Medical ID Bracelets for Panhypopituitarism Patients
It’s a common question that comes up among Facebook support groups for brain tumor patients ... Read more
The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.
Research study is open to participants worldwide to advance understanding and treatments these rare diseases ... Read more
Clinical Trial Participant Best Practices
As a Participant, it’s Important to Do Your Part to Maintain the Integrity of the ... Read more
Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study
The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and ... Read more
Navigating Special Education for a Successful School Year
In preparation of the upcoming school year, we dive into a crucial topic for parents ... Read more
RAWF Executive Director at the IBTA World Summit in Vienna, Austria
Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the ... Read more
Raymond A. Wood Foundation Releases FY 22 Annual Report
The Fiscal Year 2022 (July 2021 - June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.
New Website Feature: Clinical Trial Finder
The Raymond A. Wood Foundation continues to add features to the website rawoodfoundation.org to better support our patient, survivor and caregiver community. Last month we launched a page for those who are newly diagnosed to find important resources and support. This month, we launched a page dedicated to giving patients access to clinical trials specific to craniopharyngioma and its comorbidities engineered by Power, a company whose mission is to “help more patients find treatments and speed up the process of medical science as we go.”
RAWF Hosts Patient Listening Session on HO
The Raymond A. Wood Foundation (RAWF) whose mission is to empower hypothalamic-pituitary brain tumor survivors ... Read more