Craniopharyngioma

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While technically benign, craniopharyngioma poses many challenges from treatment to long-term outcomes.

A ‘benign’ tumor with lifelong, complex consequences.

Craniopharyngioma is a rare benign (non‑cancerous) brain tumor that develops near the base of the brain, close to the pituitary gland and hypothalamus which are key structures that control hormones, growth, and vital body functions.

Although “benign” means it does not spread widely like cancer, craniopharyngioma can still cause significant health effects because of its location near critical nerves and brain centers.

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Learn about craniopharyngioma symptoms and treatment, how we support families, and what resources are available—from support groups and educational videos to research opportunities and innovative tools.
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Explore how RAWF supports the craniopharyngioma community, access curated research, learn about our global patient registry, and discover opportunities to collaborate.
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Craniopharyngioma Treatment and Management

UCSF’s Dr. Sandeep Kunwar, neurosurgeon and Dr. Lewis Blevins, neuroendocrinologist, take a deep dive into treatment approaches and options for craniopharyngioma.



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