{"id":14093,"date":"2025-06-25T15:47:37","date_gmt":"2025-06-25T15:47:37","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?page_id=14093"},"modified":"2026-02-18T19:12:03","modified_gmt":"2026-02-18T19:12:03","slug":"2025conference","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/fr\/2025conference\/","title":{"rendered":"Conf\u00e9rence des familles sur les tumeurs c\u00e9r\u00e9brales hypophysaires"},"content":{"rendered":"<h3 class=\"wp-block-heading\">Autonomiser les survivants, les familles et les soignants<\/h3>\n\n\n\n<p><strong>15-16 novembre 2025 - H\u00f4pital pour enfants de Philadelphie<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"851\" height=\"315\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1.png\" alt=\"\" class=\"wp-image-14095\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1.png 851w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-300x111.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-768x284.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-18x7.png 18w\" sizes=\"(max-width: 851px) 100vw, 851px\" \/><\/figure>\n\n\n\n<div style=\"height:32px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h4 class=\"wp-block-heading\">Merci d'avoir rendu cet \u00e9v\u00e9nement inoubliable !<\/h4>\n\n\n\n<p>Les 15 et 16 novembre 2025, plus de 100 patients, soignants, chercheurs et cliniciens se sont r\u00e9unis \u00e0 Philadelphie pour la 2025 Pituitary Brain Tumor Family Conference de la Raymond A. Wood Foundation, un puissant week-end d'\u00e9ducation, de connexion et de communaut\u00e9.<\/p>\n\n\n\n<p>Le th\u00e8me de cette ann\u00e9e, <em>\"Ensemble dans la connaissance, plus forts dans la communaut\u00e9\".<\/em> a donn\u00e9 lieu \u00e0 des discussions essentielles sur la recherche, la qualit\u00e9 de vie et la d\u00e9fense des droits, ainsi qu'\u00e0 des \u00e9changes sur nos exp\u00e9riences, nos pr\u00e9occupations et nos espoirs.<br><br>Nous sommes profond\u00e9ment reconnaissants \u00e0 tous ceux qui ont fait de cet \u00e9v\u00e9nement un succ\u00e8s, en particulier les survivants et les familles qui ont partag\u00e9 leurs exp\u00e9riences, les experts qui ont offert leurs points de vue, et les sponsors et donateurs qui ont contribu\u00e9 \u00e0 rendre cette rencontre possible. Nous attendons avec impatience les prochains rassemblements pour poursuivre les conversations.<\/p>\n\n\n\n<a class=\"gb-button gb-button-76878432 gb-button-text\" href=\"https:\/\/rawoodfoundation.uscreen.io\/checkout\/new?o=220259\" target=\"_blank\" rel=\"noopener noreferrer\">Acc\u00e9der aux enregistrements de la conf\u00e9rence<\/a>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h5 class=\"wp-block-heading\">Prochaine conf\u00e9rence : Novembre 2027<\/h5>\n\n\n\n<p>Consultez notre site pour obtenir des informations sur la prochaine conf\u00e9rence ou inscrivez-vous \u00e0 notre liste de diffusion au bas de cette page pour recevoir les mises \u00e0 jour dans votre bo\u00eete aux lettres \u00e9lectronique.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h4 class=\"wp-block-heading\">Conf\u00e9rence des familles sur les tumeurs c\u00e9r\u00e9brales hypophysaires : Un voyage en photos<\/h4>\n\n\n\n<p>Ce diaporama capture le c\u0153ur de notre temps pass\u00e9 ensemble - des moments de connexion, de collaboration et de soins. Qu'il s'agisse de pr\u00e9sentations percutantes, de conversations enrichissantes ou de sourires partag\u00e9s, ces images refl\u00e8tent l'esprit de la communaut\u00e9 et l'engagement \u00e0 am\u00e9liorer des vies gr\u00e2ce \u00e0 la recherche, au traitement et \u00e0 l'assistance.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"2025 Conf\u00e9rence des familles sur les tumeurs c\u00e9r\u00e9brales hypophysaires : Un voyage en photos\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/I5pISJWbqJo?feature=oembed&#038;enablejsapi=1&#038;origin=https:\/\/www.rawoodfoundation.org\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h4 class=\"wp-block-heading\">Ordre du jour de la conf\u00e9rence 2025<\/h4>\n\n\n\n<h5 class=\"wp-block-heading\"><strong>Samedi 15 novembre | The Hub for Clinical Collaboration, Children's Hospital of Philadelphia (H\u00f4pital pour enfants de Philadelphie) <\/strong><\/h5>\n\n\n\n<p>Matin<\/p>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td>&nbsp;8h00 - 9h00<\/td><td><strong>Inscription et petit-d\u00e9jeuner<\/strong><\/td><\/tr><tr><td>9h00 - 9h15<\/td><td><strong>Bienvenue<\/strong> Shana McCormack, MD, MTR, H\u00f4pital pour enfants de Philadelphie Amy Wood, Fondation Raymond A. Wood<\/td><\/tr><tr><td>9 h 15 - 10 h 15 <br>Session 1 - Discours liminaire<\/td><td><strong>Co\u00fbts et couverture :<\/strong> <strong>Faire face aux difficult\u00e9s financi\u00e8res dans le climat chaotique d'aujourd'hui<br><\/strong>Fran Castellow, MSEd, Pr\u00e9sidente, Op\u00e9rations,<br>Fondation Patient Advocate<\/td><\/tr><tr><td>10:15am - 10:30am<\/td><td><strong>Pause-cerveau<\/strong><\/td><\/tr><tr><td>10h30 - 11h10 <br>Session 2<\/td><td><strong>Derni\u00e8res d\u00e9couvertes en mati\u00e8re d'essais cliniques et de recherche<\/strong> <br>Shana McCormack, MD, MTR H\u00f4pital pour enfants de Philadelphie<\/td><\/tr><tr><td>11:10am - 11:20am<\/td><td><strong>Pleins feux sur les sponsors<\/strong> <br>Kristina Shields<br>Rhythm Pharmaceuticals<\/td><\/tr><tr><td>11:30am - 12:00pm Session 3<\/td><td><strong>Approches de traitement des tumeurs<br><\/strong>Cassie Kline, MD H\u00f4pital pour enfants de Philadelphie<\/td><\/tr><tr><td>12:00 - 13:00<\/td><td><strong>D\u00e9jeuner et mise en r\u00e9seau<br>D\u00e9monstrations de dosage du stress<\/strong><br>Ryan LaBella, LPN<br>Amanda Reyneuse<br>Jennifer Jerusik<\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p><strong>Apr\u00e8s-midi<\/strong><\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<figure class=\"wp-block-table\"><table><tbody><tr><td>13:00 - 13:50<br>Session 5<\/td><td><strong>Sessions en petits groupes<br>Remplacement des hormones sexuelles m\u00e2les&nbsp;<\/strong> <br>Christopher Gibson, MD<br>H\u00f4pital pour enfants de Philadelphie <br><strong>Remplacement des hormones sexuelles f\u00e9minines<\/strong> <br>Jacquelyn Hatch-Stein, MD<br>H\u00f4pital pour enfants de Philadelphie <br><strong>Questions endocriniennes chez l'adulte <\/strong><br>Sanjay Jumani, MD<br>Universit\u00e9 Thomas Jefferson<\/td><\/tr><tr><td>13:50 - 14:00<\/td><td><strong>Pause-cerveau<\/strong><\/td><\/tr><tr><td>14:00 - 15:00 <br>Session 6<\/td><td><strong>Ob\u00e9sit\u00e9 hypothalamique : Prise en charge clinique et<br>Approches nutritionnelles&nbsp;<\/strong> <br>Jennifer Miller, MD Michael Tan, MS, RD, LDN<br>Universit\u00e9 de Floride<\/td><\/tr><tr><td>15:00 - 15:15<\/td><td><strong>Photo de groupe<\/strong><\/td><\/tr><tr><td>15:15 - 16:00 <br>Session 7<\/td><td><strong>Gestion des d\u00e9ficits en AI, AVP-D et GH<br><\/strong>Craig Alter, MD H\u00f4pital pour enfants de Philadelphie<\/td><\/tr><tr><td>16:00 - 17:00<\/td><td><strong>Questions et r\u00e9ponses g\u00e9n\u00e9rales Panel et remarques de cl\u00f4ture<\/strong><\/td><\/tr><\/tbody><\/table><\/figure>\n<\/div>\n<\/div>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Dimanche 16 novembre, de 8h00 \u00e0 11h30, The Study \u00e0 University City<\/strong><\/h4>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td><br>8h00<br><\/td><td><strong>Petit d\u00e9jeuner&nbsp;<\/strong><\/td><\/tr><tr><td>8h30 - 9h30<br><\/td><td><strong>Faire face au deuil : Une discussion autour du feu<br><\/strong>Holly Gainsboro, sp\u00e9cialiste du soutien aux personnes en deuil Mod\u00e9r\u00e9e par Malikah Kelly, coordinatrice de la sensibilisation, RAWF<\/td><\/tr><tr><td>9:30am-10:00am<br><\/td><td><strong>La d\u00e9couverte au c\u0153ur de l'action : Le point sur la recherche strat\u00e9gique de RAWF<br><\/strong>Nathalie Kayadjanian, Ph.D., directrice scientifique, RAWF<\/td><\/tr><tr><td>10h00 - 11h15<br><\/td><td><strong>Table ronde des survivants et des aidants<\/strong> <br>Mod\u00e9r\u00e9 par Eugenie Hsu, Ph.D., pr\u00e9sidente du conseil d'administration, RAWF<\/td><\/tr><tr><td>11:15am -<br>11:30am<\/td><td><strong>Remarques finales et synth\u00e8se de la conf\u00e9rence<\/strong> <br>Amy Wood, directrice ex\u00e9cutive, RAWF<br><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center\">Merci \u00e0 nos sponsors<\/h3>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>SPONSOR PLATINE<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img decoding=\"async\" width=\"1024\" height=\"271\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1024x271.png\" alt=\"Logo de Rhythm Phamaceuticals\" class=\"wp-image-14097\" style=\"width:437px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1024x271.png 1024w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-300x80.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-768x204.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1536x407.png 1536w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-18x5.png 18w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019.png 2000w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PARRAIN D'OR<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img decoding=\"async\" width=\"666\" height=\"141\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark.png\" alt=\"Logo d&#039;Aardvark Therapeutics\" class=\"wp-image-14098\" style=\"width:375px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark.png 666w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark-300x64.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark-18x4.png 18w\" sizes=\"(max-width: 666px) 100vw, 666px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PARRAIN D'ARGENT<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img decoding=\"async\" width=\"1024\" height=\"175\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1024x175.png\" alt=\"Logo d&#039;Eton Pharmaceuticals\" class=\"wp-image-14099\" style=\"width:336px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1024x175.png 1024w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-300x51.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-768x131.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1536x263.png 1536w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-2048x350.png 2048w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-18x3.png 18w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PARRAIN DE BRONZE<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img decoding=\"async\" width=\"800\" height=\"467\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB.png\" alt=\"Logo de la fondation EveryLife\" class=\"wp-image-14100\" style=\"width:201px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB.png 800w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-300x175.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-768x448.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-18x12.png 18w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/figure><\/div>","protected":false},"excerpt":{"rendered":"<p>Donner du pouvoir aux survivants, aux familles et aux soignants 15-16 novembre 2025 - H\u00f4pital pour enfants de Philadelphie Merci ... <a title=\"Conf\u00e9rence des familles sur les tumeurs c\u00e9r\u00e9brales hypophysaires\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2025conference\/\" aria-label=\"En savoir plus sur la conf\u00e9rence des familles sur les tumeurs c\u00e9r\u00e9brales hypophysaires\">Lire plus<\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":12,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":{"0":"post-14093","1":"page","2":"type-page","3":"status-publish","5":"no-featured-image-padding"},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pituitary Brain Tumor Family Conference - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/fr\/2025conference\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pituitary Brain Tumor Family Conference - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Empowering Survivors, Families &amp; Caregivers November 15\u201316, 2025 \u2022 Children\u2019s Hospital of Philadelphia Thank you ... Lire plus\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/fr\/2025conference\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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