Share Your Story

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Sharing your brain tumor story raises awareness and creates connection with others facing similar challenges.

Everyone has a story to tell. We want to hear yours!

As a hypothalamic-pituitary brain tumor survivor or caregiver — YOU have a story to tell! From your diagnosis, to treatment and ongoing care along with the various emotions, struggles, and changes. At times, it may have felt like you were alone, but, while your diagnosis may be rare, you are not alone! There is a community of fellow survivors, caregivers, and family members just like you.

Sharing your story helps not only bring this small rare brain tumor community together, but it also spreads awareness about the journey hypothalamic-pituitary brain tumor survivors and caregivers face.

You may submit your story below through the form, or by emailing a video to us at

We look forward to hearing your story! #mybraintumorstory

Patient Stories

Share Your Story

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    By checking the boxes below, you authorize Raymond A. Wood Foundation to use and share your name, photo, and story on this website and on social media, for the purposes of raising awareness of hypothalamic pituitary brain tumors. This information will be available to the public. Raymond A. Wood Foundation may continue to share this information from the date of your submission until you withdraw this authorization. You may withdraw this authorization by contacting us at