Survivor Stories

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Stories of survival from the perspective of the survivors battling a rare brain tumor.

Racing for A Cause: Josh Begley’s Ironman Journey

On December 15th, Josh Begley will be trading his sneakers for swim caps and cycling ... Read more
Lennox: Pediatric Brain Tumor Patient

Meet Lennox: A Little Fighter with a Big Heart

How a Handheld Blood Analyzer Can Bring Freedom and Hope to His Family At just ... Read more
Grace Banks, handheld blood analyzer recipient

Meet Grace Banks: A Warrior with a Smile

At just 12 years old, Grace Banks embodies resilience and optimism in the face of ... Read more

Levi’s Journey to the Stars

How a Handheld Blood Analyzer is Transforming His Life At the Raymond A. Wood Foundation, ... Read more
Peter - a germinoma survivor

Dancing Through Challenges: Peter’s Story

Peter, age 9, Receives a Handheld Blood Analyzer for Management of Arginine Vasopressin Deficiency (AVP-D) ... Read more

Navigating the Shadows: My Journey with Craniopharyngioma and Finding Gratitude Along the Way

My story is a very bitter one. I started to have virtually all the symptoms ... Read more

Scaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving Beyond Rare Disease

Hiking Kilimanjaro has been a dream of mine for many years and on Sunday 25th ... Read more
Jack, a cranio warrior during treatment

Patient Story: Jack

Hello, my name is Jack! In 2015, I was diagnosed with a Craniopharyngioma in May ... Read more
Leigh, a cranio warror

Patient Story: Leigh

A story of tumor recurrence and a survivor’s persistence. My name is Leigh Blair. In ... Read more
Bob - a cranio warror

Patient Story: Bob

My name is Bob Brady, and I am from Ireland. In 1991, I was diagnosed ... Read more
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