Join the Patient Advisory Committee

Provide insight that directly informs our work and advances care and outcomes.

The Raymond A. Wood Foundation (RAWF) Patient Advisory Committee (PAC) is a group of individuals who bring lived experience to inform and guide the foundation’s work across research, advocacy, and community engagement.

PAC members serve as trusted advisors, ensuring that all initiatives reflect the real-world needs, challenges, and priorities of hypothalamic-pituitary brain tumor survivors and their caregivers.

Apply Today

Purpose of the Role

PAC members play a critical role in shaping:

• Patient-centered research priorities
• Advocacy strategies to improve access to care
• Educational resources and community programming
• Engagement efforts that reflect the needs of a diverse global community

This role directly supports RAWF’s commitment to centering patient voices in everything we do.

Key Responsibilities

PAC members are expected to:

• Participate in quarterly virtual meetings and occasional working groups
• Provide feedback on research initiatives, surveys, and patient-facing materials
• Share lived experiences to inform programs and advocacy efforts
• Review educational content to ensure clarity, accessibility, and relevance
• Contribute to a respectful, inclusive, and collaborative environment
• Serve as community representatives when appropriate

Who is Eligible

To ensure diverse and inclusive perspectives, RAWF is actively seeking PAC members who reflect a wide range of lived experiences, including:

• Adult-diagnosed survivors
• Childhood-diagnosed survivors
• Individuals with long-term survivorship experience
• Caregivers and family members
• Geographic diversity (U.S. and international representation)

Qualifications

• Lived experience as a hypothalamic-pituitary/craniopharyngioma brain tumor survivor or caregiver
• Willingness to share experiences in a thoughtful and constructive way
• Ability to participate in virtual meetings
• Interest in improving outcomes for the broader patient community

No prior advisory or professional experience is required.

Time Commitment

• Approximately 2–4 hours per quarter
• Optional opportunities for additional engagement based on interest and availability

Compensation

This is a volunteer role. While there is no financial compensation, PAC members gain the opportunity to:

• Influence research, advocacy, and programs that impact the global community
• Contribute to meaningful, patient-centered change
• Connect with a network of survivors, caregivers, and leaders
• Build experience in advocacy, advisory work, and nonprofit engagement

Impact

As a PAC member, your voice will directly influence:

• The future of research and care for hypothalamic-pituitary tumor survivors
• Advocacy efforts to improve treatment access and awareness
• Resources that support patients and families worldwide

Your lived experience helps ensure no one is navigating this journey alone.

Apply Today