{"id":92,"date":"2021-01-07T17:51:34","date_gmt":"2021-01-07T17:51:34","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2021\/01\/07\/2021-1-7-hailey-a-jpa-survivor-receives-handheld-blood-analyzer\/"},"modified":"2025-10-14T07:41:04","modified_gmt":"2025-10-14T07:41:04","slug":"2021-1-7-hailey-une-survivante-du-jpa-recoit-un-analyseur-de-sang-portable","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/fr\/2021\/01\/07\/2021-1-7-hailey-a-jpa-survivor-receives-handheld-blood-analyzer\/","title":{"rendered":"Hailey, une survivante de la JPA, re\u00e7oit un analyseur de sang portable"},"content":{"rendered":"<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"sqs-block-image-figure              intrinsic\" style=\"max-width: 1512px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"position: relative; padding-bottom: 133.33334350585938%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1610041806760-I5QUKHE26EFK0VAFQWWA\/image0.jpeg\" alt=\"Hailey Lamca, une survivante de la JPA, re\u00e7oit un analyseur de sang portable\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1610041806760-I5QUKHE26EFK0VAFQWWA\/image0.jpeg\" alt=\"Hailey Lamca, une survivante de la JPA, re\u00e7oit un analyseur de sang portable\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1610041806760-I5QUKHE26EFK0VAFQWWA\/image0.jpeg\" data-image-dimensions=\"1512x2016\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"5ff749cdd522047712fe2ae7\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Hailey Lamca, une survivante de la JPA, re\u00e7oit un analyseur de sang portable<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Hailey Lamca, de Basking Ridge, dans le New Jersey, \u00e9tait une enfant saine et active qui aimait jouer au football et excellait \u00e0 l'\u00e9cole, mais en 2017, on lui a diagnostiqu\u00e9 un astrocytome pilocytique juv\u00e9nile hypothalamique (APP) \u00e0 l'\u00e2ge de 12 ans.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Depuis le diagnostic, elle a subi 11 op\u00e9rations chirurgicales et 6 semaines de radioth\u00e9rapie par protons et vit aujourd'hui avec les effets secondaires de son traitement.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Selon sa m\u00e8re, Lesli, \"il lui arrivait d'avoir des taux de sodium \u00e9lev\u00e9s et de devoir boire beaucoup. Aujourd'hui, son taux de sodium est parfois bas et nous devons limiter sa consommation de liquide. Elle est \u00e9galement sujette aux crises d'\u00e9pilepsie et nous pensons que les fluctuations des taux de sodium et d'hormones la rendent plus vuln\u00e9rable\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Le fait d'avoir un analyseur de sang \u00e0 la maison permet de v\u00e9rifier rapidement son taux de sodium au lieu d'aller faire des analyses et d'attendre les r\u00e9sultats, ce qui permet une gestion des soins plus r\u00e9active. Les d\u00e9s\u00e9quilibres sodiques peuvent \u00eatre des facteurs contribuant aux crises d'\u00e9pilepsie, et le fait de maintenir r\u00e9guli\u00e8rement son taux de sodium dans une fourchette normale permet de compenser les crises d'\u00e9pilepsie potentielles.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Hailey est d\u00e9crite comme \u00e9tant toujours heureuse, aimant passer du temps avec sa famille et ses amis et appr\u00e9ciant les promenades quotidiennes avec son chien, Beans. Elle aime aussi cuisiner, peindre et regarder les sports, car elle ne peut plus participer \u00e0 des comp\u00e9titions sportives comme par le pass\u00e9.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u00c0 l'automne 2019, elle a \u00e9galement \u00e9t\u00e9 adopt\u00e9e par l'\u00e9quipe f\u00e9minine de football de Princeton par l'interm\u00e9diaire de la Fondation Friends of Jaclyn et a vraiment appr\u00e9ci\u00e9 de faire partie de leur \u00e9quipe et de les encourager depuis les lignes de touche. Hailey vit avec sa m\u00e8re, son p\u00e8re et son fr\u00e8re a\u00een\u00e9 dans le New Jersey. Son fr\u00e8re a r\u00e9cemment commenc\u00e9 ses \u00e9tudes \u00e0 Penn State, et la famille esp\u00e8re qu'\u00e0 l'automne prochain, elle pourra assister en personne \u00e0 un match de football de Penn State. Elle f\u00eatera ses seize ans dans quelques semaines.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Lesli d\u00e9clare : \"Ces derni\u00e8res ann\u00e9es ont certainement \u00e9t\u00e9 difficiles, mais elle est une v\u00e9ritable guerri\u00e8re et une source d'inspiration pour nous tous\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La Fondation Raymond A. Wood a besoin d'un soutien financier pour fournir ces appareils aux enfants ayant surv\u00e9cu \u00e0 une tumeur c\u00e9r\u00e9brale. Vous pouvez nous aider \u00e0 poursuivre notre travail en <a href=\"https:\/\/www.rawoodfoundation.org\/fr\/faire-un-don\/\">don<\/a> ou en nous rejoignant pour notre prochaine collecte de fonds - <a href=\"http:\/\/sipandstylefunraiser.org\/\" target=\"_blank\" rel=\"noopener\">Collecte de fonds pour la mode virtuelle Sip &amp; Style<\/a>.<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p class=\"\">Hailey Lamca, de Basking Ridge, dans le New Jersey, \u00e9tait une enfant saine et active qui aimait jouer au football et excellait \u00e0 l'\u00e9cole, mais en 2017, on lui a diagnostiqu\u00e9 un astrocytome pilocytique juv\u00e9nile hypothalamique (APP) \u00e0 l'\u00e2ge de 12 ans.<\/p>\n<p class=\"\">Depuis le diagnostic, elle a subi 11 op\u00e9rations chirurgicales et 6 semaines de radioth\u00e9rapie par protons et vit aujourd'hui avec les effets secondaires de son traitement.<\/p>","protected":false},"author":6,"featured_media":93,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,1],"tags":[],"class_list":["post-92","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hailey, a JPA Survivor, Receives Handheld Blood Analyzer - Raymond A. 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