Hypothalamic-Pituitary Patient Registry Logo

The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.

Research study is open to participants worldwide to advance understanding and treatments these rare diseases ... Read more
Patient being screened for a trial

Clinical Trial Participant Best Practices

As a Participant, it’s Important to Do Your Part to Maintain the Integrity of the ... Read more
Woman looking out the window

Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study

The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and ... Read more
Dad walking kids to school

Navigating Special Education for a Successful School Year

In preparation of the upcoming school year, we dive into a crucial topic for parents ... Read more
Amy Wood at IBTA World Summit

RAWF Executive Director at the IBTA World Summit in Vienna, Austria

Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the ... Read more

Raymond A. Wood Foundation Releases FY 22 Annual Report

The Fiscal Year 2022 (July 2021 - June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.

Med ID Bracelet

Medical ID Bracelets for Panhypopituitarism Patients

It’s a common question that comes up among Facebook support groups for brain tumor patients ... Read more

New Website Feature: Clinical Trial Finder

The Raymond A. Wood Foundation continues to add features to the website to better support our patient, survivor and caregiver community. Last month we launched a page for those who are newly diagnosed to find important resources and support. This month, we launched a page dedicated to giving patients access to clinical trials specific to craniopharyngioma and its comorbidities engineered by Power, a company whose mission is to “help more patients find treatments and speed up the process of medical science as we go.”

RAWF Hosts Patient Listening Session on HO

The Raymond A. Wood Foundation (RAWF) whose mission is to empower hypothalamic-pituitary brain tumor survivors ... Read more

Will You Help Us?

My husband and I started this foundation in 2017 with a simple idea to provide handheld blood analyzers to brain tumor survivors like our son Alex. We had struggled so long to effectively manage his diabetes insipidus and the analyzer changed our lives. We knew others needed to have access to this device so we set out to remove the barriers to getting them. We quickly realized that there were so many other issues that needed to be tackled both for Alex and other survivors — issues likely faced by you or your child or loved one.

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