Empowering Families: Nathan’s Journey with Craniopharyngioma and Diabetes Insipidus
Darren (12) Receives Medical Device from RAWF
Jessica, a Germinoma Survivor, Faces Sodium Complications Later in Life
A True Survivor – Meet Gadiel, RAWF’s Latest Blood Analyzer Recipient
Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
11-Year-Old Aliyah, Craniopharyngioma Survivor, Receives Medical Device
A Story of a True Warrior – Meet Evie McCollum
Meet the Latest Handheld Blood Analyzer Recipient – Finn, age 6
On December 11, 2021, Finn, a six-year-old from Spokane, WA, was airlifted from Sacred Heart ER to Seattle Children's Hospital due to the complex growth of a tumor in his brain. which was causing vision loss and impaired brain function.
Meet Franklin Knowles, Our Latest Handheld Blood Analyzer Recipient
Meet Franklie Knowles, 10, our latest handheld blood analyzer recipient. Frankie was diagnosed with a pilomyxoid astrocytoma (PMA) when he was 6 years old and difficulty managing sodium levels have persisted long after almost all other tumor complication has stabilized. He has had several hyponatremic seizures that resulted in hospitalizations.
Craniopharyngioma survivor, Azalea, age 2, receives blood analyzer
Meet Azalea, 2, a silly music loving two year old who lives in Sacramento, California.
Azaleas parents started this journey with a couple of trips to the ER due to episodes of non-specific vomiting, and received the most devastating news a parent is ever prepared for. On the 14th of September 2020, Azalea was diagnosed with a very large craniopharyngioma for her tiny brain and body.
