About the Raymond A. Wood Foundation
The Raymond A. Wood Foundation is a parent and patient-led rare disease patient advocacy organization, dedicated to empowering survivors of craniopharyngioma and hypothalamic-pituitary brain tumors. The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
Advocating for a Brighter Future
Founded in 2017 by parents who personally experienced the challenges of craniopharyngioma, the Raymond A. Wood Foundation is driven by a deep commitment to making a difference. Witnessing their child’s resilience in the face of this rare condition, they established the foundation to be a beacon of hope and support for others facing similar battles.
A Voice for the Patient Community
We serve as a powerful advocate for the craniopharyngioma and hypothalamic-pituitary brain tumor patient community in the realm of research and healthcare. Through our advocacy efforts, we strive to amplify the voices of survivors and caregivers, ensuring their perspectives are heard and valued.
Empowering Survivors and Caregivers
At the heart of our mission is the belief that survivors and caregivers possess the power to be their own best advocates. We are committed to providing them with the knowledge, resources, and tools needed to navigate the complexities of these conditions. Through education and support, we empower individuals to take an active role in their healthcare journey.
Pioneering Solutions for Complex Challenges
Craniopharyngioma and hypothalamic-pituitary brain tumors present multifaceted challenges that significantly impact quality of life. The Raymond A. Wood Foundation is dedicated to advancing treatment outcomes and seeking innovative solutions. Through strategic partnerships and funding, we drive research initiatives aimed at improving the lives of those affected by these conditions.
Together, We Thrive
The Raymond A. Wood Foundation stands as a beacon of hope, unity, and resilience for the craniopharyngioma and hypothalamic-pituitary brain tumor community. Together, we work towards a future where survivors not only overcome their challenges, but thrive with a renewed sense of purpose and possibility.
Mission
The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
Vision
To ensure that hypothalamic-pituitary brain tumor survivors live a life unburdened by the impact of disease.
Core Values & Guiding Principles
Creativity and Innovation
Seeking new approaches to create solutions or improve systems to better serve the community.
Integrity and Transparency
Inspiring trust through open communication internally and externally.
Empathy, Care and Compassion
Always operating from a place of understanding of the challenges that face all within the community.
Ethics and Confidentiality
Keeping all information pertaining to patients, survivors, caregivers and healthcare professionals in confidence.
