{"id":53,"date":"2020-04-15T14:12:01","date_gmt":"2020-04-15T14:12:01","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2020\/04\/15\/2020-4-15-hypothalamic-hamartoma-survivor-jaxon-sloat-receives-blood-analyzer\/"},"modified":"2025-12-23T03:32:09","modified_gmt":"2025-12-23T03:32:09","slug":"2020-4-15-jaxon-sloat-survivant-dun-hamartome-hypothalamique-recoit-un-analyseur-de-sang","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/fr\/2020\/04\/15\/2020-4-15-hypothalamic-hamartoma-survivor-jaxon-sloat-receives-blood-analyzer\/","title":{"rendered":"Jaxon Sloat, survivant d'un hamartome hypothalamique, re\u00e7oit un analyseur de sang"},"content":{"rendered":"<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Jaxon Sloat, 5 ans, de Macomb, Michigan, est d\u00e9crit comme un petit gar\u00e7on dynamique et d\u00e9termin\u00e9. Il est n\u00e9 \u00e0 30 semaines de grossesse et souffre donc d'une paralysie c\u00e9r\u00e9brale. Au moment du diagnostic, on a dit \u00e0 la famille que Jaxon ne pourrait ni marcher ni parler, mais il a travaill\u00e9 dur au cours des derni\u00e8res ann\u00e9es et a prouv\u00e9 \u00e0 beaucoup de gens qu'ils avaient tort. Il a connu des revers en cours de route, mais sa m\u00e8re, JoAnne Sloat, affirme que cela ne le ralentit pas.<\/p>\n<\/div>\n<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"sqs-block-image-figure              intrinsic\" style=\"max-width: 1500px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"position: relative; padding-bottom: 133.33334350585938%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" alt=\"Jaxon, 5 ans, de Macomb, MI, est le dernier b\u00e9n\u00e9ficiaire d&#039;un analyseur de sang portable.\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" alt=\"Jaxon, 5 ans, de Macomb, MI, est le dernier b\u00e9n\u00e9ficiaire d&#039;un analyseur de sang portable.\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" data-image-dimensions=\"1500x2000\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"5e9715e29a52bc41b0374abb\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p class=\"\">Jaxon, 5 ans, de Macomb, MI, est le dernier b\u00e9n\u00e9ficiaire d'un analyseur de sang portable.<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">En mai 2019, on lui a \u00e9galement diagnostiqu\u00e9 un hamartome hypothalamique apr\u00e8s qu'il a pr\u00e9sent\u00e9 de graves retards cognitifs. Un hamartome hypothalamique est une tumeur b\u00e9nigne extr\u00eamement rare qui se forme sur l'hypothalamus. Il n'\u00e9tait pas capable de comprendre ce que les gens disaient pendant 20 \u00e0 30 secondes, avait des crises de rage, des convulsions et une perte de vision. Il a \u00e9t\u00e9 le premier patient \u00e0 subir une ablation au laser de la tumeur \u00e0 l'h\u00f4pital pour enfants du Michigan. Il a pass\u00e9 pr\u00e8s d'un mois en soins intensifs apr\u00e8s l'op\u00e9ration car on ne parvenait pas \u00e0 r\u00e9guler son taux de sodium.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"La route a \u00e9t\u00e9 longue et difficile\", a d\u00e9clar\u00e9 Joanne.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La chirurgie l'a laiss\u00e9 avec un diab\u00e8te insipide central (DI), une condition dans laquelle l'hypothalamus ne s\u00e9cr\u00e8te plus de vasopressine, l'hormone antidiur\u00e9tique qui r\u00e9gule l'\u00e9quilibre des fluides du corps, ce qui peut entra\u00eener des d\u00e9s\u00e9quilibres de sodium dans le sang. Les m\u00e9decins de Jaxon disent que la pr\u00e9sentation de son DI \"n'entre pas dans le moule\". Son taux de sodium continue d'\u00eatre \u00e9lev\u00e9 et bas assez souvent, ce qui le rend difficile \u00e0 g\u00e9rer. Il souffre \u00e9galement d'ob\u00e9sit\u00e9 hypothalamique, de pubert\u00e9 pr\u00e9coce et d'hypothyro\u00efdie \u00e0 la suite de l'op\u00e9ration. JoAnn estime que le fait d'avoir un analyseur de sang \u00e0 la maison contribuera \u00e0 la s\u00e9curit\u00e9 de Jaxon, car elle pourra surveiller de pr\u00e8s son taux de sodium.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Malgr\u00e9 les difficult\u00e9s, Jaxon s'entra\u00eene pour son premier 5 km, qu'il court en tenant la main de sa maman pour ne pas tomber la t\u00eate la premi\u00e8re \u00e0 cause de sa PC, et il a perdu 10 des 30 kilos qu'il a pris depuis l'op\u00e9ration.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Notre petit bonhomme est d\u00e9termin\u00e9 \u00e0 tout surmonter\", a d\u00e9clar\u00e9 JoAnne. \"Il est notre h\u00e9ros. Il affronte toujours la vie avec un sourire qui illumine le monde et une attitude positive.\"<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La Fondation Raymond A. Wood a exp\u00e9di\u00e9 l'analyseur de sang de Jaxon cette semaine. Aujourd'hui plus que jamais, il est important de garder nos enfants atteints de tumeurs c\u00e9r\u00e9brales en dehors des laboratoires et des h\u00f4pitaux pour assurer leur s\u00e9curit\u00e9. Beaucoup de ces enfants tombent dans la cat\u00e9gorie \u00e0 haut risque de COVID-19 pour leurs diff\u00e9rentes pathologies. Nous vous remercions de votre soutien continu \u00e0 ce programme pour aider des enfants comme Jaxon.<\/p>\n<\/div>\n<div class=\"sqs-block-button-container sqs-block-button-container--center\" data-animation-role=\"button\" data-alignment=\"center\" data-button-size=\"medium\" data-button-type=\"primary\"><a class=\"sqs-block-button-element--medium sqs-button-element--primary sqs-block-button-element\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/faire-un-don\/\">Soutenir ce programme<br \/>\n<\/a><\/div>","protected":false},"excerpt":{"rendered":"<p class=\"\">Jaxon Sloat, 5 ans, de Macomb, Michigan, est d\u00e9crit comme un petit gar\u00e7on dynamique et d\u00e9termin\u00e9. Il est n\u00e9 \u00e0 30 semaines de grossesse et souffre donc d'une paralysie c\u00e9r\u00e9brale. Au moment du diagnostic, on a dit \u00e0 la famille que Jaxon ne pourrait ni marcher ni parler, mais il a travaill\u00e9 dur au cours des derni\u00e8res ann\u00e9es et a prouv\u00e9 \u00e0 beaucoup de gens qu'ils avaient tort. Il a connu des revers en cours de route, mais sa m\u00e8re, JoAnne Sloat, affirme que cela ne le ralentit pas.<\/p>","protected":false},"author":6,"featured_media":54,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,1],"tags":[],"class_list":["post-53","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hypothalamic Hamartoma Survivor Jaxon Sloat Receives Blood Analyzer - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2020\/04\/15\/2020-4-15-jaxon-sloat-survivant-dun-hamartome-hypothalamique-recoit-un-analyseur-de-sang\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hypothalamic Hamartoma Survivor Jaxon Sloat Receives Blood Analyzer - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Jaxon Sloat , age 5, of Macomb, Michigan, is described as a vibrant, determined little boy. He was born at 30 weeks and, as a result, he has cerebral palsy. At diagnosis the family was told Jaxon wouldn\u2019t be able to walk or talk but he worked hard over the past few years and has proven many people wrong. He has had setbacks along the way, but his mom JoAnne Sloat, says that doesn\u2019t slow him down.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/fr\/2020\/04\/15\/2020-4-15-jaxon-sloat-survivant-dun-hamartome-hypothalamique-recoit-un-analyseur-de-sang\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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