Pituitary Brain Tumor Family Conference
Save the Date: November 15 & 16, 2025 at the Children’s Hospital of Philadelphia
We’re excited to announce the Raymond A. Wood Foundation Patient/Family Conference 2025, slated for November 15th! This event stands as a cornerstone of our dedication to providing essential support and resources for individuals and families affected by hypothalamic-pituitary brain tumors.
At this empowering gathering, patients, families, caregivers, and healthcare professionals will convene to delve into critical topics and foster connections within our community.
The conference will cover a diverse range of vital themes, including the latest advancements in tumor treatment, strategies for managing endocrine issues, insights into navigating hypothalamic obesity, addressing social and emotional challenges, and effective care management approaches.
With expert-led sessions, interactive round table discussions, and ample networking opportunities, attendees can anticipate a rich and engaging experience designed to empower, educate, and inspire.
Save the date and stay tuned for further details on speakers, agenda, and registration information. Together, we’ll continue to drive progress and support for our community.
2023 Conference Recap
In the heart of Philadelphia, the Raymond A. Wood Foundation proudly hosted the 5th Annual Pituitary Brain Tumor Family Conference 2023 at the esteemed Children’s Hospital of Philadelphia. This event symbolized our collective dedication to advocacy, connection, and personal growth. Caregivers, survivors, and experts came together to delve into the latest insights into neuroendocrine disorders stemming from hypothalamic-pituitary brain tumors, weaving a vibrant tapestry of shared experiences. Remarkably, this marked the first in-person gathering since 2019, amplifying the significance and spirit of community among attendees.
2023 Presentations
Keynote: Integrative Medicine from the Patient and Caregiver Perspective
Soma Sengupta, MD, PhD, FRCP, FAAN, FANA
UNC School of Medicine – Neurology
Pituitary 101 – A Tour of the Hormones
Craig Alter, MD
Children’s Hospital of Philadelphia Neuroendocrine Clinic
Latest Findings in Clinical Trials and Research
Shana McCormack, MD, MTR
Children’s Hospital of Philadelphia Neuroendocrine Clinic
Hypothalamic Obesity: Nutrition Management
Marci Serota, RDN
Navigating Social Issues
Meredith E. MacGregor, MD
Children’s Hospital of Philadelphia
Diabetes Insipidus Management
Iris Gutmark-Little, MD
Cincinnati Children’s
Sex Hormone Replacement Panel
Chris Gibson, MD
Children’s Hospital of Philadelphia
Iris Gutmark-Little, MD
Cincinnati Children’s
Moderated by: Shana McCormack, MD MTR
Sleep Challenges and Approaches
Valerie Crabtree, PhD
St. Jude Children’s Research Hospital
Adrenal Insufficiency – Stress Dosing FAQs & Demo
Julia Crowley, MD
Children’s Hospital of Philadelphia
The What and Why of a Patient Registry
Nathalie Kayadjanian, PhD
Sponsor Presentation from Rhythm Pharmaceuticals
Sponsor Presentation from LG Chem
2023 Conference Sponsors
Sponsor this Conference
Our largest bi-annual gathering offers critical education and community-building for survivors, caregivers, and family members; it is also an important opportunity for researchers and treatment developers to directly connect with and learn from our patient and survivor networks, specifically their experiences and challenges. Sponsorships of all levels help us offset costs for attendees so that all may access this important space for experience-sharing and collective learning.
Check Out Our Sponsorship OpportunitiesContact development@rawoodfoundation.org to learn more and explore a customized sponsorship package that best supports your company’s marketing and mission-alignment goals.
