Patient & Caregiver Guide

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Learn about the faces behind the Raymond A. Wood Foundation and what this cause means to us.

Your Comprehensive Resource Center for Hypothalamic-Pituitary Brain Tumors Diagnosis and Ongoing Management

Navigating life with hypothalamic-pituitary brain tumors can be challenging, but you don’t have to do it alone. Our Patient & Caregiver Guide provides key information for every step of the journey from diagnosis to survivorship. Whether you’re a patient, caregiver, or loved one, our resources are here to provide the guidance you need every step of the way.

Key Sections

About the Tumors

Gain a deeper understanding of hypothalamic-pituitary brain tumors, including definitions, types, symptoms, and diagnostic tests.
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Treatment & Care

Explore the various treatment options, meet the members of your hospital care team, and understand the potential side effects of tumor removal.
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Post-Surgery

Learn about the importance of hormone replacements, physical and emotional changes after surgery, and follow-up tests for long-term health.
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Daily Management

Discover strategies for managing your daily medication regimen and maintaining proper electrolyte balance to ensure your long-term well-being.
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Mental & Emotional Health

Address the mental health challenges associated with these tumors and find ways to advocate for yourself or loved one.
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Educational & Social Resources

Find valuable resources to navigate school issues, educational advocacy, and social security benefits.
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Healthcare & Legal Resources

Understand your healthcare options, including Medicare and Medicaid, and explore legal resources to help you manage life’s challenges.
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Life Challenges & Support

Access a variety of resources to help you tackle life’s challenges, from survivorship programs and advocacy groups to camps and support groups.
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Research & Clinical Trials

Learn about participating in clinical trials as well as understanding current research around these tumors and conditions that result from treatment.
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Navigating life with hypothalamic-pituitary brain tumors can be challenging, but you don’t have to do it alone. Our Patient & Caregiver Guide provides key information for every step of the journey from diagnosis to survivorship. Whether you’re a patient, caregiver, or loved one, our resources are here to provide the guidance you need every step of the way.

Table of Contents

About Pituitary Tumors

Treatment & Care

Post-Surgery Information

Daily Management

Mental & Emotional Health

Education & Social Resources

Healthcare & Legal Resources

Life Challenges & Support

Research & Clinical Trials

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