Levi’s Journey to the Stars
How a Handheld Blood Analyzer is Transforming His Life At the Raymond A. Wood Foundation, …
Amy Wood
The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.
Research study is open to participants worldwide to advance understanding and treatments these rare diseases …
Recap: Pituitary Brain Tumor Family Conference 2023 – Advocacy, Connection, and Growth
Overview In the heart of Philadelphia, the Raymond A. Wood Foundation hosted the 5th Annual …
Empowering Families: Nathan’s Journey with Craniopharyngioma and Diabetes Insipidus
Meet Nathan Johnson: A Brave Warrior, Age 5, Fighting Against Craniopharyngioma In May of 2021, …
Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium Testing
Introduction Managing diabetes insipidus just got a significant boost, thanks to the groundbreaking work of …
Raymond A. Wood Foundation Reveals Caregiver Burden in Pioneering Craniopharyngioma Study
The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and …
Working to Develop a Sodium Meter for DI Patients
The Raymond A. Wood Foundation (RAWF) entered an agreement with Giner Labs, a world-renowned center …
Will You Help Us?
My husband and I started this foundation in 2017 with a simple idea to provide handheld blood analyzers to brain tumor survivors like our son Alex. We had struggled so long to effectively manage his diabetes insipidus and the analyzer changed our lives. We knew others needed to have access to this device so we set out to remove the barriers to getting them. We quickly realized that there were so many other issues that needed to be tackled both for Alex and other survivors — issues likely faced by you or your child or loved one.
Blessings
Three years ago today life changed for my son, Alex. In a matter of 24 hours, his life journey took a major turn from being a typical 4-year-old boy doing typical 4-year old boy things to a child that would face of lifetime of medical, emotional and physical challenges. We woke up this very morning three years ago the same as we always do, business as usual, but with one little telltale sign that landed him in an MRI hours later and emergency brain surgery the next day.
