A Lifeline for Elder: How the Handheld Blood Analyzer is Changing Lives
The Raymond A. Wood Foundation and NORD® Launch Natural History Study of Rare Hypothalamic-Pituitary Brain tumors.
Navigating the Shadows: My Journey with Craniopharyngioma and Finding Gratitude Along the Way
Illuminating Insights: Sharing a Recent Commentary on Our Research
2022 Research Progress on Craniopharyngioma
11-Year-Old Aliyah, Craniopharyngioma Survivor, Receives Medical Device
A Story of a True Warrior – Meet Evie McCollum
Dear Parents: Here’s What I Want You to Know About Managing HO
Ten Year “Cranioversary” Parent Reflection
On August 23, 2011, Alex, our then-8-year-old son was diagnosed with a brain tumor called craniopharyngioma. We were told that although he would likely survive the surgery, he would be left with chronic medical conditions in its aftermath including “diabetes insipidus, panhypopituitarism, hypothalamic obesity...” I couldn’t absorb any explanations about medical terminology because my head was reeling from the shock of being told that my little boy had a brain tumor.
Craniopharyngioma survivor, Azalea, age 2, receives blood analyzer
Meet Azalea, 2, a silly music loving two year old who lives in Sacramento, California.
Azaleas parents started this journey with a couple of trips to the ER due to episodes of non-specific vomiting, and received the most devastating news a parent is ever prepared for. On the 14th of September 2020, Azalea was diagnosed with a very large craniopharyngioma for her tiny brain and body.