Annual Conference

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Join us for our upcoming Pituitary Brain Tumor Annual Conference, November 4-5, 2023. Attend virtually or in-person at the Children’s Hospital of Philadelphia to hear the latest research, listen to talks by medical experts, and connect with fellow survivors and caregivers

5th Annual Pituitary Brain Tumor Family Conference

Join Us at Children’s Hospital of Philadelphia for Learning and Connection

Topics include:

  • Integrative medicine
  • Neuro-psychological challenges and management
  • Hypothalamic obesity treatment
  • the latest findings on hypothalamic-pituitary tumors and related conditions
  • Sex hormone replacement
  • Adrenal insufficiency – stress dosing and cortisol replacement
  • Sleep issues
  • Adult management of endocrine issues
Dr. Craig Alter shares his insights on what can be learned when families and physicians come together.

This year, the event will be hybrid and we invite you to attend virtually or join us at Children’s Hospital of Philadelphia to hear the latest research, listen to talks by medical experts, and connect with fellow survivors and caregivers.

Register Now

Conference Agenda

Day 1 – November 4, 2023
Location: CHOP Roberts Center for Pediatric Research
*Times in EST, agenda is subject to change

8:45am  – 9:00amWelcome
Craig Alter, Children’s Hospital of Philadelphia
Amy Wood, Raymond A. Wood Foundation
9:00am – 9:50amKeynote: Integrative Medicine from the Patient and Caregiver Perspective
Soma Sengupta, MD, PhD, FRCP, FAAN, FANA
UNC School of Medicine – Neurology
10:00am – 10:45amPituitary 101 – A Tour of the Hormones
Craig Alter, MD
Children’s Hospital of Philadelphia Neuroendocrine Clinic
11:00am – 11:45amLatest Findings in Clinical Trials and Research
Shana McCormack, MD MTR
12:00pm – 1:00pm Lunch & Networking
1:00pm – 1:50pmBreakout Session A
Hypothalamic Obesity: Nutrition Management
Marci Serota, RDN
Diabetes Insipidus Management
Iris Gutmark-Little
Cincinnati Children’s
Adrenal Insufficiency – Steroids and Stress Dosing
2:00pm – 2:50pmBreakout Session B
Growth Hormone for Children and Adults
Adult Management of Endocrine Issues
Lewis Blevins
UCSF Health
Sleep Challenges and Approaches
Victoria Crabtree, PhD
St. Jude’s Children’s Research Hospital
3:00pm – 3:50pmBreakout Session C
Sex Hormone Replacement – Male
Christopher Gibson, MD
Children’s Hospital of Philadelphia
Sex Hormone Replacement – Female
Navigating Social Issues
Meredith E. MacGregor, MD
Children’s Hospital of Philadelphia
3:50pm – 4:10pm Break
4:15pm – 5:15pmPanel Questions & Answers
Presenting Speakers
5:30pm – 7:30pmDinner

Day 2 – November 5, 2023
Location: Wyndham Philadelphia Historic District

8:00am – 9:00amBreakfast & Networking
9:00am – 9:45amWhy Research Matters and Patient Research Priorities
Nathalie Kayadjanian
10:00am – 10:45amAccelerating Research through Biosample Collection
Children’s Brain Tumor Network
11:00am – 12:00pmParent & Patient Panel
Opportunity for open discussion on caregiver and patient experiences, research priorities and managing conditions.
12:00pm Wrap Up & Goodbye

Sponsor this Conference

In its fifth year, and first in-person since 2019, our largest annual gathering continues to offer critical education and community-building for survivors, caregivers, and family members; it is also an important opportunity for researchers and treatment developers to directly connect with and learn from our patient and survivor networks, specifically their experiences and challenges. Sponsorships of all levels help us offset costs for attendees so that all may access this important space for experience-sharing and collective learning.

Check Out Our Sponsorship Opportunities

Contact to learn more and explore a customized sponsorship package that best supports your company’s marketing and mission-alignment goals.