{"id":9026,"date":"2024-03-01T17:56:42","date_gmt":"2024-03-01T17:56:42","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?p=9026"},"modified":"2025-05-05T17:03:09","modified_gmt":"2025-05-05T17:03:09","slug":"escalando-nuevas-alturas-conquistando-el-monte-kilimanjaro-con-avp-d-y-prosperando-mas-alla-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2024\/03\/01\/scaling-new-heights-conquering-mount-kilimanjaro-with-avp-d-and-thriving-beyond-rare-disease\/","title":{"rendered":"Escalando nuevas alturas: Conquistar el Kilimanjaro con AVP-D y prosperar m\u00e1s all\u00e1 de las enfermedades raras"},"content":{"rendered":"

Subir al Kilimanjaro ha sido mi sue\u00f1o durante muchos a\u00f1os y el domingo 25 de febrero a las 7:18 de la ma\u00f1ana se hizo realidad. A pesar del viento de 40 mph y una temperatura de -22 grados llegu\u00e9 a Uhuru Peak (5,895m \/ 19,340ft) lo que significa que hab\u00eda conquistado una de las 7 cumbres del mundo. Esto me convierte en la primera persona con diabetes de tipo 1 y AVP-D que llega a la cima, \u00a1pero espero que no sea la \u00faltima!<\/p>\n\n\n\n

\"Gente<\/figure>\n\n\n\n

Me diagnosticaron diabetes tipo 1 el 14 de marzo de 2019. En ese momento estaba estudiando Qu\u00edmica en la Universidad de St Andrews mientras tambi\u00e9n jugaba al hockey internacional. Ten\u00eda la vista puesta en la clasificaci\u00f3n de la Commonwealth y los Juegos Ol\u00edmpicos, sin embargo, debido a los efectos de tal volumen e intensidad de entrenamiento, decid\u00ed que era demasiado desafiante tratar de manejar mi diabetes con el deporte de \u00e9lite. Mental y f\u00edsicamente, esto supuso un shock en mi vida, y me cost\u00f3 mucho imaginarme c\u00f3mo ser\u00eda mi vida a partir de entonces y c\u00f3mo podr\u00eda recuperar mi independencia, mi confianza y mi felicidad. Por eso apareci\u00f3 el senderismo en mi vida.<\/p>\n\n\n\n

Corr\u00eda el a\u00f1o 2020, en pleno cierre de COVID, cuando me compr\u00e9 una autocaravana para recorrer el Reino Unido. Empec\u00e9 a planear viajes por las monta\u00f1as que pod\u00eda escalar: Snowdon, Scafell Pike, Ben Nevis, Carrauntoohil y Slieve Donard. Tambi\u00e9n me aventur\u00e9 en Francia, donde explor\u00e9 el Pic du Midi, el Mont Ventoux y el Mont Pelat. Una vez que termin\u00e9 mis aventuras en autocaravana, me sent\u00ed preparado para apuntarme a un reto mayor y el Kilimanjaro se convirti\u00f3 inmediatamente en mi objetivo. Padecer enfermedades cr\u00f3nicas puede hacer que uno se cuestione su capacidad para enfrentarse a retos que a otros no les asustan tanto. Sin embargo, no quer\u00eda que el miedo me impidiera disfrutar de las experiencias que me ofrece la vida.<\/p>\n\n\n\n

Cuando me inscrib\u00ed en la expedici\u00f3n, quise planificar todo lo posible y organizar el tratamiento de cada enfermedad. Sab\u00eda que hab\u00eda factores que pod\u00eda controlar para mantenerme a salvo, tanto desde el punto de vista de la diabetes como del AVP-D. Por ejemplo, mi insulina se congelar\u00eda a temperaturas m\u00e1s bajas y las pilas de mi medidor de glucosa en sangre se agotar\u00edan. Teniendo esto en cuenta, plane\u00e9 mantener mis bol\u00edgrafos y mi medidor cerca de mi piel en todo momento, manteni\u00e9ndolos suficientemente calientes. Para mi AVP-D compr\u00e9 tiras reactivas de sodio en orina que me dar\u00edan una vaga idea de mis niveles de sodio.<\/p>\n\n\n\n

\"Gente<\/figure>\n\n\n\n

Hubo aspectos para los que no pod\u00eda prepararme y que tuve que descubrir durante el viaje. A mayor altitud, me di cuenta de que la insulina no funcionaba con la misma eficacia, as\u00ed que aument\u00e9 la dosis de referencia durante el viaje. Controlar mis niveles de sodio fue mucho m\u00e1s dif\u00edcil y la hiponatremia es un efecto secundario com\u00fan de mi medicaci\u00f3n con Desmopresina. Por lo tanto, me asegur\u00e9 de tener un d\u00eda de descanso justo antes de empezar la caminata y tambi\u00e9n me asegur\u00e9 de tomar electrolitos todos los d\u00edas. Cuando empec\u00e9 a experimentar s\u00edntomas de falta de sodio (calambres y debilidad) me asegur\u00e9 de saltarme una dosis y de beber hasta saciar la sed. Aunque los medidores de diabetes son muy comunes y me ayudan a controlarla bien, actualmente no existe un medidor de sodio dom\u00e9stico, lo que dificulta la seguridad. La Fundaci\u00f3n Raymond A. Wood est\u00e1 desarrollando un medidor que supondr\u00eda un gran beneficio para la comunidad AVP-D.<\/p>\n\n\n\n

No hay que subestimar el reto que supone el Kilimanjaro, sobre todo siguiendo la ruta que nosotros seguimos. Los d\u00edas fueron largos y f\u00edsicos, con muchos ascensos y descensos. El primer d\u00eda recorrimos 4 km desde Moshi hasta Londorosi Gate, nos registramos, pesamos las mochilas y conocimos a nuestro equipo de porteadores. Seguimos conduciendo hasta el picnic de Morum, donde comenzamos la caminata hasta el campamento Shira 1. El segundo d\u00eda recorrimos 10 km por el pintoresco paisaje de brezales desde el campamento Shira 1 hasta el Shira 2. El tercer d\u00eda recorrimos 11 km en direcci\u00f3n sureste hacia la Torre de Lava, una formaci\u00f3n de roca volc\u00e1nica de 90 metros de altura. Fue una gran aclimataci\u00f3n que nos llev\u00f3 hasta los 3.600 metros. El cuarto d\u00eda recorrimos 6 km y escalamos la pared de Baranco antes de adentrarnos en el valle de Karanga y montar nuestras tiendas en el campamento de Karanga. La 5\u00aa jornada fue de 4 km, saliendo de Karanga y atravesando el desierto alpino hasta el campamento de Barafu (campamento base para pasar la noche en la cumbre). El d\u00eda 6 fue el intento de cumbre, salimos a la 1:30 am y llegamos a la cumbre (Uhuru Peak) a las 7:15 am. Tras descender hasta el campamento de Barafu y hacer un breve descanso, nos dirigimos al campamento alto. En total fueron 14 km. La s\u00e9ptima jornada consisti\u00f3 en descender 13,5 km hasta el campamento de Mweka y luego hasta la puerta de Mweka a trav\u00e9s de la selva tropical. El sendero era muy rocoso y empinado, por lo que resultaba agotador para las rodillas.<\/p>\n\n\n\n

Las pr\u00e1cticas de aclimataci\u00f3n a partir del tercer d\u00eda consistieron en caminar a altitudes m\u00e1s elevadas y acampar un poco m\u00e1s abajo para ayudar a nuestros cuerpos a adaptarse a las condiciones. Aunque la caminata no era demasiado t\u00e9cnica, la secci\u00f3n de la pared del Baranco requer\u00eda trepar por escarpadas paredes rocosas y la noche de la cumbre implicaba caminar a trav\u00e9s de grueso hielo y nieve. Me di cuenta de que mis niveles de glucosa variaban considerablemente en funci\u00f3n del ritmo y la actividad f\u00edsica del d\u00eda. Cuando caminaba gradualmente cuesta arriba, mis niveles descend\u00edan suavemente, mientras que el duro y empinado esfuerzo de la noche en la cumbre hac\u00eda que mis niveles subieran. Desde luego, me mantuvo alerta.<\/p>\n\n\n\n

\"Persona<\/figure>\n\n\n
\n\n

Aunque no todo el mundo sue\u00f1a con escalar el Kilimanjaro, espero que esto demuestre que padecer enfermedades cr\u00f3nicas no tiene por qu\u00e9 limitar hasta qu\u00e9 punto puedes esforzarte mental y f\u00edsicamente. He aprendido mucho sobre m\u00ed misma en este viaje y ha sido realmente la mejor experiencia de mi vida. He hecho nuevos amigos, he conocido una cultura y un modo de vida totalmente diferentes, he presenciado paisajes incre\u00edbles, me he esforzado por salir de mi zona de confort y he conseguido cosas que nunca pens\u00e9 que podr\u00eda conseguir. La resiliencia mental es algo que te ves obligado a desarrollar cuando vives con una enfermedad que afecta a tu vida diaria, y creo que esto me ha preparado bien para afrontar el aspecto mental de este reto.<\/p>\n\n<\/div>\n\n\n

Una vez logrado mi objetivo, pido a todo aquel que se sienta inspirado por mi reto que haga una donaci\u00f3n a una de estas incre\u00edbles causas: Fundaci\u00f3n Raymond A. Wood (AVP-D<\/a>), JDRF UK (Diabetes de tipo 1), The Pituitary Foundation (AVP-D). <\/p>\n\n\n\n

Atentamente,<\/p>\n\n\n\n

Amy Cairns <\/p>\n\n\n

\n\nApoyar el desarrollo de medidores de sodio <\/a>\n\n<\/div>","protected":false},"excerpt":{"rendered":"

Hacer senderismo por el Kilimanjaro ha sido mi sue\u00f1o durante muchos a\u00f1os y el domingo 25 ... Seguir leyendo<\/a><\/p>","protected":false},"author":4,"featured_media":9029,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[47,30,43],"tags":[46,49],"class_list":["post-9026","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-di","category-rawf-news","category-patient-stories","tag-avp-d","tag-sodium-meter","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"\nScaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving Beyond Rare Disease - Raymond A. 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