A diagnosis of a brain tumor is frightening.
According to Cancer.net, more than 4,000 children and teens will be diagnosed with a brain tumor this year. In 2016, it was determined that brain tumors are the leading cause of cancer deaths among children under the age of 20. Whether benign or malignant, tumors and the treatment or removal have lasting effects on the patient and present challenges far beyond initial treatment.
Brain tumor survivors face physical and cognitive limitations, vision loss, sensory issues, hearing sensitivities, short term memory loss, neuropathy, endocrine dysfunction, uncontrollable obesity and many rare and misunderstood chronic conditions.
Survivors and families also face a lifetime of expense with ongoing medical treatment, medications, preventative testing and necessary therapies and support.
The Raymond A. Wood Foundation (RAWF) was formed in 2016 with the goal of helping brain tumor survivors through identifying and providing innovations, devices or therapies that may improve quality of life. RAWF is a nonprofit 501(c)(3) organization founded in honor of Alex Wood, age 8, a craniopharyngioma brain tumor survivor and warrior.
Our current initiatives include:
Providing handheld blood analyzers which allow caregivers to monitor blood serum sodium and electrolytes at home for children with difficult to manage diabetes insipidus (DI) as a result of a pituitary brain tumor. Find out more about our goal »
Planning educational opportunities for families/caregivers of pediatric brain tumor patients, among these opportunities is the annual Pituitary Brain Tumor Day at Children’s Hospital of Philadelphia.
Providing resources to patients and caregivers to help with management of co-morbities associated with brain tumors and their treatments.
Hosting the Art of Surviving to showcase the creativity of survivors who use art as a form of therapy and self-expression.
We are continuously working to identify other opportunities to provide support to survivors.