{"id":98,"date":"2021-04-07T15:48:51","date_gmt":"2021-04-07T15:48:51","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2021\/04\/07\/2021-4-7-hypothalamic-obesity-update-in-nords-rare-disease-database\/"},"modified":"2025-10-14T06:59:35","modified_gmt":"2025-10-14T06:59:35","slug":"2021-4-7-obesidad-hipotalamica-actualizacion-en-la-base-de-datos-nords-de-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2021\/04\/07\/2021-4-7-hypothalamic-obesity-update-in-nords-rare-disease-database\/","title":{"rendered":"Actualizaci\u00f3n de la obesidad hipotal\u00e1mica en la base de datos de enfermedades raras de NORD"},"content":{"rendered":"<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">La obesidad hipotal\u00e1mica (HO) es un trastorno poco frecuente que suele producirse por una lesi\u00f3n del hipot\u00e1lamo debida a un tumor cerebral o al tratamiento de un tumor cerebral. Esta enfermedad puede provocar una serie de s\u00edntomas, como hiperfagia (aumento anormal del apetito de intensidad variable) y un aumento de peso incontrolable que no suele responder a la dieta ni al ejercicio.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">No existe un tratamiento realmente fiable para esta enfermedad, que presenta una importante necesidad insatisfecha, y sus implicaciones son de gran alcance. No s\u00f3lo existe la posibilidad de obesidad m\u00f3rbida, sino que el hambre incesante puede ser muy dif\u00edcil para el paciente, el cuidador y los familiares. A largo plazo, los afectados pueden padecer otras enfermedades cr\u00f3nicas, como diabetes de tipo 2, h\u00edgado graso no alcoh\u00f3lico y afecciones cardiacas.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La comunidad de pacientes con obesidad hipotal\u00e1mica, los m\u00e9dicos tratantes e investigadores y la Fundaci\u00f3n Raymond A. Wood est\u00e1n trabajando juntos para comunicar mejor la complejidad de esta afecci\u00f3n y diferenciarla de la obesidad est\u00e1ndar con la esperanza de encontrar un tratamiento est\u00e1ndar y apoyar el desarrollo de <a href=\"https:\/\/www.rawoodfoundation.org\/es\/obesidad-hipotalamica\/\" target=\"_blank\" rel=\"noopener\">tratamiento de la obesidad hipotal\u00e1mica<\/a> opciones.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Como parte de este esfuerzo, se actualiz\u00f3 la definici\u00f3n de obesidad hipotal\u00e1mica en el <a href=\"https:\/\/rarediseases.org\/\" target=\"_blank\" rel=\"noopener\">Organizaci\u00f3n Nacional de Enfermedades Raras<\/a> (NORD) para reflejar con exactitud el pron\u00f3stico de la HO, la historia, los signos y s\u00edntomas, las causas, el diagn\u00f3stico, las terapias y los recursos.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">RAWF agradece a Shana E. McCormack, MD, MTR, Directora Cient\u00edfica, Centro Neuroendocrino en la Divisi\u00f3n de Endocrinolog\u00eda y Diabetes, Hospital Infantil de Filadelfia; M. Jennifer Abuzzahab, MD, Endocrin\u00f3loga Pedi\u00e1trica, Centro Pedi\u00e1trico de Diabetes McNeely y Cl\u00ednica Endocrina, Children's Minnesota; Ashley H. Shoemaker, MD, MSCI, Profesora Adjunta de Pediatr\u00eda, Vanderbilt University Medical Center; y Christian L. Roth, MD, Profesor, Seattle Children's Hospital, por la preparaci\u00f3n y actualizaci\u00f3n de este informe.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\"><a href=\"https:\/\/rarediseases.org\/rare-diseases\/hypothalamic-obesity-acquired\/\" target=\"_blank\" rel=\"noopener\">Lea el informe completo aqu\u00ed \"<\/a><\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\"><a href=\"https:\/\/www.rawoodfoundation.org\/es\/obesidad-hipotalamica\/\">M\u00e1s informaci\u00f3n sobre la obesidad hipotal\u00e1mica \"<\/a><\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\"><a href=\"https:\/\/www.rawoodfoundation.org\/es\/hacer-un-donativo\/\">Apoya la labor de RAWF en la b\u00fasqueda de soluciones para los supervivientes de tumores cerebrales que padecen esta enfermedad \"<\/a><\/p>\n<\/div>\n<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"sqs-block-image-figure              intrinsic\" style=\"max-width: 1200px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"position: relative; padding-bottom: 66.66667175292969%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1617810518552-WY5XGDYM8XDKPMHS2ARY\/ho-nord.jpg\" alt=\"ho-nord.jpg\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1617810518552-WY5XGDYM8XDKPMHS2ARY\/ho-nord.jpg\" alt=\"ho-nord.jpg\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1617810518552-WY5XGDYM8XDKPMHS2ARY\/ho-nord.jpg\" data-image-dimensions=\"1200x800\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"606dd456c94c3b395f8e70b4\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div>\n<\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>La obesidad hipotal\u00e1mica (HO) es una enfermedad poco frecuente que suele producirse por una lesi\u00f3n del hipot\u00e1lamo ... <a title=\"Actualizaci\u00f3n de la obesidad hipotal\u00e1mica en la base de datos de enfermedades raras de NORD\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2021\/04\/07\/2021-4-7-hypothalamic-obesity-update-in-nords-rare-disease-database\/\" aria-label=\"Leer m\u00e1s sobre Actualizaci\u00f3n sobre obesidad hipotal\u00e1mica en la base de datos de enfermedades raras de NORD\">Seguir leyendo<\/a><\/p>","protected":false},"author":6,"featured_media":5594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[29,1],"tags":[],"class_list":["post-98","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hypothalamic-obesity","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hypothalamic Obesity Update in NORD&#039;s Rare Disease Database - Raymond A. 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