{"id":18730,"date":"2026-02-20T15:18:26","date_gmt":"2026-02-20T15:18:26","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?p=18730"},"modified":"2026-02-20T15:18:27","modified_gmt":"2026-02-20T15:18:27","slug":"un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/","title":{"rendered":"Un nouveau chapitre dans la recherche sur les tumeurs c\u00e9r\u00e9brales rares : Le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires"},"content":{"rendered":"<p>En 2024, la Fondation Raymond A. Wood a lanc\u00e9 une initiative r\u00e9volutionnaire qui cr\u00e9e une v\u00e9ritable dynamique dans la recherche sur les maladies rares : le programme de recherche sur les maladies rares. <a href=\"https:\/\/www.rawoodfoundation.org\/fr\/registre-des-tumeurs\/\">Registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires<\/a>. Ce registre international est une plateforme puissante qui permet aux patients et aux soignants de se r\u00e9unir, d'exprimer leurs difficult\u00e9s et leurs points de vue, et de partager des donn\u00e9es avec les cliniciens et les chercheurs, afin d'acc\u00e9l\u00e9rer les progr\u00e8s vers une meilleure compr\u00e9hension et un meilleur traitement de ces tumeurs rares. Depuis sa cr\u00e9ation, le registre des patients s'est \u00e9largi et comprend aujourd'hui les voix de 397 soignants et patients. Alors que nous poursuivons notre mission de d\u00e9veloppement du registre des patients, voici quelques mises \u00e0 jour sur son histoire et ses progr\u00e8s actuels.<\/p>\n\n\n\n<p><strong>Nous sommes ravis d'annoncer que le registre sera traduit en espagnol et en fran\u00e7ais dans les mois \u00e0 venir. Restez \u00e0 l'\u00e9coute !<\/strong><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Qu'est-ce que le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires ?<\/strong><\/h2>\n\n\n\n<p>Le registre est une base de donn\u00e9es s\u00e9curis\u00e9e en ligne con\u00e7ue pour recueillir des informations d\u00e9taill\u00e9es sur les tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires rapport\u00e9es par les survivants et les soignants sur plusieurs ann\u00e9es. Ces tumeurs rares affectent des structures c\u00e9r\u00e9brales critiques qui contr\u00f4lent des fonctions endocriniennes, visuelles et intellectuelles vitales, ainsi que des dysfonctionnements hypothalamiques de grande ampleur.  Il a \u00e9t\u00e9 d\u00e9velopp\u00e9 par RAWF en collaboration avec des experts mondiaux et des d\u00e9fenseurs de la communaut\u00e9 des patients afin de soutenir la recherche et d'am\u00e9liorer les r\u00e9sultats pour les personnes touch\u00e9es par ces maladies. H\u00e9berg\u00e9 par la National Organization for Rare Disorders (NORD) sur son site web de <a href=\"https:\/\/iamrare.org\/\">Plate-forme IAMRARE\u00ae,<\/a> le registre sert de plaque tournante o\u00f9 les participants peuvent partager en toute s\u00e9curit\u00e9 leurs ant\u00e9c\u00e9dents m\u00e9dicaux, leurs sympt\u00f4mes, leurs traitements et leurs exp\u00e9riences v\u00e9cues.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Pourquoi votre participation au registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires est-elle importante ?<\/strong><\/h2>\n\n\n\n<p>Faire partie du registre n'est pas seulement une question de donn\u00e9es.  Il s'agit de faire entendre votre voix dans une recherche qui compte. Voici en quoi votre participation est utile :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Faire progresser la compr\u00e9hension scientifique :<\/strong> Les donn\u00e9es partag\u00e9es aident les chercheurs \u00e0 voir comment ces tumeurs, leurs traitements et les comorbidit\u00e9s associ\u00e9es se d\u00e9veloppent et progressent au fil du temps.<\/li>\n\n\n\n<li><strong>Renforcer les communaut\u00e9s de patients :<\/strong> Les exp\u00e9riences v\u00e9cues que vous partagez contribuent \u00e0 fa\u00e7onner les questions de recherche et \u00e0 orienter le d\u00e9veloppement th\u00e9rapeutique que les cliniciens et les scientifiques poursuivront ensuite.<\/li>\n\n\n\n<li><strong>Am\u00e9liorer les soins et les r\u00e9sultats :<\/strong> Les enseignements tir\u00e9s des exp\u00e9riences r\u00e9elles des patients aident les cliniciens \u00e0 adapter les strat\u00e9gies de soins et \u00e0 mettre en \u00e9vidence les besoins non satisfaits tout au long du parcours du patient.<\/li>\n\n\n\n<li><strong>Soutenir les \u00e9tudes cliniques :<\/strong> Les entr\u00e9es de patients peuvent faciliter le recrutement pour de nouveaux essais cliniques et \u00e9tudes th\u00e9rapeutiques.<\/li>\n<\/ul>\n\n\n\n<p>Cet effort collectif signifie que chaque voix contribue \u00e0 une image plus large et donne aux patients et aux soignants un r\u00f4le important dans la r\u00e9alisation de progr\u00e8s.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Progr\u00e8s actuels du registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires<\/strong><\/h2>\n\n\n\n<p>Voici quelques-unes des donn\u00e9es et des mises \u00e0 jour que nous avons recueillies :<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"652\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs-1024x652.png\" alt=\"\" class=\"wp-image-18734\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs-1024x652.png 1024w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs-300x191.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs-768x489.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs-18x12.png 18w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/graphs.png 1036w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p>Pays de r\u00e9sidence<\/p>\n\n\n\n<p>Le registre est ouvert aux patients du monde entier. Actuellement, les participants au registre sont :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>74% des \u00c9tats-Unis<\/li>\n\n\n\n<li>9% du Royaume-Uni<\/li>\n\n\n\n<li>5% de Canada<\/li>\n\n\n\n<li>3% de l'Australie<\/li>\n\n\n\n<li>9% autres<\/li>\n<\/ul>\n\n\n\n<p>Distribution des \u00e2ges des survivants<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Les survivants sont \u00e2g\u00e9s de 3 \u00e0 76 ans, la majorit\u00e9 d'entre eux se situant dans la tranche d'\u00e2ge 11-20 ans.<\/li>\n<\/ul>\n\n\n\n<p>Diagnostic de l'ob\u00e9sit\u00e9 hypothalamique<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>54% des survivants ont un diagnostic d'ob\u00e9sit\u00e9 hypothalamique 46% des survivants n'ont pas de diagnostic d'ob\u00e9sit\u00e9 hypothalamique<\/li>\n<\/ul>\n\n\n\n<p>Sexe des survivants<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>59% des survivants sont des femmes, et 41% sont des hommes<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Comment soutenir le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires ?<\/strong><\/h2>\n\n\n\n<p>Rejoignez le registre si vous ne l'avez pas encore fait<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Consulter le registre sur le site web de RAWF <a href=\"https:\/\/hptumorregistry.iamrare.org\/\">Registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires<\/a><\/li>\n\n\n\n<li>R\u00e9pondre \u00e0 des enqu\u00eates en ligne sur votre diagnostic, vos ant\u00e9c\u00e9dents m\u00e9dicaux, vos probl\u00e8mes de sant\u00e9, vos traitements et vos exp\u00e9riences.<\/li>\n<\/ul>\n\n\n\n<p>Si vous avez d\u00e9j\u00e0 adh\u00e9r\u00e9 au registre<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Surveillez les nouvelles questions de l'enqu\u00eate et mettez vos donn\u00e9es \u00e0 jour chaque ann\u00e9e pour qu'elles restent actuelles. C'est important pour mieux comprendre comment la maladie \u00e9volue et comment vos perspectives et vos besoins changent au fil du temps.<\/li>\n<\/ul>\n\n\n\n<p>La participation est ouverte aux patients et aux soignants du monde entier qui souhaitent apporter leur contribution \u00e0 la recherche et \u00e0 la communaut\u00e9 des patients au sens large.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Ensemble, nous pouvons alimenter la d\u00e9couverte<\/strong><\/h2>\n\n\n\n<p>Les donn\u00e9es collectives de ce registre ont le pouvoir r\u00e9el d'approfondir notre compr\u00e9hension scientifique, d'orienter le d\u00e9veloppement des traitements futurs et d'am\u00e9liorer la vie des patients et des soignants. Que vous viviez avec une tumeur hypothalamo-hypophysaire ou que vous souteniez quelqu'un qui en est atteint, votre participation peut contribuer \u00e0 fa\u00e7onner l'avenir des soins.<\/p>\n\n\n\n<p><strong>Pr\u00eat \u00e0 adh\u00e9rer ou \u00e0 en savoir plus ?<\/strong> Rendez-vous sur la plateforme du registre et faites partie de cette communaut\u00e9 de recherche mondiale.<\/p>\n\n\n\n<p><strong>Si vous avez des questions<\/strong>Pour plus d'informations, veuillez contacter Kirsten Schreuders, coordinatrice du registre, \u00e0 l'adresse suivante : kirsten@rawoodfoundation.org<\/p>","protected":false},"excerpt":{"rendered":"<p>En 2024, la Fondation Raymond A. Wood a lanc\u00e9 une initiative r\u00e9volutionnaire qui cr\u00e9e un v\u00e9ritable \u00e9lan ... <a title=\"Un nouveau chapitre dans la recherche sur les tumeurs c\u00e9r\u00e9brales rares : Le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/\" aria-label=\"Pour en savoir plus sur Un nouveau chapitre dans la recherche sur les tumeurs c\u00e9r\u00e9brales rares : Le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires\">Lire plus<\/a><\/p>","protected":false},"author":6,"featured_media":18760,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[42,65,30],"tags":[],"class_list":["post-18730","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health-medical","category-patient-support","category-rawf-news","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"In 2024, the Raymond A. Wood Foundation launched a groundbreaking initiative that\u2019s creating real momentum ... Lire plus\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. Wood Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/rawoodfoundation\" \/>\n<meta property=\"article:published_time\" content=\"2026-02-20T15:18:26+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-20T15:18:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png\" \/>\n\t<meta property=\"og:image:width\" content=\"477\" \/>\n\t<meta property=\"og:image:height\" content=\"309\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"RAWF\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@rawoodfound\" \/>\n<meta name=\"twitter:site\" content=\"@rawoodfound\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"RAWF\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/\"},\"author\":{\"name\":\"RAWF\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4\"},\"headline\":\"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry\",\"datePublished\":\"2026-02-20T15:18:26+00:00\",\"dateModified\":\"2026-02-20T15:18:27+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/\"},\"wordCount\":678,\"publisher\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png\",\"articleSection\":[\"Health &amp; Medical\",\"Patient Support\",\"RAWF News\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/\",\"url\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/\",\"name\":\"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png\",\"datePublished\":\"2026-02-20T15:18:26+00:00\",\"dateModified\":\"2026-02-20T15:18:27+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage\",\"url\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png\",\"contentUrl\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png\",\"width\":477,\"height\":309},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.rawoodfoundation.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/#website\",\"url\":\"https:\/\/www.rawoodfoundation.org\/\",\"name\":\"Raymond A. Wood Foundation\",\"description\":\"The mission of the RAWF is to provide quality of life support for childhood brain tumor survivors and their families.\",\"publisher\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.rawoodfoundation.org\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/#organization\",\"name\":\"Raymond A. Wood Foundation\",\"url\":\"https:\/\/www.rawoodfoundation.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp\",\"contentUrl\":\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp\",\"width\":470,\"height\":128,\"caption\":\"Raymond A. Wood Foundation\"},\"image\":{\"@id\":\"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/rawoodfoundation\",\"https:\/\/x.com\/rawoodfound\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4\",\"name\":\"RAWF\",\"url\":\"https:\/\/www.rawoodfoundation.org\/fr\/author\/rawf\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/","og_locale":"fr_FR","og_type":"article","og_title":"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation","og_description":"In 2024, the Raymond A. Wood Foundation launched a groundbreaking initiative that\u2019s creating real momentum ... Lire plus","og_url":"https:\/\/www.rawoodfoundation.org\/fr\/2026\/02\/20\/un-nouveau-chapitre-dans-la-recherche-sur-les-tumeurs-cerebrales-rares\/","og_site_name":"Raymond A. Wood Foundation","article_publisher":"https:\/\/www.facebook.com\/rawoodfoundation","article_published_time":"2026-02-20T15:18:26+00:00","article_modified_time":"2026-02-20T15:18:27+00:00","og_image":[{"width":477,"height":309,"url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png","type":"image\/png"}],"author":"RAWF","twitter_card":"summary_large_image","twitter_creator":"@rawoodfound","twitter_site":"@rawoodfound","twitter_misc":{"Written by":"RAWF","Est. reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#article","isPartOf":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/"},"author":{"name":"RAWF","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4"},"headline":"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry","datePublished":"2026-02-20T15:18:26+00:00","dateModified":"2026-02-20T15:18:27+00:00","mainEntityOfPage":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/"},"wordCount":678,"publisher":{"@id":"https:\/\/www.rawoodfoundation.org\/#organization"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage"},"thumbnailUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png","articleSection":["Health &amp; Medical","Patient Support","RAWF News"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/","url":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/","name":"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry - Raymond A. Wood Foundation","isPartOf":{"@id":"https:\/\/www.rawoodfoundation.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage"},"thumbnailUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png","datePublished":"2026-02-20T15:18:26+00:00","dateModified":"2026-02-20T15:18:27+00:00","breadcrumb":{"@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#primaryimage","url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png","contentUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/02\/A-New-Chapter-in-Rare-Brain-Tumor-Research.png","width":477,"height":309},{"@type":"BreadcrumbList","@id":"https:\/\/www.rawoodfoundation.org\/2026\/02\/20\/a-new-chapter-in-rare-brain-tumor-research\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.rawoodfoundation.org\/"},{"@type":"ListItem","position":2,"name":"A New Chapter in Rare Brain Tumor Research: The Hypothalamic-Pituitary Brain Tumors Patient Registry"}]},{"@type":"WebSite","@id":"https:\/\/www.rawoodfoundation.org\/#website","url":"https:\/\/www.rawoodfoundation.org\/","name":"Raymond A. Wood Foundation","description":"The mission of the RAWF is to provide quality of life support for childhood brain tumor survivors and their families.","publisher":{"@id":"https:\/\/www.rawoodfoundation.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.rawoodfoundation.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.rawoodfoundation.org\/#organization","name":"Raymond A. Wood Foundation","url":"https:\/\/www.rawoodfoundation.org\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp","contentUrl":"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/Raymond-A-Wood-Foundation-logo.webp","width":470,"height":128,"caption":"Raymond A. Wood Foundation"},"image":{"@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/rawoodfoundation","https:\/\/x.com\/rawoodfound"]},{"@type":"Person","@id":"https:\/\/www.rawoodfoundation.org\/#\/schema\/person\/12e3ee04f1646efc9cbbc13eb127f3b4","name":"RAWF","url":"https:\/\/www.rawoodfoundation.org\/fr\/author\/rawf\/"}]}},"_links":{"self":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/18730","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/comments?post=18730"}],"version-history":[{"count":3,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/18730\/revisions"}],"predecessor-version":[{"id":18762,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/posts\/18730\/revisions\/18762"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/media\/18760"}],"wp:attachment":[{"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/media?parent=18730"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/categories?post=18730"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.rawoodfoundation.org\/fr\/wp-json\/wp\/v2\/tags?post=18730"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}