Clinical Trial Participant Best Practices
Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium Testing
Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study
Development of Patient Registry Well Underway
Working to Develop a Sodium Meter for DI Patients
2022 Research Progress on Craniopharyngioma
Raymond A. Wood Foundation Joins the Children’s Brain Tumor Network Executive Council
The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. The CBTN is the largest pediatric brain tumor biorepository and is made up of over 40 partner foundations. This month, Raymond A. Wood Foundation (RAWF) joined those partner organizations and has pledged $50,000 in support of the growth of CBTN’s craniopharyngioma biobank to accelerate research on tumor treatment and post-treatment management.
Learning How to Drive Research
The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
Community Voice Report Provides Insight Into Topics Discussed Among Craniopharyngioma Community
In late 2020, Raymond A. Wood Foundation engaged TREND Community with support of the Craniopharyngioma Survivors Facebook Group to analyze topics discussed in the group to produce the Community Voice Report. The Community Voice Report follows the FDA’s patient input Guidelines for Patient-Focused Drug Development meetings and aims to quantify disease burden, disease management strategies, and possible unmet needs.
