HomeRAWF News
Woman looking out the window

Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study

The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and ... Read more
Amy Wood at IBTA World Summit

RAWF Executive Director at the IBTA World Summit in Vienna, Austria

Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the ... Read more
Register for meeting

Development of Patient Registry Well Underway

The Raymond A. Wood Foundation hosted our first International Hypothalamic-Pituitary Brain Tumor Patient Registry advisory ... Read more

Working to Develop a Sodium Meter for DI Patients

The Raymond A. Wood Foundation (RAWF) entered an agreement with Giner Labs, a world-renowned center ... Read more
Children's Brain Tumor Network logo

Raymond A. Wood Foundation Joins the Children’s Brain Tumor Network Executive Council

The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. The CBTN is the largest pediatric brain tumor biorepository and is made up of over 40 partner foundations. This month, Raymond A. Wood Foundation (RAWF) joined those partner organizations and has pledged $50,000 in support of the growth of CBTN’s craniopharyngioma biobank to accelerate research on tumor treatment and post-treatment management.

Raymond A. Wood Foundation Releases FY 22 Annual Report

The Fiscal Year 2022 (July 2021 - June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.

CZI Convening

Learning How to Drive Research

The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative

Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.

Raymond A. Wood Foundation Welcomes New Board Member and Elects New Chair

The Raymond A. Wood Foundation (RAWF), a rare disease patient advocacy organization, whose mission is to empower survivors of hypothalamic-pituitary (H-P) brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments, announces exciting changes to the foundation’s board of directors including the addition of Christine Selko and the election of Eugenie Hsu, Ph.D. as chairperson.

The Raymond A. Wood Foundation Launches ROAR for RARE

The Raymond A. Wood Foundation (RAWF) – a patient-led, rare disease advocacy organization – announces the launch of ROAR for RARE, a campaign to raise $500,000 over the next year and a half to fund four critically needed projects that will drastically improve the quality of life for hypothalamic-pituitary (H-P) brain tumor survivors.

Meet Abigail, the Latest Handheld Blood Analyzer Recipient

Abigail Memmesheimer, age 14, of Staten Island, New York, is our latest handheld blood analyzer recipient. Abby was recently diagnosed with a hypothalamic-optic nerve germinoma and has undergone chemo and will soon be going through radiation. Staci, Abby’s mom, shares Abby’s brain tumor story.

12 Next