Jessica, a Germinoma Survivor, Faces Sodium Complications Later in Life
Survivors of hypothalamic-pituitary tumors pay a high price for survival. Many, through their lifetime, will …
RAWF
Patient Story: Jack
Hello, my name is Jack! In 2015, I was diagnosed with a Craniopharyngioma in May …
A True Survivor – Meet Gadiel, RAWF’s Latest Blood Analyzer Recipient
Gadiel is described as a loving and strong six-year-old boy. On 3/6/2020, he endured a …
Patient Story: Leigh
A story of tumor recurrence and a survivor’s persistence. My name is Leigh Blair. In …
Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
Patient Story: Trinity
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Trinity was born on October 23, 2008, a beautiful, healthy 8lb 6oz baby girl. It …
2022 Research Progress on Craniopharyngioma
by Nathalie Kayadjanian, Ph.D., RAWF Scientific Advisor Image Credit: National Cancer Institute While surgery and …
Patient Story: Jonah
Story told by Rich, Jonah’s dad Our 5-year-old boy, Jonah has a crainiopharyngioma. He had …
Raymond A. Wood Foundation Partners with STOP Obesity Alliance
In September 2022, Raymond A. Wood Foundation partnered with George Washington University’s STOP (Strategies to …
