Latest Research

HomeLatest Research
Sun coming through trees communicating hope

Illuminating Insights: Sharing a Recent Commentary on Our Research

The Raymond A. Wood Foundation is honored to share a significant development in our journey ... Read more
Patient being screened for a trial

Clinical Trial Participant Best Practices

As a Participant, it’s Important to Do Your Part to Maintain the Integrity of the ... Read more
Prototype design of sodium meter

Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium Testing

Introduction Managing diabetes insipidus just got a significant boost, thanks to the groundbreaking work of ... Read more
Woman looking out the window

Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study

The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and ... Read more
Register for meeting

Development of Patient Registry Well Underway

The Raymond A. Wood Foundation hosted our first International Hypothalamic-Pituitary Brain Tumor Patient Registry advisory ... Read more

Working to Develop a Sodium Meter for DI Patients

The Raymond A. Wood Foundation (RAWF) entered an agreement with Giner Labs, a world-renowned center ... Read more
Craniopharyngioma diagrama

2022 Research Progress on Craniopharyngioma

by Nathalie Kayadjanian, Ph.D., RAWF Scientific Advisor Image Credit: National Cancer Institute While surgery and ... Read more
Children's Brain Tumor Network logo

Raymond A. Wood Foundation Joins the Children’s Brain Tumor Network Executive Council

The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. The CBTN is the largest pediatric brain tumor biorepository and is made up of over 40 partner foundations. This month, Raymond A. Wood Foundation (RAWF) joined those partner organizations and has pledged $50,000 in support of the growth of CBTN’s craniopharyngioma biobank to accelerate research on tumor treatment and post-treatment management.

CZI Convening

Learning How to Drive Research

The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative

Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.

Community Voice Report Provides Insight Into Topics Discussed Among Craniopharyngioma Community

In late 2020, Raymond A. Wood Foundation engaged TREND Community with support of the Craniopharyngioma Survivors Facebook Group to analyze topics discussed in the group to produce the Community Voice Report. The Community Voice Report follows the FDA’s patient input Guidelines for Patient-Focused Drug Development meetings and aims to quantify disease burden, disease management strategies, and possible unmet needs.