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Registration is Open for Pituitary Brain Tumor Virtual Conference

Education, Events, Uncategorized

Registration is now open for the Pituitary Brain Tumor (PBT) Virtual Family Conference hosted by Raymond A. Wood Foundation (RAWF) in partnership with the Children’s Hospital of Philadelphia’s (CHOP) Division of Endocrinology and Diabetes. Originally named the Pituitary Brain Tumor Day to be held this past May at CHOP, the event was postponed until November in light of COVID-19 and is now officially going virtual. The PBT Virtual Conference is slated for Saturday, November 14th and Sunday, November 15th via Zoom and includes keynotes, breakout sessions, roundtables and virtual family networking.

Registration is Open for Pituitary Brain Tumor Virtual Conference

Compassion Fatigue and Caregiving – A Professional and Personal Perspective

Caregivers, Uncategorized

Last week, we discussed the subject of compassion fatigue in the healthcare industry with Jessica Dale, a parent of a brain tumor survivor or “brain tumor mom” and expert on the subject.

This week, we discussed her personal experience as a parent of a child, that is now a young adult, survivor of a pediatric brain tumor. We asked for tips on how to avoid pitfalls that families of children and adolescents with special health care needs face.

Compassion Fatigue and Caregiving – A Professional and Personal Perspective

Medical Monday: Understanding Compassion Fatigue

Caregivers, Uncategorized

Have you run into a doctor that just seemed to not care? Maybe you felt rushed, received difficult news in a less than empathetic manner or felt like you just aren’t being heard. What you could be experiencing is healthcare compassion fatigue. It is a mental health situation that occurs in healthcare providers in clinical settings to caregivers of loved ones with chronic conditions or special needs. It is a subject worth exploring both in how to manage it in a caregiver role and how to handle a situation where a healthcare professional just seems to lack interest while we are desperate for solutions.

Medical Monday: Understanding Compassion Fatigue

COVID-19 and Adrenal Insufficiency

In ENDOOnline 2020’s first session last Monday, Wiebke Arlt, MD, DSc, FRCP, FMedSci, of the University of Birmingham, updated conference attendees on steroid dosing for Adrenal Insufficient patients with COVID-19. The discussion was focused both on primary adrenal insufficiency (PAI) or Addison’s Disease and secondary adrenal insufficiency (SAI) which is typically caused by hypothalamic-pituitary disorders, the risks for patients and steroid treatment plan for patients diagnosed with COVID-19.

COVID-19 and Adrenal Insufficiency

Art of Surviving, Global Online Art Exhibition, Launches in Honor of Brain Tumor Awareness Month

Events, RAWF News

The Raymond A. Wood Foundation (RAWF) launches the third year of “Art of Surviving,” a virtual art exhibition that celebrates the creativity of the brain tumor community during the month of May, which is Brain Tumor Awareness Month. Brain tumor patients and survivors, along with caregivers and family members from all over the world submitted over a hundred entries in all types of media, including photography, digital art, drawing, painting, printmaking, 3-D, multimedia, and creative writing.

Art of Surviving, Global Online Art Exhibition,  Launches in Honor of Brain Tumor Awareness Month

The Raymond A. Wood Foundation Announces New Mission Statement

Advocacy, RAWF News

Raymond A. Wood Foundation (RAWF) announces a new mission to empower hypothalamic-pituitary brain tumor survivors for improved quality of life by providing access to education, technology, and evolving treatments. The mission expands the foundation’s reach to include adult survivors and narrows its focus to those tumors that occupy the central part of the brain and impact the endocrine system, metabolic processes, cognition and behavior, vision, growth, stress response, and other important body functions.

The Raymond A. Wood Foundation Announces New Mission Statement
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Raymond A. Wood Foundation
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