Survival isn't the end of the story. For many, it's where the hardest part begins.
The Raymond A. Wood Foundation is a patient and parent-led rare disease organization working to improve the quality of life for survivors of craniopharyngioma and hypthalamic-pituitary brain tumors.
We are advancing research, expanding access to education and technology, and advocating for better treatment and lifelong support for survivors of craniopharyngioma and hypothalamic-pituitary brain tumors.
Advancing Research
We are generating real-world data and supporting research that is shaping a better understanding of hypothalamic conditions and long-term outcomes.
Improving Care
We are advancing tumor treatment, developing a device to improve AVP-D management, raising awareness of hypothalamic conditions, and improving access to care.
Supporting Survivor & Families
We provide education, resources, and connections for patients and caregivers navigating complex, lifelong challenges.
Raising Awareness
We are changing the conversation around "benign" brain tumors and advocating for recognition of long-term impact.
We can all use some help. Discover our range of resources we provide to those Newly Diagnosed, Survivor Resources or Caregivers.
What This Journey Has Taught Us—and What We’re Still Learning Ten years ago today, our ... Read more
At the Raymond A. Wood Foundation, we’re proud to support brain tumor survivors and their ... Read more
In May 2023, our world changed forever. My son, Lucas, began experiencing headaches and vomiting, ... Read more
Thank You to Our Partners & Collaborators
