Empowering Survivors, Families & Caregivers
November 15–16, 2025 • Children’s Hospital of Philadelphia
Thank you for making it unforgettable!
From November 15-16, 2025, over 100 patients, caregivers, researchers, and clinicians came together in Philadelphia for the Raymond A. Wood Foundation’s 2025 Pituitary Brain Tumor Family Conference, a powerful weekend of education, connection, and community.
This year’s theme, “Together in Knowledge, Stronger in Community” brought forward vital discussions on research, quality of life, and advocacy, along with time to share our experiences, our concerns and our hopes with each other.
We are deeply grateful to everyone who made this event a success especially the survivors and families who shared their experiences, the experts who offered their insights, and the sponsors and donors who helped make this gathering possible. We look forward to future gatherings to continue the conversations.
The Pituitary Brain Tumor Family Conference: A Photo Journey
This slideshow captures the heart of our time together—moments of connection, collaboration, and care. From powerful presentations to meaningful conversations and shared smiles, these images reflect the spirit of community and the commitment to improving lives through research, treatment, and support.
2025 Conference Agenda
Saturday, November 15 | The Hub for Clinical Collaboration, Children’s Hospital of Philadelphia
Morning
| 8:00am – 9:00am | Registration & Breakfast |
| 9:00am – 9:15am | Welcome Shana McCormack, MD, MTR, Children’s Hospital of Philadelphia Amy Wood, Raymond A. Wood Foundation |
| 9:15am – 10:15am Session 1 – Keynote | Costs and Coverage: Navigating Financial Hardships in Today’s Chaotic Climate Fran Castellow, MSEd, President, Operations, Patient Advocate Foundation |
| 10:15am – 10:30am | Brain Break |
| 10:30am – 11:10am Session 2 | Latest Findings in Clinical Trials and Research Shana McCormack, MD, MTR Children’s Hospital of Philadelphia |
| 11:10am – 11:20am | Sponsor Spotlight Kristina Shields Rhythm Pharmaceuticals |
| 11:30am – 12:00pm Session 3 | Tumor Treatment Approaches Cassie Kline, MD Children’s Hospital of Philadelphia |
| 12:00pm – 1:00pm | Lunch & Networking Stress Dosing Demonstrations Ryan LaBella, LPN Amanda Reyneuse Jennifer Jerusik |
Afternoon
| 1:00pm – 1:50pm Session 5 | Breakout Sessions Male Sex Hormone Replacement Christopher Gibson, MD Children’s Hospital of Philadelphia Female Sex Hormone Replacement Jacquelyn Hatch-Stein, MD Children’s Hospital of Philadelphia Adult Endocrine Issues Sanjay Jumani, MD Thomas Jefferson University |
| 1:50pm – 2:00pm | Brain Break |
| 2:00pm – 3:00pm Session 6 | Hypothalamic Obesity: Clinical Management & Nutritional Approaches Jennifer Miller, MD Michael Tan, MS, RD, LDN University of Florida |
| 3:00pm – 3:15pm | Group Photo |
| 3:15pm – 4:00pm Session 7 | Managing AI, AVP-D, and GH Deficiencies Craig Alter, MD Children’s Hospital of Philadelphia |
| 4:00pm – 5:00pm | General Q & A Panel & Closing Remarks |
Sunday, November 16 | 8:00 AM – 11:30 AM, The Study at University City
8:00am | Breakfast |
| 8:30am – 9:30am | Navigating Grief: A Fireside Chat Holly Gainsboro, Grief Support Specialist Moderated by Malikah Kelly, Outreach Coordinator, RAWF |
| 9:30am-10:00am | Driving Discovery: Strategic Research Updates from RAWF Nathalie Kayadjanian, Ph.D., Scientific Director, RAWF |
| 10:00am – 11:15am | Survivor & Caregiver Roundtable Discussions Moderated by Eugenie Hsu, Ph.D., Board Chair, RAWF |
| 11:15am – 11:30am | Closing Remarks and Conference Wrap-Up Amy Wood, Executive Director, RAWF |
Thank You to Our Sponsors
PLATINUM SPONSOR
GOLD SPONSOR
SILVER SPONSOR
BRONZE SPONSOR
