2022 Research Progress on Craniopharyngioma
by Nathalie Kayadjanian, Ph.D., RAWF Scientific Advisor Image Credit: National Cancer Institute While surgery and …
RAWF
Patient Story: Jonah
Story told by Rich, Jonah’s dad Our 5-year-old boy, Jonah has a crainiopharyngioma. He had …
Raymond A. Wood Foundation Partners with STOP Obesity Alliance
In September 2022, Raymond A. Wood Foundation partnered with George Washington University’s STOP (Strategies to …
Raymond A. Wood Foundation Joins the Children’s Brain Tumor Network Executive Council
The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. The CBTN is the largest pediatric brain tumor biorepository and is made up of over 40 partner foundations. This month, Raymond A. Wood Foundation (RAWF) joined those partner organizations and has pledged $50,000 in support of the growth of CBTN’s craniopharyngioma biobank to accelerate research on tumor treatment and post-treatment management.
Raymond A. Wood Foundation Releases FY 22 Annual Report
The Fiscal Year 2022 (July 2021 – June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.
Patient Story: Leigha
Hello, I’m Leigha! I am a proud cranio warrior! I was diagnosed [with a craniopharyngioma] …
11-Year-Old Aliyah, Craniopharyngioma Survivor, Receives Medical Device
2019 was a year that changed Aliyah’s life forever when she was diagnosed with the …
Learning How to Drive Research
The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
A Story of a True Warrior – Meet Evie McCollum
Evie is a craniopharyngioma survivor who also battles adipsic diabetes insipidus Evie McCollum is a …
Meet the Latest Handheld Blood Analyzer Recipient – Finn, age 6
On December 11, 2021, Finn, a six-year-old from Spokane, WA, was airlifted from Sacred Heart ER to Seattle Children’s Hospital due to the complex growth of a tumor in his brain. which was causing vision loss and impaired brain function.
