Experience Drives Change: The Raymond A. Wood Foundation’s FY2026 Impact
What happens when the experiences of patients and caregivers become the starting point for research, ... Read more
RAWF Welcomes Four New Members to Its Scientific Advisory Board
Strengthening Scientific Guidance to Improve Research, Care, and Quality of Life The Raymond A. Wood ... Read more
Hope for HO: The Wait is Over
In light of the recent FDA approval of setmelanotide for hypothalamic obesity, this commentary offers ... Read more
A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry
In 2024, the Raymond A. Wood Foundation launched a groundbreaking initiative that’s creating real momentum ... Read more
2025 Year in Review: Advancing Research, Empowering Families, and Strengthening Community
As we close out 2025, the Raymond A. Wood Foundation (RAWF) reflects a year defined ... Read more
International Experts Convene in Denver for 8th Postgraduate Course in Childhood Craniopharyngioma
The 8th Postgraduate Course in Childhood Craniopharyngioma (CP) took place on June 11–12 in Denver, ... Read more
One Year. 350 Voices. Countless Insights.
Celebrating the first anniversary of the Hypothalamic-Pituitary Brain Tumor Patient Registry—and the power of shared ... Read more
Levi’s Journey to the Stars
How a Handheld Blood Analyzer is Transforming His Life At the Raymond A. Wood Foundation, ... Read more
Triumph and Togetherness: RAWF Takes on the United Airlines NYC Half Marathon
In the bustling streets of New York City, amidst the vibrant energy of the United ... Read more
Scaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving Beyond Rare Disease
Hiking Kilimanjaro has been a dream of mine for many years and on Sunday 25th ... Read more