New Research Puts a Spotlight on Fatigue After Craniopharyngioma
How registry data is turning patient experience into evidence For people living with the long-term …
Amy Wood
Momentum is Building: Reflections from the First MC4R Pathway Summit
Coming together to advance understanding of MC4R pathway diseases and acquired hypothalamic obesity. Bonnie (Ian’s …
Hypothalamic Syndrome: Finally, a Way to Describe What We’ve Been Living
Recognizing hypothalamic syndrome offers new hope for understanding, preventing, and treating the complex challenges faced …
Marking 10 Years From Diagnosis
What This Journey Has Taught Us—and What We’re Still Learning Ten years ago today, our …
Meet Trenton Lins: A Social Butterfly in the Fight for Stability
At the Raymond A. Wood Foundation, we’re proud to support brain tumor survivors and their …
Painting Through Pain: A Caregiver’s Journey of Resilience and Love
By Victoria Lee, Artist and Caregiver When your child is diagnosed with cancer—especially at the …
Celebrating Creativity and Courage: Meet the Judges Behind Art of Surviving 2025
Each year during Brain Tumor Awareness Month, the Raymond A. Wood Foundation (RAWF) hosts Art of …
Meet Holly Gainsboro: RAWF’s Grief Support Specialist and Group Facilitator
At the Raymond A. Wood Foundation, we understand that grief is a profound and personal …
Survival as an Art: A Celebration of Strength and Creativity
At the Raymond A. Wood Foundation, we believe that survival is more than just a …
Lucas’ Journey: A Story of Strength and Resilience
In May 2023, our world changed forever. My son, Lucas, began experiencing headaches and vomiting, …
