Additional Online Resources

HomeAdditional Online Resources

There are a variety of resources for survivors and caregivers from fellow organizations.

Medical Expenses:

  • Butterfly Fund Financial Assistance Program Emergency Assistance program to aid qualifying families whose child has been diagnosed with a pediatric brain tumor and as a result are experiencing financial hardships.
  • Miracle Flights– provides financial assistance to low-income children for commercial air travel to obtain special medical care. Qualifying families can receive travel assistance for the child patient and up to two parents or legal guardians.
  • Good Days– is an organization that works to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions. The organization may help provide families with financial and travel assistance.
  • Healthwell Foundation– is a nonprofit dedicated to reducing financial barriers to care for underinsured Americans with chronic and life-altering medical conditions. By assisting with their cost-sharing obligations, HealthWell offers a financial lifeline to adults and children who desperately need critical medical treatments but can’t afford them.

College Scholarships:

  • Everylife Foundation– #RAREis Scholarship Fund will support the pursuit of life enrichment activities for adults living with rare diseases for a variety of educational pursuits, including educational courses and obtaining two-and four-year degrees. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers.

Social & Emotional Support:

  • Our Odyssey– connects young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life.

Summer Camps:

  • Camp Mak-A-Dream– was created to carry out the mission of the Children’s Oncology Camp Foundation which is to provide Camp Mak-A-Dream as a medically-supervised, cost free experience for children and young adults with cancer.

Brain Tumor Organizations: