This data has been provided by Komodo Prism which provides a comprehensive view of real-world, patient journey data. HCO’s and providers are represented on patient counts and are by no means an endorsement by the Raymond A. Wood Foundation.
With rare brain tumors and ongoing rare medical conditions, one can make the case that providers that see a higher frequency of patients may have more experience in treatments and support. For questions and inquiries, contact outreach@rawoodfoundation.org.
All data provided is based on diagnosis codes which are used for medical claim reporting in all healthcare settings.
Craniopharyngioma
These are the healthcare organizations that have seen the most patients (20 or more) with the ICD-10-CM Diagnosis Code D44.4 “neoplasm of uncertain behavior of craniopharyngeal duct” from August 2021 – November 2022 based on the number of health claims data.
Neurosurgery
These are the healthcare organizations that have seen the most neurosurgical patients with the ICD-10-CM Diagnosis Code D44.4 “neoplasm of uncertain behavior of craniopharyngeal duct” from August 2021 – November 2022 based on the number of health claims data.
Komodo Health Prism 2022
Lissa Baird MD
Surgery, Neurological
Boston Children’s Hospital
Boston, MA
Patients reported: 15
Gerald Grant, MD
Surgery, Neurological
Lucile Salter Packard Children’s Hospital Stanford
Palo Alto, CA
Patients reported: 14
Laura Prolo MD
Surgery, Neurological
Lucile Salter Packard Children’s Hospital Stanford
Palo Alto, CA
Patients reported: 11
Tadanori Tomita MD
Surgery, Neurological
Lurie Childrens Pediatric Anesthesia Associates
Chicago, IL
Patients reported: 11
Phillip Storm MD
Surgery, Neurological
Children’s Hospital of Philadelphia
Philadelphia, PA
Patients reported: 9
Michael Levy MD
Surgery, Neurological
Rady Children’s Hospital San Diego
San Diego, CA
Patients reported: 8
Guillermo MiguelAldave Orzaiz MD
Surgery, Neurological
Texas Children’s
Houston, TX
Patients reported: 8
Toba Niazi MD
Surgery, Neurological
Nicklaus Children’s Hospital
Miami, FL
Patients reported: 7
Brett Whittemore MD
Surgery, Neurological
Children’s Medical Center Dallas
Dallas, TX
Patients reported: 7
Manuel Ferreira MD PHD
Surgery, Neurological
University of Washington Medical Center
Seattle, WA
Patients reported: 7
Juan Carlos Fernandez-Miranda MD Surgery, Neurological
Stanford Health Care
Palo Alto, CA
Patients reported: 7
William Whitehead MD
Surgery, Neurological
Texas Children’s Hospital
Houston, TX
Patients reported: 7
Christopher Bogaev MD
Surgery, Neurological
Neurosurgical Associates of San Antonio P.A.
San Antonio, TX
Patients reported: 6
Cormac Maher MD
Surgery, Neurological
University of Michigan Hospitals and Health Centers
Ann Arbor, MI
Patients reported: 6
Michael Muhonen MD
Surgery, Neurological
Children’s Hospital of Orange County
Orange, CA
Patients reported: 6
Kelly Mahaney MD
Surgery, Neurological
Lucile Salter Packard Children’s Hospital Stanford
Palo Alto, CA
Patients reported: 6
Andrew Little MD
Surgery, Neurological
Barrow Neurosurgical Associates Ltd
Phoenix, AZ
Patients reported: 6
Mark Krieger MD
Surgery, Neurological
Children’s Hospital Los Angeles
Los Angeles, CA
Patients reported: 5
John Myseros MD
Surgery, Neurological
Children’s National Health System Washington, DC
Patients reported: 5
Ashley Ralston MD
Surgery, Neurological
Driscoll Children’s Hospital
Corpus Christi, TX
Patients reported: 5
Earl Troup MD
Surgery, Neurological
GHS Greenville Memorial Hospital Greenville, SC
Patients reported: 5
David Sacco MD
Surgery, Neurological
Medical City Dallas Hospital
Dallas,TX
Patients reported: 5
Paul Klimo MD
Surgery, Neurological
Baptist Memorial Restorative Care Hospital
Memphis, TN
Patients reported: 5
William Loudon MD
Surgery, Neurological
Children’s Hospital of Orange County
Orange, CA
Patients reported: 5
Arthur Dipatri MD
Surgery, Neurological
Lurie Childrens Pediatric Anesthesia Associates
Chicago, IL
Patients reported: 5
Hypopituitarism
These are the HCO’s that have seen the most patients with the ICD-10-CM Diagnosis Code D44.4 “neoplasm of uncertain behavior of craniopharyngeal duct” and E23.9 “hypopituitarism” from August 2021 – November 2022 based on the number of health claims data.
Komodo Health Prism 2022
Diabetes Insipidus
HCO’s that have seen the most patients with the ICD-10-CM Diagnosis Code D44.4 “neoplasm of uncertain behavior of craniopharyngeal duct” and E23.2 “diabetes insipidus” from August 2021 – November 2022 based on the number of health claims data.
Komodo Health Prism 2022
Komalben Parmar MD
East Tennessee Children’s Hospital
Knoxville, TN
Reported patients: 40
Jonathan Howell MD
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Reported patients: 39
Sarah Lawson MD
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Reported patients: 39
Briana Patterson MD
Children’s Healthcare of Atlanta
Atlanta, GA
Reported patients: 36
Melissa Ham MD
Children’s Medical Center Dallas
Dallas, TX
Reported patients: 34
Janet Shaw-Chen Chuang Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Reported patients: 33
Oliver Oatman DO
Phoenix Children’s Hospital
Phoenix, AZ
Reported patients: 31
Priya Vaidyanathan
Children’s National Health System
Washington, DC
Reported patients: 30
Vincent Horne MD
Texas Children’s Hospital
Houston, TX
Reported patients: 29
David Paul MD
Texas Children’s
Houston, TX
Reported patients: 28
Hector Granados MD
El Paso, TX
Reported patients: 27
Jane Lynch MD
University Health System
San Antonio, TX
Reported patients: 27
Soumya Adhikari MD
Children’s Medical Center
Dallas, TX
Reported patients: 26
Lien Trinh MD
Children’s Hospital of Orange County
Orange, CA
Reported patients: 26
Amanda Shaw MD
Children’s Medical Center Dallas
Dallas, TX
Reported patients: 25
Susan Yi-Hsian Hsieh MD
Cook Children’s Medical Center
Fort Worth, TX
Reported patients: 25
Reema Habiby MD
Ann Robert H. Lurie Children’s Hospital of Chicago
Chicago, IL
Reported patients: 23
Craig Alter MD
Children’s Hospital of Philadelphia
Philadelphia, PA
Reported patients: 23
Jill Samis MD
Ann Robert H. Lurie Children’s Hospital of Chicago
Chicago, IL
Reported patients: 23
Teena Thomas MD
Cook Children’s Medical Center
Fort Worth, TX
Reported patients: 21
Olga Gupta MD
Children’s Medical Center Dallas
Dallas, TX
Reported patients: 21
Shana Mccormack MD
Children’s Hospital of Philadelphia
Philadelphia, PA
Reported patients: 21
James Gardner MD
Our Lady of The Lake Regional Medical Center
Baton Rouge, LA
Reported patients: 21
Anthony Gannon MD
Alfred I. Dupont Hospital for Children
Wilmington, DE
Reported patients: 21
Rebecca Hicks MD
Miller Children’s & Women’s Hospital
Long Beach, CA
Reported patients: 21
Himala Kashmiri DO
Children’s Hospital of Orange County
Orange, CA
Reported patients: 21
Chirag Rushi Kapadia MD
Phoenix Children’s Hospital
Phoenix, AZ
Reported patients: 21
Christina Chambers MD
Children’s Hospital Colorado
Aurora, CO
Reported patients: 20
Ming Yang PHD
Children’s Medical Center
Dallas, TX
Reported patients: 20
Elizabeth Rochowicz-Wirthwein
East Tennessee Children’s Hospital
Knoxville, TN
Reported patients: 20
Nana-Hawa Yayah Jones
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Reported patients: 20
Andrea Balazs MD
Texas Children’s Hospital
Houston, TX
Reported patients: 20
Lauren Pankratz MD
Diabetes & Glandular Disease Clinic San Antonio, TX
Reported patients: 20
Obesity
HCO’s that have seen the most patients with the ICD-10-CM Diagnosis Code D44.4 “neoplasm of uncertain behavior of craniopharyngeal duct” and E66 “obesity-unspecified” from August 2021 – November 2022 based on the number of health claims data.
Komodo Health Prism 2022