Would You Consider Supporting Us This #GivingTuesday?
We know you have so many causes to consider on #GivingTuesday. So why should you consider the Raymond A. Wood Foundation? Well, almost every single dollar goes to our mission which is to help actual kids that have battled the unimaginable with the diagnosis of a brain tumor. Almost every dollar.
Sure, we have to buy envelopes, postage, software and invest in marketing. That’s how we get the word out to get more support. But there are no swanky offices, no big CEO salaries (no salaries at all actually, everything is volunteer) — just a grass roots effort that is paying off big time in not only helping children, but influencing the health care system to help families better manage conditions after brain tumor treatment. When the health care system makes good decisions in care management for the chronically ill — we all benefit.
What that means is that your financial help is directly helping a kid stay out of the hospital and avoiding medical complications that could be life-threatening while giving a family peace-of-mind knowing they can manage care at home.
Did You Know?
According to the American Brain Tumor Association, brain tumors are the most common cancer occurring among those age 0-14. An average of 13 children a day in the United States are diagnosed with a brain tumor. That is an average of 3,084 survivors yearly that have varying treatment outcomes and could require support.
Survival rates for brain tumors vary widely depending on the type of tumor and other factors including age. Five year survival rates tend to be highest among younger patients, around 66% for children ages 0-19 years.
According to The New York Times Health Guide, “Advancements in treatment have dramatically increased survival rates for children with brain tumors. About 75% of children survive at least 5 years after being diagnosed with a brain tumor. Unfortunately, many childhood brain tumor survivors are at risk for long-term neurological complications.”
So…what have done so far?
✔️Delivered handheld blood analyzers to 7 pediatric brain tumor survivors for care management of Diabetes Insipidus (DI)
✔️Raised awareness among pediatric endocrinologists across the nation on the benefits of using these devices for diabetes insipidus management
✔️Influenced the device manufacturer to make them more available for home use
✔️Hosted an online art exhibition, Art of Surviving (www.artofsurviving.net), for pediatric brain tumor survivors to showcase their talent and express their creativity. Art is a means of therapy for brain injured patients.
✔️Helped a survivor launch his own organization
✔️Held two East Coast survivor picnics
✔️Gave away cooling towels to help survivors that suffer from temperature dysregulation stay cool during the hot summer months
So…what are our plans for the future?
✔️Continuing to provide life-saving medical devices to patients
✔️Providing resources for patients diagnosed with Hypothalamic Obesity, a devastating side effect of a pituitary brain tumor
✔️Planning the second Art of Surviving exhibition
✔️Developing an app to help manage medical conditions and facilitate doctor-patient communication
✔️Planning and sponsoring a parents’ education conference at Children’s Hospital of Philadelphia on endocrine side effects of brain tumors.
So…what can you do to help?
We want to keep moving forward but we need your continued help and support. And guess what. We can tell you exactly who your money helps and what your money has supported. That’s how you can really know that you have made a difference.
Don’t have a lot of money? Neither do we. But if you have some time, we can always use your help. So this #GivingTuesday, you can give us money or time. Either is valuable in supporting our mission.
To Donate Money
You can set up your own Facebook fundraising campaign on the behalf of RAWF. Just click “create” on your profile and choose Raymond A. Wood Foundation as the nonprofit organization and share with your friends.
To Donate Your Time
Fill out the form below and tell us about yourself and how you would like to help us continue to provide ways to improve the quality-of-life for childhood brain tumor survivors and their families. (Hin