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Join the Hypothalamic-Pituitary Brain Tumor Patient Registry and help researchers better understand life after diagnosis, treatment, and survivorship.

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Chronic Disease Day: Why Raising Awareness Matters for Craniopharyngioma Survivors 

Every year on July 10, Chronic Disease Day shines a spotlight on the millions of people living with chronic illnesses. ... Read more

Momentum is Building: Reflections from the First MC4R Pathway Summit

Coming together to advance understanding of MC4R pathway diseases and acquired hypothalamic obesity. Bonnie (Ian’s ... Read more

Benign Is Not Fine. It’s Time to Rally for Research 

May is Brain Tumor Awareness Month, and this month the Raymond A. Wood Foundation is ... Read more
Screen shot of published study with Hypothalamic-Pituitary Brain Tumors Patient Registry Logo

Advancing Understanding of Hyperphagia in CP

New Study Sheds Light on Hyperphagia in Craniopharyngioma We’re thrilled to share the publication of ... Read more

Team RAWF Takes on NYC to Support Brain Tumor Survivors! 

The streets of New York City were full of energy, optimism and determination as a dedicated group ... Read more
Alex (pictured) is one of the faces of hypothalamic syndrom

Hypothalamic Syndrome: Finally, a Way to Describe What We’ve Been Living

Recognizing hypothalamic syndrome offers new hope for understanding, preventing, and treating the complex challenges faced ... Read more
Medical ID Bracelet: Adrenal Insufficiency: Stress Steroids, Diabetes Insipidus

Medical ID Bracelets for Panhypopituitarism Patients

It’s a common question that comes up among Facebook support groups for brain tumor patients ... Read more
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The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.

Research study is open to participants worldwide to advance understanding and treatments these rare diseases ... Read more
Patient being screened for a trial

Clinical Trial Participant Best Practices

As a Participant, it’s Important to Do Your Part to Maintain the Integrity of the ... Read more
Woman looking out the window

Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study

The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and ... Read more
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