5th Annual Pituitary Brain Tumor Family Conference
Join Us at Children’s Hospital of Philadelphia for Learning and Connection
Topics include:
- Integrative medicine
- Neuro-psychological challenges and management
- Hypothalamic obesity treatment
- the latest findings on hypothalamic-pituitary tumors and related conditions
- Sex hormone replacement
- Adrenal insufficiency – stress dosing and cortisol replacement
- Sleep issues
- Adult management of endocrine issues
This year, the event will be hybrid and we invite you to attend virtually or join us at Children’s Hospital of Philadelphia to hear the latest research, listen to talks by medical experts, and connect with fellow survivors and caregivers.
Register NowConference Agenda
Day 1 – November 4, 2023
Location: CHOP Roberts Center for Pediatric Research
*Times in EST, agenda is subject to change
| 8:45am – 9:00am | Welcome Craig Alter, Children’s Hospital of Philadelphia Amy Wood, Raymond A. Wood Foundation |
| 9:00am – 9:50am | Keynote: Integrative Medicine from the Patient and Caregiver Perspective Soma Sengupta, MD, PhD, FRCP, FAAN, FANA UNC School of Medicine – Neurology |
| 10:00am – 10:45am | Pituitary 101 – A Tour of the Hormones Craig Alter, MD Children’s Hospital of Philadelphia Neuroendocrine Clinic |
| 11:00am – 11:45am | Latest Findings in Clinical Trials and Research Shana McCormack, MD MTR |
| 12:00pm – 1:00pm | Lunch & Networking |
| 1:00pm – 1:50pm | Breakout Session A |
| Hypothalamic Obesity: Nutrition Management Marci Serota, RDN | |
| Diabetes Insipidus Management Iris Gutmark-Little Cincinnati Children’s | |
| Adrenal Insufficiency – Steroids and Stress Dosing | |
| 2:00pm – 2:50pm | Breakout Session B |
| Growth Hormone for Children and Adults | |
| Adult Management of Endocrine Issues Lewis Blevins UCSF Health | |
| Sleep Challenges and Approaches Victoria Crabtree, PhD St. Jude’s Children’s Research Hospital | |
| 3:00pm – 3:50pm | Breakout Session C |
| Sex Hormone Replacement – Male Christopher Gibson, MD Children’s Hospital of Philadelphia | |
| Sex Hormone Replacement – Female | |
| Navigating Social Issues Meredith E. MacGregor, MD Children’s Hospital of Philadelphia | |
| 3:50pm – 4:10pm | Break |
| 4:15pm – 5:15pm | Panel Questions & Answers Presenting Speakers |
| 5:30pm – 7:30pm | Dinner |
Day 2 – November 5, 2023
Location: Wyndham Philadelphia Historic District
| 8:00am – 9:00am | Breakfast & Networking |
| 9:00am – 9:45am | Why Research Matters and Patient Research Priorities Nathalie Kayadjanian |
| 10:00am – 10:45am | Accelerating Research through Biosample Collection Children’s Brain Tumor Network |
| 11:00am – 12:00pm | Parent & Patient Panel Opportunity for open discussion on caregiver and patient experiences, research priorities and managing conditions. |
| 12:00pm | Wrap Up & Goodbye |
Sponsor this Conference
In its fifth year, and first in-person since 2019, our largest annual gathering continues to offer critical education and community-building for survivors, caregivers, and family members; it is also an important opportunity for researchers and treatment developers to directly connect with and learn from our patient and survivor networks, specifically their experiences and challenges. Sponsorships of all levels help us offset costs for attendees so that all may access this important space for experience-sharing and collective learning.
Check Out Our Sponsorship OpportunitiesContact development@rawoodfoundation.org to learn more and explore a customized sponsorship package that best supports your company’s marketing and mission-alignment goals.
