Ocean City, MD (November 3, 2021) — It was announced today that the Raymond A. Wood Foundation (RAWF), a patient-led, rare disease advocacy organization for survivors of hypothalamic-pituitary brain tumors, has been selected as a grantee of the Chan Zuckerberg Initiative (CZI) Rare As One Network, aimed at supporting and lifting up the work that patient communities are doing to drive progress in the fight against rare diseases.

As we wrap up Brain Tumor Awareness Month, we wanted to share this beautiful tribute by a sister of a childhood brain tumor survivor who recently passed away. When I read this, I was so moved by Susan Keller’s words about Leigh Ann Doninger who passed away this January. Susan shared her eulogy to her sister along with an in memoriam donation to RAWF. These words felt fitting for our last Inspiration Friday of Brain Tumor Awareness Month. Leigh sounded like a true inspiration to many.