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Raymond A. Wood Foundation Releases FY 22 Annual Report

The Fiscal Year 2022 (July 2021 - June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.

CZI Convening

Learning How to Drive Research

The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative

Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.

Raymond A. Wood Foundation Welcomes New Board Member and Elects New Chair

The Raymond A. Wood Foundation (RAWF), a rare disease patient advocacy organization, whose mission is to empower survivors of hypothalamic-pituitary (H-P) brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments, announces exciting changes to the foundation’s board of directors including the addition of Christine Selko and the election of Eugenie Hsu, Ph.D. as chairperson.

The Raymond A. Wood Foundation Launches ROAR for RARE

The Raymond A. Wood Foundation (RAWF) – a patient-led, rare disease advocacy organization – announces the launch of ROAR for RARE, a campaign to raise $500,000 over the next year and a half to fund four critically needed projects that will drastically improve the quality of life for hypothalamic-pituitary (H-P) brain tumor survivors.

Meet Abigail, the Latest Handheld Blood Analyzer Recipient

Abigail Memmesheimer, age 14, of Staten Island, New York, is our latest handheld blood analyzer recipient. Abby was recently diagnosed with a hypothalamic-optic nerve germinoma and has undergone chemo and will soon be going through radiation. Staci, Abby’s mom, shares Abby’s brain tumor story.

Marci Serota, RDN Joins RAWF Board of Directors

The Raymond A. Wood Foundation welcomes Marci Serota, RDN to our board of directors. Marci ... Read more

Pituitary Brain Tumor Virtual Conference A Success

Last weekend, the Raymond A. Wood Foundation (RAWF), a brain tumor patient advocacy nonprofit organization, hosted the Pituitary Brain Tumor Virtual Conference in partnership with the Children’s Hospital of Philadelphia (CHOP). The event brought in an audience of brain tumor survivors and caregivers from around the globe.

Kendra Scott Brand to ‘Give Back’ to Raymond A. Wood Foundation for World Kindness Day

Just in time to get a jump on holiday gift giving, the community, supporters, friends and family members of the Raymond A. Wood Foundation are invited to take part in an opportunity to purchase Kendra Scott brand jewelry and support brain tumor survivors with quality of life challenges. The event takes place on November 14th for World Kindness Day.

Art of Surviving, Global Online Art Exhibition, Launches in Honor of Brain Tumor Awareness Month

The Raymond A. Wood Foundation (RAWF) launches the third year of “Art of Surviving,” a virtual art exhibition that celebrates the creativity of the brain tumor community during the month of May, which is Brain Tumor Awareness Month. Brain tumor patients and survivors, along with caregivers and family members from all over the world submitted over a hundred entries in all types of media, including photography, digital art, drawing, painting, printmaking, 3-D, multimedia, and creative writing.

The Raymond A. Wood Foundation Announces New Mission Statement

Raymond A. Wood Foundation (RAWF) announces a new mission to empower hypothalamic-pituitary brain tumor survivors for improved quality of life by providing access to education, technology, and evolving treatments. The mission expands the foundation’s reach to include adult survivors and narrows its focus to those tumors that occupy the central part of the brain and impact the endocrine system, metabolic processes, cognition and behavior, vision, growth, stress response, and other important body functions.