Survival Is Not the End of the Story
The Raymond A. Wood Foundation is a patient and parent-led rare disease organization working to improve the quality of life for survivors of craniopharyngioma and hypthalamic-pituitary brain tumors.
We are advancing research, expanding access to education and technology, and advocating for better treatment and lifelong support for survivors of craniopharyngioma and hypothalamic-pituitary brain tumors.
En savoir plus sur les affections causées par les craniopharyngiomes et les tumeurs cérébrales hypothalamo-hypophysaires.

Driving Real Impact
Faire avancer la recherche
We are generating real-world data and supporting research that is shaping a better understanding of hypothalamic conditions and long-term outcomes.
Improving Care
We are advancing tumor treatment, developing a device to improve AVP-D management, raising awareness of hypothalamic conditions, and improving access to care.
Supporting Survivor & Families
We provide education, resources, and connections for patients and caregivers navigating complex, lifelong challenges.
Raising Awareness
We are changing the conversation around "benign" brain tumors and advocating for recognition of long-term impact.
Ressources pour les patients et les familles
Nous avons tous besoin d'aide. Découvrez la gamme de ressources que nous proposons aux personnes nouvellement diagnostiquées, aux survivants et aux soignants.
Pour Nouvellement diagnostiqué
Bénéficier d'un soutien pendant les premiers jours du diagnostic et du traitement.













