trials
We are pleased to share updates on several clinical trials focusing on hypothalamic obesity (HO), ... Read more
Raymond A. Wood Foundation Partners with STOP Obesity Alliance
In September 2022, Raymond A. Wood Foundation partnered with George Washington University’s STOP (Strategies to ... Read more
Dear Parents: Here’s What I Want You to Know About Managing HO
Contributed by Lynne Mathies, craniopharyngioma survivor and RAWF intern “At the end of the day, ... Read more
RAWF Hosts Patient Listening Session on HO
The Raymond A. Wood Foundation (RAWF) whose mission is to empower hypothalamic-pituitary brain tumor survivors ... Read more
Marci Serota, RDN Joins RAWF Board of Directors
The Raymond A. Wood Foundation welcomes Marci Serota, RDN to our board of directors. Marci ... Read more
Hypothalamic Obesity Update in NORD’s Rare Disease Database
Hypothalamic Obesity (HO) is a rare condition often brought on by injury of the hypothalamus ... Read more
Hope for HO through Oxytocin
In 2016, my son was 13 years old and a 5-year-survivor of a brain tumor called craniopharyngioma. While we were grateful that he had survived the tumor and surgery, his quality of life was poor due largely to hypothalamic obesity with hyperphagia, a cruel condition characterized by symptoms including uncontrollable hunger and rapid weight gain. To prevent him from eating as much as his ravenous appetite dictated, we resorted to locking up all food and keeping a constant watch of him lest he steal food. It was an exhausting, depressing, and unsustainable lifestyle.