{"id":7429,"date":"2023-07-20T13:41:26","date_gmt":"2023-07-20T13:41:26","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/?page_id=7429"},"modified":"2025-12-23T03:59:20","modified_gmt":"2025-12-23T03:59:20","slug":"compteur-de-sodium","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/fr\/sodium-meter\/","title":{"rendered":"Compteur de sodium"},"content":{"rendered":"

Mise au point d'un moyen de mesurer le taux de sodium dans le sang \u00e0 domicile<\/h2>\n\n\n\n
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Au d\u00e9but de l'ann\u00e9e 2020, la Fondation Raymond A. Wood s'est engag\u00e9e dans un effort visant \u00e0 d\u00e9terminer la faisabilit\u00e9 du d\u00e9veloppement d'un kit de test de sodium \u00e0 domicile pour aider \u00e0 la gestion du d\u00e9ficit en arginine vasopressine (AVP-D), anciennement appel\u00e9 diab\u00e8te insipide, une condition m\u00e9dicale complexe qui survient lorsque le corps ne peut pas r\u00e9guler l'\u00e9quilibre des fluides.\u00a0\u00a0<\/p>\n\n\n\n

Au d\u00e9but de l'ann\u00e9e 2020, la Fondation Raymond A. Wood s'est lanc\u00e9e dans un projet visant \u00e0 d\u00e9terminer la faisabilit\u00e9 du d\u00e9veloppement d'un lecteur de sodium sanguin \u00e0 domicile pour aider \u00e0 la gestion de l'AVP-D, une condition m\u00e9dicale complexe qui survient lorsque le corps ne peut pas r\u00e9guler l'\u00e9quilibre des fluides.  <\/p>\n<\/div>\n\n\n\n

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\"Kit<\/figure><\/div><\/div>\n<\/div>\n\n\n\n

Actuellement, il n'existe aucun moyen de mesurer le taux de sodium dans le sang en dehors d'un laboratoire. Les patients doivent parfois subir plusieurs visites de laboratoire au cours d'une semaine et l'obtention des r\u00e9sultats de ces pr\u00e9l\u00e8vements peut prendre des heures, ce qui n'est pas id\u00e9al pour une gestion proactive. Pour les patients p\u00e9diatriques, les prises de sang veineux peuvent \u00eatre particuli\u00e8rement traumatisantes et les veines s'usent ou deviennent difficiles \u00e0 trouver, ce qui oblige les patients \u00e0 \u00eatre bloqu\u00e9s plusieurs fois dans la m\u00eame s\u00e9ance.<\/p>\n\n\n\n

En 2016, Shawn et Amy Wood, parents d'Alex, qui se remettait alors d'une r\u00e9section d'une tumeur c\u00e9r\u00e9brale de type craniopharyngiome et luttait contre l'AVP-D, ont \u00e9t\u00e9 h\u00e9liport\u00e9s \u00e0 plusieurs reprises pour des crises li\u00e9es au sodium. Les Woods ont cherch\u00e9 un moyen de tester le taux de sodium dans le sang \u00e0 la maison et ont d\u00e9couvert un analyseur de sang portatif utilis\u00e9 dans les h\u00f4pitaux et les cliniques de soins d'urgence, et ont entrepris d'en acheter un. Avec l'aide de leur communaut\u00e9 et du p\u00e9diatre d'Alex, ils ont pu s'en procurer un et l'utiliser. L'appareil peut mesurer le sodium, entre autres, avec un volume de sang de 20 gouttes, pr\u00e9lev\u00e9 sur une piq\u00fbre de doigt, et peut produire un r\u00e9sultat pr\u00e9cis en quelques minutes. La famille, avec les conseils de l'endocrinologue d'Alex, a pu proc\u00e9der \u00e0 des ajustements des liquides et des m\u00e9dicaments pour maintenir le taux de sodium dans une fourchette normale. <\/p>\n\n\n\n

La Raymond A. Wood Foundation a \u00e9t\u00e9 cr\u00e9\u00e9e par les Woods en 2017 afin de fournir ces appareils \u00e0 d'autres familles et de sensibiliser la communaut\u00e9 des cliniciens au fait qu'il s'agit d'un moyen viable de g\u00e9rer cette maladie. Mais le probl\u00e8me est que ces dispositifs ne sont pas destin\u00e9s \u00e0 cet usage et que leur prix est \u00e9lev\u00e9. La question s'est pos\u00e9e de savoir s'il \u00e9tait possible de mettre au point un appareil semblable au glucom\u00e8tre qu'utilise un diab\u00e9tique pour mesurer sa glyc\u00e9mie et qui pourrait mesurer le sodium. Amy Wood, directrice ex\u00e9cutive de RAWF, et Shana McCormack, MD, MTR, directrice scientifique neuroendocrine de l'h\u00f4pital pour enfants de Philadelphie, qui traite r\u00e9guli\u00e8rement des patients souffrant de probl\u00e8mes de r\u00e9gulation du sodium dus \u00e0 l'insuffisance r\u00e9nale, ont entrepris de r\u00e9pondre \u00e0 cette question.<\/p>\n\n\n\n

Selon le Dr McCormack, \"nous reconnaissons depuis longtemps la n\u00e9cessit\u00e9 de donner aux patients et aux familles de meilleurs outils pour g\u00e9rer leur AVP-D. Nous pensons que ce nouveau dispositif, une fois utilis\u00e9, nous aidera \u00e0 travailler en partenariat avec les personnes concern\u00e9es pour identifier et traiter les petits probl\u00e8mes \u00e0 un stade pr\u00e9coce, avant qu'ils ne se transforment en probl\u00e8mes plus importants entra\u00eenant des visites aux urgences et des hospitalisations.\"<\/p>\n\n\n\n

L'\u00e9quipe du projet comprend le Dr Shana McCormack, Amy Wood, le Dr Khushbu Patel, le directeur du laboratoire de chimie clinique du CHOP et l'entreprise de recherche et de d\u00e9veloppement Giner, Inc. Actuellement, la phase 1 du d\u00e9veloppement d'un est termin\u00e9e avec le soutien financier du NIH<\/a> sous la forme d'une subvention pour la recherche sur l'innovation dans les petites entreprises (SBIR) et de la Fondation Raymond A. Wood.<\/p>\n\n\n

<\/a>\n
\n\nSoutenir ce travail<\/a>\n\n<\/div>\n<\/div>\n\n\n
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Mises \u00e0 jour du projet\/Nouvelles<\/h3>\n\n\n\n

News Post : La Raymond A. Wood Foundation annonce une collaboration avec Giner Labs pour la recherche et le d\u00e9veloppement d'un appareil de mesure du sodium \u00e0 usage domestique pour la prise en charge du diab\u00e8te insipide<\/a><\/p>\n\n\n\n

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\"Abigail,<\/figure>\n\n<\/div><\/div>\n\n\n\n
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Soutenir ce travail<\/h3>\n\n\n\n

Gr\u00e2ce \u00e0 votre aide, nous pouvons acc\u00e9l\u00e9rer le processus de recherche et de d\u00e9veloppement, apporter de l'espoir aux personnes qui luttent contre cette maladie et \u00e0 celles qui ont besoin d'un contr\u00f4le du taux de sodium dans le sang, et potentiellement transformer des vies pour le mieux.<\/p>\n\n\n\n

<\/path><\/svg><\/span>En savoir plus<\/a><\/span><\/p>\n\n<\/div><\/div>\n\n\n\n

<\/div>\n<\/div>\n\n<\/div>","protected":false},"excerpt":{"rendered":"

D\u00e9velopper un moyen de mesurer le taux de sodium dans le sang \u00e0 domicile D\u00e9but 2020, l'\u00e9quipe de Raymond A. ... Lire plus<\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":57,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":{"0":"post-7429","1":"page","2":"type-page","3":"status-publish","5":"no-featured-image-padding"},"acf":[],"yoast_head":"\nSodium Home Test Kit for Easy At-Home Monitoring<\/title>\n<meta name=\"description\" content=\"Sodium home test kit to check sodium levels at home with fast, accurate results. 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