Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
11-Year-Old Aliyah, Craniopharyngioma Survivor, Receives Medical Device
A Story of a True Warrior – Meet Evie McCollum
Meet the Latest Handheld Blood Analyzer Recipient – Finn, age 6
On December 11, 2021, Finn, a six-year-old from Spokane, WA, was airlifted from Sacred Heart ER to Seattle Children's Hospital due to the complex growth of a tumor in his brain. which was causing vision loss and impaired brain function.
Meet Franklin Knowles, Our Latest Handheld Blood Analyzer Recipient
Meet Franklie Knowles, 10, our latest handheld blood analyzer recipient. Frankie was diagnosed with a pilomyxoid astrocytoma (PMA) when he was 6 years old and difficulty managing sodium levels have persisted long after almost all other tumor complication has stabilized. He has had several hyponatremic seizures that resulted in hospitalizations.
Craniopharyngioma survivor, Azalea, age 2, receives blood analyzer
Meet Azalea, 2, a silly music loving two year old who lives in Sacramento, California.
Azaleas parents started this journey with a couple of trips to the ER due to episodes of non-specific vomiting, and received the most devastating news a parent is ever prepared for. On the 14th of September 2020, Azalea was diagnosed with a very large craniopharyngioma for her tiny brain and body.
Meet Abigail, the Latest Handheld Blood Analyzer Recipient
Abigail Memmesheimer, age 14, of Staten Island, New York, is our latest handheld blood analyzer recipient. Abby was recently diagnosed with a hypothalamic-optic nerve germinoma and has undergone chemo and will soon be going through radiation. Staci, Abby’s mom, shares Abby’s brain tumor story.
Hailey, a JPA Survivor, Receives Handheld Blood Analyzer
Hailey Lamca of Basking Ridge, New Jersey, was a healthy, active kid who loved to play soccer and excelled in school, but in 2017, she was diagnosed with a hypothalamic juvenile pilocytic astrocytoma (JPA) at the age of 12.
Since her diagnosis she has had 11 surgeries and 6 weeks of proton radiation therapy and is now living with the side effects of her treatment.
Zakky Receives Handheld Blood Analyzer
Zakariya “Zakky” Gheith was born in Feb. 2013 and is now 7 years old. When he was diagnosed with a benign brain tumor (optic pathway glioma) at 4 ½ months old, we didn’t think he would make it to a year old. God and the army of support that followed proved us wrong.
Hypothalamic Hamartoma Survivor Jaxon Sloat Receives Blood Analyzer
Jaxon Sloat , age 5, of Macomb, Michigan, is described as a vibrant, determined little boy. He was born at 30 weeks and, as a result, he has cerebral palsy. At diagnosis the family was told Jaxon wouldn’t be able to walk or talk but he worked hard over the past few years and has proven many people wrong. He has had setbacks along the way, but his mom JoAnne Sloat, says that doesn’t slow him down.
