Levi’s Journey to the Stars
How a Handheld Blood Analyzer is Transforming His Life At the Raymond A. Wood Foundation, ... Read more
Dancing Through Challenges: Peter’s Story
Peter, age 9, Receives a Handheld Blood Analyzer for Management of Arginine Vasopressin Deficiency (AVP-D) ... Read more
Navigating the Shadows: My Journey with Craniopharyngioma and Finding Gratitude Along the Way
My story is a very bitter one. I started to have virtually all the symptoms ... Read more
Scaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving Beyond Rare Disease
Hiking Kilimanjaro has been a dream of mine for many years and on Sunday 25th ... Read more
Patient Story: Jack
Hello, my name is Jack! In 2015, I was diagnosed with a Craniopharyngioma in May ... Read more
Patient Story: Leigh
A story of tumor recurrence and a survivor’s persistence. My name is Leigh Blair. In ... Read more
Patient Story: Bob
My name is Bob Brady, and I am from Ireland. In 1991, I was diagnosed ... Read more
Patient Story: Trinity
Trinity was born on October 23, 2008, a beautiful, healthy 8lb 6oz baby girl. It ... Read more
Patient Story: Leigha
Hello, I’m Leigha! I am a proud cranio warrior! I was diagnosed [with a craniopharyngioma] ... Read more
A Story of a True Warrior – Meet Evie McCollum
Evie is a craniopharyngioma survivor who also battles adipsic diabetes insipidus Evie McCollum is a ... Read more