Patient Story: Bob

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Bob - a cranio warror



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My name is Bob Brady, and I am from Ireland.

In 1991, I was diagnosed with a craniopharyngioma tumor on the pituitary gland when I was eleven years old.

I had some symptoms, but they developed over time, which delayed the diagnosis. These symptoms included headaches, vision loss, Diabetes Insipidus, small stature, low energy levels, etc.

In May 1992, I had surgery (craniotomy) to remove the tumor. Due to the size of the tumor, my pituitary pland was also removed. As a result, I now have a condition called panhypopituitarism, which means a loss of all hormone secretion.

I take hormone replacement medication daily as a result, which includes Hydrocortisone, Eltroxin, DDAVP, Growth Hormone, testosterone and others.

Last year, I celebrated 30 years post-surgery!

For many years, I searched online trying to find support groups. I was looking for support but also wanted to give back and support newly diagnosed patients.

In 2015, I became a volunteer coordinator with the Pituitary Foundation, and in 2022, I became the director of The World Alliance of Pituitary Organizations (‘WAPO’).

Now, I support patients diagnosed with conditions linked to the Pituitary Gland. I also advocate for change, raise awareness, and educate medical professionals to aid in early diagnosis.