Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the International Brain Tumour Alliance Biannual World Summit. Topics included state-of-the-art therapy developments, quality-of-life issues and best practices in diagnosis, treatment and support. Speakers and attendees discussed new challenges that affect the patient population and innovative ideas to support survivorship. Attendees participated in plenary lectures, masterclasses and workshops to hone advocacy skills and had the opportunity to network and consider ways to collaborate across the globe.
Amy Wood, executive director, was invited to attend and speak on the work of the Raymond A. Wood Foundation and the challenges facing hypothalamic-pituitary brain tumor survivors and how the foundation sets out to improve quality of life through support and driving research.
“I was incredibly honored to have the opportunity to create the real picture of what life is like for survivors of these tumors,” Amy says. “The perception tends to be that these tumors are benign and survivable and therefore ‘okay,’ but the reality is that, for many, surviving is more like a life sentence and that is why our work is so needed.”
Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the International Brain Tumour Alliance Biannual World Summit. Topics included state-of-the-art therapy developments, quality-of-life issues and best practices in diagnosis, treatment and support. Speakers and attendees discussed new challenges that affect the patient population and innovative ideas to support survivorship. Attendees participated in plenary lectures, masterclasses and workshops to hone advocacy skills and had the opportunity to network and consider ways to collaborate across the globe.
Amy Wood, executive director, was invited to attend and speak on the work of the Raymond A. Wood Foundation and the challenges facing hypothalamic-pituitary brain tumor survivors and how the foundation sets out to improve quality of life through support and driving research.
“I was incredibly honored to have the opportunity to create the real picture of what life is like for survivors of these tumors,” Amy says. “The perception tends to be that these tumors are benign and survivable and therefore ‘okay,’ but the reality is that, for many, surviving is more like a life sentence and that is why our work is so needed.”
