{"id":19283,"date":"2026-03-23T18:36:01","date_gmt":"2026-03-23T18:36:01","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?page_id=19283"},"modified":"2026-04-02T14:34:43","modified_gmt":"2026-04-02T14:34:43","slug":"recherche-sur-le-craniopharyngiome","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/fr\/craniopharyngioma-research\/","title":{"rendered":"Recherche sur le craniopharyngiome et perspectives pour les patients"},"content":{"rendered":"<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"800\" height=\"400\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/03\/hero.jpg\" alt=\"\" class=\"wp-image-19284\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/03\/hero.jpg 800w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/03\/hero-300x150.jpg 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/03\/hero-768x384.jpg 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2026\/03\/hero-18x9.jpg 18w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/figure>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>La Fondation Raymond A. Wood (RAWF) s'engage \u00e0 faire progresser <strong>recherche sur le craniopharyngiome<\/strong> en mettant l'accent sur les exp\u00e9riences v\u00e9cues par les patients et les soignants.<\/p>\n\n\n\n<p>Notre travail consiste \u00e0 comprendre l'impact r\u00e9el des tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires, en traduisant les observations des patients en donn\u00e9es probantes qui \u00e9clairent les soins, orientent la recherche et renforcent la d\u00e9fense des int\u00e9r\u00eats des patients.<\/p>\n\n\n\n<p>Alors que nos \u00e9tudes actuelles se concentrent sur <strong>craniopharyngiome<\/strong>Ce travail s'inscrit dans le cadre d'un effort plus large visant \u00e0 am\u00e9liorer les r\u00e9sultats dans l'ensemble de l'UE. <strong>les tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires et les affections connexes<\/strong>y compris l'ob\u00e9sit\u00e9 hypothalamique.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>D\u00e9couvrez notre recherche<\/strong><\/h2>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Hyperphagie en cas de craniopharyngiome <\/strong><\/h3>\n\n\n\n<p>Comprendre une maladie grave et m\u00e9connue<\/p>\n\n\n\n<p>Cette \u00e9tude explore la mani\u00e8re dont l'hyperphagie se manifeste dans le craniopharyngiome, en s'appuyant sur les observations des patients et des soignants pour mieux comprendre son impact, am\u00e9liorer l'identification et informer les soins futurs.<\/p>\n\n\n\n<p><a href=\"https:\/\/www.rawoodfoundation.org\/fr\/comprendre-lhyperphagie-dans-le-craniopharyngiome\/\">\u2192 D\u00e9couvrir l'ensemble des r\u00e9sultats<\/a><\/p>\n\n\n\n<div style=\"height:54px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Priorit\u00e9s de traitement dans la recherche sur le craniopharyngiome<\/strong><\/h3>\n\n\n\n<p>Comprendre les r\u00e9sultats centr\u00e9s sur le patient<\/p>\n\n\n\n<p>Cette \u00e9tude explore la mani\u00e8re dont les patients et les soignants \u00e9valuent les options de traitement du craniopharyngiome et les r\u00e9sultats qui comptent le plus dans la vie quotidienne.<\/p>\n\n\n\n<p>\u2192 <a href=\"https:\/\/www.rawoodfoundation.org\/fr\/les-priorites-de-traitement-dans-le-craniopharyngiome\/\">D\u00e9couvrir l'ensemble des r\u00e9sultats<\/a><\/p>\n\n\n\n<div style=\"height:54px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Impact sur les soignants en cas de craniopharyngiome<\/strong><\/h3>\n\n\n\n<p>Comprendre l'exp\u00e9rience de l'aidant<\/p>\n\n\n\n<p>Cette \u00e9tude met en lumi\u00e8re les exp\u00e9riences des aidants qui soutiennent les personnes atteintes d'un craniopharyngiome et le r\u00f4le important qu'ils jouent dans les soins de longue dur\u00e9e.<\/p>\n\n\n\n<p>\u2192 <a href=\"https:\/\/www.rawoodfoundation.org\/fr\/etude-dimpact-sur-les-soignants\/\">D\u00e9couvrir l'ensemble des r\u00e9sultats<\/a><br><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>L'importance de cette recherche<\/strong><\/h3>\n\n\n\n<p>Il y a une lacune critique dans <strong>recherche sur le craniopharyngiome<\/strong>Les r\u00e9sultats de l'\u00e9valuation de la qualit\u00e9 de vie et des r\u00e9sultats \u00e0 long terme de l'\u00e9valuation de la qualit\u00e9 de vie sont tr\u00e8s importants.<\/p>\n\n\n\n<p>Notre travail est utile :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>D\u00e9finir les r\u00e9sultats centr\u00e9s sur le patient<\/li>\n\n\n\n<li>Am\u00e9liorer la compr\u00e9hension de l'impact hypothalamique<\/li>\n\n\n\n<li>Informer les cliniciens et les chercheurs<\/li>\n\n\n\n<li>Renforcer le plaidoyer en faveur de l'acc\u00e8s au traitement<\/li>\n\n\n\n<li>Faire entendre la voix des patients et des soignants<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Rejoignez le registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires<\/strong><\/h3>\n\n\n\n<p>Nous nous engageons \u00e0 d\u00e9velopper la recherche avec la communaut\u00e9.<\/p>\n\n\n\n<p>Les <strong>Registre des patients atteints de tumeurs c\u00e9r\u00e9brales hypothalamo-hypophysaires<\/strong> est un \u00e9l\u00e9ment essentiel de l'avancement de la <strong>recherche sur les tumeurs c\u00e9r\u00e9brales hypothalamiques<\/strong> et l'am\u00e9lioration des soins.<\/p>\n\n\n\n<p>En rejoignant le registre, vous aidez :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Faire progresser la recherche sur le craniopharyngiome et les troubles hypothalamiques<\/li>\n\n\n\n<li>Veiller \u00e0 ce que l'exp\u00e9rience des patients soit prise en compte dans l'\u00e9laboration des traitements<\/li>\n\n\n\n<li>Soutenir les actions de plaidoyer en faveur de l'am\u00e9lioration des soins et de l'acc\u00e8s aux soins<\/li>\n<\/ul>\n\n\n\n<p>\u2192 <a href=\"https:\/\/www.rawoodfoundation.org\/fr\/registre-des-patients\/\">Rejoindre le registre des patients<\/a><br><\/p>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>At the Raymond A. Wood Foundation (RAWF), we are committed to advancing craniopharyngioma research by &#8230; <a title=\"Craniopharyngioma Research &amp; Patient Insights\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/craniopharyngioma-research\/\" aria-label=\"Read more about Craniopharyngioma Research &amp; Patient Insights\">Lire plus<\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":{"0":"post-19283","1":"page","2":"type-page","3":"status-publish","5":"no-featured-image-padding"},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Craniopharyngioma Research Studies | RAWF<\/title>\n<meta name=\"description\" content=\"Explore craniopharyngioma research, caregiver insights, and patient-driven studies improving care, quality of life, and access to treatment.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/recherche-sur-le-craniopharyngiome\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Craniopharyngioma Research Studies | RAWF\" \/>\n<meta property=\"og:description\" content=\"Explore craniopharyngioma research, caregiver insights, and patient-driven studies improving care, quality of life, and access to treatment.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/fr\/recherche-sur-le-craniopharyngiome\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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