{"id":9,"date":"2017-07-13T18:42:53","date_gmt":"2017-07-13T18:42:53","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/"},"modified":"2023-08-01T19:34:20","modified_gmt":"2023-08-01T19:34:20","slug":"2017-7-13-survivants-dune-tumeur-cerebrale-rare-et-leurs-familles-se-rencontrent-a-ocean-city","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/fr\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/","title":{"rendered":"Les survivants d'une tumeur c\u00e9r\u00e9brale rare et leurs familles se rencontrent \u00e0 Ocean City"},"content":{"rendered":"
\n

Ocean City, MD - Les survivants du craniopharyngiome, une tumeur c\u00e9r\u00e9brale b\u00e9nigne rare et complexe, et leurs familles se sont r\u00e9unis pour le premier pique-nique des survivants du craniopharyngiome de la c\u00f4te Est au Northside Park d'Ocean City samedi. Le groupe comprenait \u00e9galement des conjoints, des parents, des fr\u00e8res et s\u0153urs et des grands-parents, qui se soutiennent mutuellement sur Facebook dans le cadre d'une page de groupe sp\u00e9cifique \u00e0 la tumeur. Le pique-nique a \u00e9t\u00e9 organis\u00e9 en partie par la Raymond A. Wood Foundation (RAWF), dont la mission est d'apporter un soutien \u00e0 la qualit\u00e9 de vie des survivants de tumeurs c\u00e9r\u00e9brales infantiles et de leurs familles.<\/p>\n

Le craniopharyngiome est une masse qui se d\u00e9veloppe \u00e0 partir d'un ensemble de cellules situ\u00e9es pr\u00e8s de l'hypophyse et qui occupe les r\u00e9gions sellaires et suprasellaires du cerveau. Il peut endommager l'hypophyse, l'hypothalamus et d'autres parties du cerveau situ\u00e9es \u00e0 proximit\u00e9. La tumeur et le traitement peuvent laisser les patients avec des comorbidit\u00e9s ou des effets secondaires \u00e0 long terme, notamment la perte de la fonction hypophysaire, une prise de poids incontr\u00f4lable, des d\u00e9ficits de croissance, un diab\u00e8te insipide ou l'incapacit\u00e9 de contr\u00f4ler l'\u00e9quilibre des fluides dans le corps, une insuffisance surr\u00e9nalienne, des probl\u00e8mes sociaux et comportementaux, des probl\u00e8mes de m\u00e9moire et des d\u00e9ficits cognitifs.<\/p>\n

La plupart des survivants pr\u00e9sents ont \u00e9t\u00e9 diagnostiqu\u00e9s alors qu'ils \u00e9taient enfants. Les survivants \u00e9taient \u00e2g\u00e9s de 6 \u00e0 70 ans et venaient de Floride, de G\u00e9orgie et du New Hampshire.<\/p>\n

\"Il s'agit d'une occasion exceptionnelle de se rencontrer, de partager des exp\u00e9riences et d'\u00e9changer des informations\", a d\u00e9clar\u00e9 Amy Wood, directrice de RAWF et m\u00e8re d'Alex, survivant et \u00e9l\u00e8ve de maternelle \u00e0 l'\u00e9cole \u00e9l\u00e9mentaire d'Ocean City. \"Les conditions li\u00e9es \u00e0 cette tumeur sont si d\u00e9licates et souvent mal comprises par la communaut\u00e9 m\u00e9dicale. Le partage des d\u00e9couvertes sur ce qui fonctionne dans la gestion quotidienne est tr\u00e8s b\u00e9n\u00e9fique\".<\/p>\n

Il existe une r\u00e9union des survivants de la c\u00f4te ouest qui est un \u00e9v\u00e9nement annuel r\u00e9ussi \u00e0 Redondo Beach, en Californie, depuis de nombreuses ann\u00e9es, mais plusieurs membres ont lanc\u00e9 l'id\u00e9e d'une version pour la c\u00f4te est \u00e0 la fin de l'ann\u00e9e derni\u00e8re et ont d\u00e9cid\u00e9 qu'Ocean City \u00e9tait un lieu central parfait et une destination attrayante. Les participants ont profit\u00e9 d'une belle journ\u00e9e dans le parc, d'un d\u00e9jeuner barbecue et de quelques parties de cornhole.<\/p>\n

\"Je pense que nous avons tous pass\u00e9 un bon moment aujourd'hui en nous rencontrant en personne\", a d\u00e9clar\u00e9 Frederick Kunitz, survivant et organisateur de l'\u00e9v\u00e9nement. \"Il n'y a rien de tel que d'\u00eatre entour\u00e9 d'autres personnes qui comprennent ce que c'est que d'\u00eatre confront\u00e9 \u00e0 cette tumeur.<\/p>\n

RAWF, une organisation caritative 501(c)(3) fond\u00e9e au d\u00e9but de l'ann\u00e9e, a fourni la nourriture, s\u00e9curis\u00e9 le lieu et imprim\u00e9 des T-shirts souvenirs pour les survivants.  <\/p>\n

\"Les tumeurs c\u00e9r\u00e9brales infantiles ont un taux de survie de 66%, mais de nombreux traitements sont si agressifs pour le cerveau en d\u00e9veloppement que ces enfants doivent faire face \u00e0 des d\u00e9fis tout au long de leur vie\", a d\u00e9clar\u00e9 M. Wood. \"Les diagnostics \u00e9tant en augmentation, nous avons pens\u00e9 qu'il fallait trouver un moyen d'aider les enfants et les familles \u00e0 faire face aux effets continus de la maladie.<\/p>\n<\/div>\n<\/p>\n<\/p>\n<\/p>\n

<\/p>\n

\n
\n

L\u00e9gende de la photo<\/strong><\/p>\n

18 survivants d'un craniopharyngiome, se sont retrouv\u00e9s dans le parc Northside pour un pique-nique samedi.
De gauche \u00e0 droite : Premier rang : Landry Stamm (DE) et Alex Wood (MD) Deuxi\u00e8me rang\u00e9e : Chris Harsch (PA), Emily Powell (MD), Sydni Gajewski (PA) Rang\u00e9e arri\u00e8re : Elise Rosati (NJ), Jake Borsh (NH), Isaac Feil (NJ), Frederick Kunitz (GA), A.J. Selko (NJ), Jonas, Bilenas (PA), Jacob Reid (WV), Britanny Rinker (WV)<\/p>\n

Non photographi\u00e9s mais pr\u00e9sents : Mikey O'Connell (VA) et Christopher Ramirez (FL)<\/p>\n

Cr\u00e9dit photo : Emily Powell Photography<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/p><\/div>","protected":false},"excerpt":{"rendered":"

Ocean City, MD - Les survivants du craniopharyngiome, une tumeur c\u00e9r\u00e9brale b\u00e9nigne rare et complexe, et leurs familles se sont r\u00e9unis pour le premier pique-nique des survivants du craniopharyngiome de la c\u00f4te Est au Northside Park d'Ocean City samedi. Le groupe comprenait \u00e9galement des conjoints, des parents, des fr\u00e8res et s\u0153urs et des grands-parents, qui se soutiennent mutuellement sur Facebook dans le cadre d'une page de groupe sp\u00e9cifique \u00e0 la tumeur. Le pique-nique a \u00e9t\u00e9 organis\u00e9 en partie par la Raymond A. Wood Foundation (RAWF), dont la mission est d'apporter un soutien \u00e0 la qualit\u00e9 de vie des survivants de tumeurs c\u00e9r\u00e9brales infantiles et de leurs familles.<\/p>","protected":false},"author":6,"featured_media":5594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[41,8,1],"tags":[],"class_list":["post-9","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-events","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"\nSurvivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2017\/07\/13\/2017-7-13-survivants-dune-tumeur-cerebrale-rare-et-leurs-familles-se-rencontrent-a-ocean-city\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Ocean City, MD \u2014 Survivors of craniopharyngioma, a rare and complex benign brain tumor, and their families joined together for the inaugural East Coast Cranio Survivors Picnic at Northside Park in Ocean City on Saturday. The group also included spouses, parents, siblings and grandparents, who provide support to each other on Facebook as part of a group page specific to the tumor. The picnic was organized in part by the Raymond A. Wood Foundation (RAWF), whose mission is to provide quality-of-life support for survivors of childhood brain tumors and their families.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/fr\/2017\/07\/13\/2017-7-13-survivants-dune-tumeur-cerebrale-rare-et-leurs-familles-se-rencontrent-a-ocean-city\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. Wood Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/rawoodfoundation\" \/>\n<meta property=\"article:published_time\" content=\"2017-07-13T18:42:53+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-08-01T19:34:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1280\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"RAWF\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@rawoodfound\" \/>\n<meta name=\"twitter:site\" content=\"@rawoodfound\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"RAWF\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/\"},\"author\":{\"name\":\"RAWF\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#\\\/schema\\\/person\\\/12e3ee04f1646efc9cbbc13eb127f3b4\"},\"headline\":\"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City\",\"datePublished\":\"2017-07-13T18:42:53+00:00\",\"dateModified\":\"2023-08-01T19:34:20+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/\"},\"wordCount\":541,\"publisher\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2022\\\/01\\\/ben-o-bro-wpU4veNGnHg-unsplash.jpg\",\"articleSection\":[\"Advocacy\",\"Events\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/\",\"name\":\"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City - Raymond A. Wood Foundation\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2022\\\/01\\\/ben-o-bro-wpU4veNGnHg-unsplash.jpg\",\"datePublished\":\"2017-07-13T18:42:53+00:00\",\"dateModified\":\"2023-08-01T19:34:20+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2022\\\/01\\\/ben-o-bro-wpU4veNGnHg-unsplash.jpg\",\"contentUrl\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2022\\\/01\\\/ben-o-bro-wpU4veNGnHg-unsplash.jpg\",\"width\":1920,\"height\":1280,\"caption\":\"Building landscape\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/2017\\\/07\\\/13\\\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#website\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/\",\"name\":\"Raymond A. Wood Foundation\",\"description\":\"The mission of the RAWF is to provide quality of life support for childhood brain tumor survivors and their families.\",\"publisher\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#organization\",\"name\":\"Raymond A. Wood Foundation\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2023\\\/07\\\/Raymond-A-Wood-Foundation-logo.webp\",\"contentUrl\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/wp-content\\\/uploads\\\/2023\\\/07\\\/Raymond-A-Wood-Foundation-logo.webp\",\"width\":470,\"height\":128,\"caption\":\"Raymond A. Wood Foundation\"},\"image\":{\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/rawoodfoundation\",\"https:\\\/\\\/x.com\\\/rawoodfound\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/#\\\/schema\\\/person\\\/12e3ee04f1646efc9cbbc13eb127f3b4\",\"name\":\"RAWF\",\"url\":\"https:\\\/\\\/www.rawoodfoundation.org\\\/fr\\\/author\\\/rawf\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Les survivants d'une tumeur c\u00e9r\u00e9brale rare et leurs familles se rencontrent \u00e0 Ocean City - Raymond A. Wood Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.rawoodfoundation.org\/fr\/2017\/07\/13\/2017-7-13-survivants-dune-tumeur-cerebrale-rare-et-leurs-familles-se-rencontrent-a-ocean-city\/","og_locale":"fr_FR","og_type":"article","og_title":"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City - Raymond A. Wood Foundation","og_description":"Ocean City, MD \u2014 Survivors of craniopharyngioma, a rare and complex benign brain tumor, and their families joined together for the inaugural East Coast Cranio Survivors Picnic at Northside Park in Ocean City on Saturday. The group also included spouses, parents, siblings and grandparents, who provide support to each other on Facebook as part of a group page specific to the tumor. The picnic was organized in part by the Raymond A. Wood Foundation (RAWF), whose mission is to provide quality-of-life support for survivors of childhood brain tumors and their families.","og_url":"https:\/\/www.rawoodfoundation.org\/fr\/2017\/07\/13\/2017-7-13-survivants-dune-tumeur-cerebrale-rare-et-leurs-familles-se-rencontrent-a-ocean-city\/","og_site_name":"Raymond A. Wood Foundation","article_publisher":"https:\/\/www.facebook.com\/rawoodfoundation","article_published_time":"2017-07-13T18:42:53+00:00","article_modified_time":"2023-08-01T19:34:20+00:00","og_image":[{"width":1920,"height":1280,"url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg","type":"image\/jpeg"}],"author":"RAWF","twitter_card":"summary_large_image","twitter_creator":"@rawoodfound","twitter_site":"@rawoodfound","twitter_misc":{"Written by":"RAWF","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#article","isPartOf":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/"},"author":{"name":"RAWF","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4"},"headline":"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City","datePublished":"2017-07-13T18:42:53+00:00","dateModified":"2023-08-01T19:34:20+00:00","mainEntityOfPage":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/"},"wordCount":541,"publisher":{"@id":"https:\/\/www.rawoodfoundation.org\/#organization"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#primaryimage"},"thumbnailUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg","articleSection":["Advocacy","Events"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/","url":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/","name":"Les survivants d'une tumeur c\u00e9r\u00e9brale rare et leurs familles se rencontrent \u00e0 Ocean City - Raymond A. Wood Foundation","isPartOf":{"@id":"https:\/\/www.rawoodfoundation.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#primaryimage"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#primaryimage"},"thumbnailUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg","datePublished":"2017-07-13T18:42:53+00:00","dateModified":"2023-08-01T19:34:20+00:00","breadcrumb":{"@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#primaryimage","url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg","contentUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2022\/01\/ben-o-bro-wpU4veNGnHg-unsplash.jpg","width":1920,"height":1280,"caption":"Building landscape"},{"@type":"BreadcrumbList","@id":"https:\/\/www.rawoodfoundation.org\/2017\/07\/13\/2017-7-13-survivors-of-a-rare-brain-tumor-and-their-families-meet-up-in-ocean-city\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.rawoodfoundation.org\/"},{"@type":"ListItem","position":2,"name":"Survivors of a Rare Brain Tumor and Their Families Meet Up in Ocean City"}]},{"@type":"WebSite","@id":"https:\/\/www.rawoodfoundation.org\/#website","url":"https:\/\/www.rawoodfoundation.org\/","name":"Fondation Raymond A. Wood","description":"La mission de la RAWF est d'apporter un soutien \u00e0 la qualit\u00e9 de vie des survivants de tumeurs c\u00e9r\u00e9brales infantiles et de leurs familles.","publisher":{"@id":"https:\/\/www.rawoodfoundation.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.rawoodfoundation.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.rawoodfoundation.org\/#organization","name":"Fondation Raymond A. Wood","url":"https:\/\/www.rawoodfoundation.org\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp","contentUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp","width":470,"height":128,"caption":"Raymond A. Wood Foundation"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/rawoodfoundation","https:\/\/x.com\/rawoodfound"]},{"@type":"Person","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4","name":"RAWF","url":"https:\/\/www.rawoodfoundation.org\/fr\/author\/rawf\/"}]}},"_links":{"self":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/9","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/comments?post=9"}],"version-history":[{"count":1,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/9\/revisions"}],"predecessor-version":[{"id":8058,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/9\/revisions\/8058"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/media\/5594"}],"wp:attachment":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/media?parent=9"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/categories?post=9"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/tags?post=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}