Navigating the Challenges of Caregiving During the Holidays
Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium Testing
Development of Patient Registry Well Underway
Jessica, a Germinoma Survivor, Faces Sodium Complications Later in Life
RAWF Develops Spanish Language Resources through a Grant
A True Survivor – Meet Gadiel, RAWF’s Latest Blood Analyzer Recipient
Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
2022 Research Progress on Craniopharyngioma
Learning How to Drive Research
The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
Raymond A. Wood Foundation Welcomes New Board Member and Elects New Chair
The Raymond A. Wood Foundation (RAWF), a rare disease patient advocacy organization, whose mission is to empower survivors of hypothalamic-pituitary (H-P) brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments, announces exciting changes to the foundation’s board of directors including the addition of Christine Selko and the election of Eugenie Hsu, Ph.D. as chairperson.