Aidan’s Journey: A story of strength and recovery
Overcoming the Challenges of a Rare Brain Tumor When Kelly’s son, Aidan, turned 13, she …
Jamie
Aydan’s Journey with Craniopharyngioma
From Diagnosis to Hope: Aydan’s Brave Journey with Craniopharyngioma In April 2021, Aydan Arguello’s life …
A Lifeline for Elder: How the Handheld Blood Analyzer is Changing Lives
Empowering Families, One Blood Test at a Time: Elder’s Journey with the Handheld Blood Analyzer …
From Diagnosis to Determination: Stefany’s Journey of Hope and Resilience
A Young Warrior’s Journey Through Adversity, Hope, and Unstoppable Determination From Diagnosis to Determination: Stefany’s …
Racing for A Cause: Josh Begley’s Ironman Journey
On December 15th, Josh Begley will be trading his sneakers for swim caps and cycling …
Navigating the Shadows: My Journey with Craniopharyngioma and Finding Gratitude Along the Way
My story is a very bitter one. I started to have virtually all the symptoms …
Scaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving Beyond Rare Disease
Hiking Kilimanjaro has been a dream of mine for many years and on Sunday 25th …
Dan’s ‘Breakthrough’ T-Shirt Fundraiser
Why I created a t-shirt to celebrate AVP-D “culture” and support RAWF’s blood sodium meter …
RAWF Develops Spanish Language Resources through a Grant
In 2022, the Raymond A. Wood Foundation (RAWF) was named a grantee of the Global …
