Registration is now open for the Pituitary Brain Tumor (PBT) Virtual Family Conference hosted by Raymond A. Wood Foundation (RAWF) in partnership with the Children’s Hospital of Philadelphia’s (CHOP) Division of Endocrinology and Diabetes. Originally named the Pituitary Brain Tumor Day to be held this past May at CHOP, the event was postponed until November in light of COVID-19 and is now officially going virtual. The PBT Virtual Conference is slated for Saturday, November 14th and Sunday, November 15th via Zoom and includes keynotes, breakout sessions, roundtables and virtual family networking.
“While we are disappointed that the in-person event wasn’t able to happen, we are hopeful that the virtual platform will give more people access by removing the barriers of geography and travel logistics,” said Amy Wood, executive director of RAWF.
Experts will be speaking on topics related to conditions that can result from hypothalamic-pituitary brain tumors including hypothalamic obesity, hormone regulation, fertility innovations, transitions from pediatric to adult care, applying for SSI and Medicaid, school and education issues, self-care and mind body wellness for both survivors and caregivers. Headlining the conference is keynote speaker Dr. Christian Roth of Seattle Children’s, a leading researcher in hypothalamic obesity. While the content was originally geared towards issues affecting children and adolescents, survivors of all ages and their caregivers and family members are invited to attend.
“The content is relevant to anyone that is dealing with the ongoing challenges that come with these tumors, “ said Wood. “This conference also gives people the chance to engage with leading researchers and experts and with other families and survivors that share similar experiences.”
There are full conference and day pass registrations as well as a lottery sign up for those who may want to attend but are unable to cover the registration fee. All registration fees go towards the costs to produce the conference. Attendees are encouraged to sign up early as space in some sessions may be limited in order to allow for adequate question and answer opportunities. To find out more about the Pituitary Brain Tumor Virtual Family Conference including the full program schedule, speaker bios, registration and sponsorships, visit www.pituitarybraintumorconference.com.
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