Development of Patient Registry Well Underway
Working to Develop a Sodium Meter for DI Patients
Raymond A. Wood Foundation Joins the Children’s Brain Tumor Network Executive Council
The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. The CBTN is the largest pediatric brain tumor biorepository and is made up of over 40 partner foundations. This month, Raymond A. Wood Foundation (RAWF) joined those partner organizations and has pledged $50,000 in support of the growth of CBTN’s craniopharyngioma biobank to accelerate research on tumor treatment and post-treatment management.
Raymond A. Wood Foundation Releases FY 22 Annual Report
The Fiscal Year 2022 (July 2021 - June 2022) Annual Report has been released and details our programs and initiatives, impact by the numbers, financial breakdown and our goals in the coming year.
Learning How to Drive Research
The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
Raymond A. Wood Foundation Welcomes New Board Member and Elects New Chair
The Raymond A. Wood Foundation (RAWF), a rare disease patient advocacy organization, whose mission is to empower survivors of hypothalamic-pituitary (H-P) brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments, announces exciting changes to the foundation’s board of directors including the addition of Christine Selko and the election of Eugenie Hsu, Ph.D. as chairperson.
The Raymond A. Wood Foundation Launches ROAR for RARE
The Raymond A. Wood Foundation (RAWF) – a patient-led, rare disease advocacy organization – announces the launch of ROAR for RARE, a campaign to raise $500,000 over the next year and a half to fund four critically needed projects that will drastically improve the quality of life for hypothalamic-pituitary (H-P) brain tumor survivors.
Meet Abigail, the Latest Handheld Blood Analyzer Recipient
Abigail Memmesheimer, age 14, of Staten Island, New York, is our latest handheld blood analyzer recipient. Abby was recently diagnosed with a hypothalamic-optic nerve germinoma and has undergone chemo and will soon be going through radiation. Staci, Abby’s mom, shares Abby’s brain tumor story.
Marci Serota, RDN Joins RAWF Board of Directors
Pituitary Brain Tumor Virtual Conference A Success
Last weekend, the Raymond A. Wood Foundation (RAWF), a brain tumor patient advocacy nonprofit organization, hosted the Pituitary Brain Tumor Virtual Conference in partnership with the Children’s Hospital of Philadelphia (CHOP). The event brought in an audience of brain tumor survivors and caregivers from around the globe.