{"id":8876,"date":"2024-01-09T14:57:26","date_gmt":"2024-01-09T14:57:26","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?p=8876"},"modified":"2025-05-05T17:02:31","modified_gmt":"2025-05-05T17:02:31","slug":"recaudacion-de-fondos-para-camisetas-dans-breakthrough","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2024\/01\/09\/dans-breakthrough-t-shirt-fundraiser\/","title":{"rendered":"Recaudaci\u00f3n de fondos para la camiseta \"Breakthrough\" de Dan"},"content":{"rendered":"

Por qu\u00e9 he creado una camiseta para celebrar la \"cultura\" AVP-D y apoyar el proyecto del medidor de sodio en sangre de RAWF<\/strong><\/p>\n\n\n\n

Mi nombre es Dan Klingessrow y vivo a las afueras de D.C. en Mount Rainier, Maryland con mi hijo Jonah y mi esposa Tess. Me diagnosticaron por primera vez AVP-D (tambi\u00e9n conocida como Diabetes Ins\u00edpida) en 2015 tras una cirug\u00eda para extirpar un quiste en mi gl\u00e1ndula pituitaria.<\/p>\n\n\n\n

\"Hombre<\/figure>\n\n\n\n

Vivir con DI puede ser dif\u00edcil, agotador y aislante. He tenido que ser hospitalizada tres veces por un nivel extremadamente bajo de sodio, todas ellas durante un viaje al extranjero. Si no me dosifico correctamente, mi d\u00eda puede verse empa\u00f1ado por la fatiga, la niebla cerebral y las constantes idas al ba\u00f1o. Cuando los s\u00edntomas aparecen de verdad, s\u00f3lo puedo pensar en beber el agua m\u00e1s fr\u00eda que encuentre.<\/p>\n\n\n\n

Mi viaje con AVP-D cambi\u00f3 dram\u00e1ticamente en 2023 cuando encontr\u00e9 el \u00bfTiene AVP-D \/ DI?<\/em><\/strong> <\/em>grupo de Facebook y posteriormente el Fundaci\u00f3n Raymond A. Wood<\/strong>. Despu\u00e9s de m\u00e1s de 8 a\u00f1os gestionando mi enfermedad sin conocer a ning\u00fan otro paciente, encontr\u00e9 una comunidad de 6.000 personas que experimentaban lo mismo que yo. Y una organizaci\u00f3n sin \u00e1nimo de lucro dedicada a ayudar a los pacientes con DI y a sus cuidadores. Al leer mensaje tras mensaje en Facebook, me sent\u00ed como un extraterrestre que por fin hab\u00eda encontrado mi planeta natal.<\/p>\n\n\n\n

Me inspir\u00e9 para crear el Avance<\/em> camiseta porque el AVP-D -para bien o para mal- es una parte tan importante de mi vida. Si iba a pensar en mis s\u00edntomas todos los d\u00edas, quer\u00eda canalizar esa energ\u00eda en algo que me entusiasmara. A las personas que, como yo, tenemos DI y a\u00fan conservamos intacto el mecanismo de la sed, nos apetecen bebidas heladas. El dise\u00f1o presenta algunas de las bebidas favoritas de los pacientes, recogidas en el \u00bfTienes AVP-D?<\/em> grupo de facebook. Avance<\/em> pretende celebrar la \"cultura\" de la AVP-D y animar a amigos y familiares a hacer preguntas para que los pacientes con DI tengan la oportunidad de compartir c\u00f3mo es vivir con esta enfermedad. El nombre proviene de la idea m\u00e9dica de avance, que para los pacientes con DI significa dejar que sus s\u00edntomas vuelvan antes de tomar la siguiente dosis para asegurarnos de que no estamos sobremedicando. Eche un vistazo a los dise\u00f1os y compre una camiseta aqu\u00ed.<\/a><\/p>\n\n\n\n

\"Obras<\/figure>\n\n\n\n

Estoy muy contenta de que 100% de los beneficios de estas camisetas se destinen a la Fundaci\u00f3n Raymond A. Wood y a sus esfuerzos por desarrollar un medidor de sodio en sangre dom\u00e9stico y asequible. Contar con un dispositivo como \u00e9ste cambiar\u00eda mi vida y la de miles de pacientes y cuidadores que no saben c\u00f3mo dosificar su medicaci\u00f3n para la diabetes. Para m\u00ed, viajar siempre supone un gran estr\u00e9s, ya que mi cuerpo reacciona de forma impredecible a los cambios de sue\u00f1o, dieta y clima. De hecho, pas\u00e9 el \u00faltimo d\u00eda de mi luna de miel en un hospital de Atenas recuper\u00e1ndome de una bajada de sodio. Poder llevar conmigo un medidor de sodio en sangre mientras viajo me permitir\u00eda ajustar mi dosis en funci\u00f3n de mis niveles en tiempo real, y me ayudar\u00eda a no tener que ir al hospital.<\/p>\n\n\n\n

\"Jersey\"<\/figure>\n\n\n\n

Vivir con DI a veces puede hacerte sentir muy solo. Cuando los s\u00edntomas aparecen entre dosis, puede ser todos <\/em>en lo que puedas pensar. Mi esposa Tess me ha escuchado pacientemente hablar durante horas y horas sobre mi niebla cerebral, mis viajes al ba\u00f1o y mi sed insaciable. Estar en comunidad con la Fundaci\u00f3n Raymond A. Wood y la \u00bfTienes AVP-D?<\/em> El grupo de facebook ha hecho que la experiencia sea menos solitaria, y espero que el dise\u00f1o de esta camiseta haga lo mismo.<\/p>\n\n\n

\n
\n
\n\n

M\u00e1s informaci\u00f3n Proyecto de medidor de sodio en sangre de la Fundaci\u00f3n Raymond A. Wood aqu\u00ed<\/a> el y comprar un Camiseta o sudadera Breakthrough aqu\u00ed<\/a>.<\/p>\n\n<\/div>\n<\/div>\n<\/div>\n\n\n

En comunidad,<\/p>\n\n\n\n

Dan Klingessrow<\/p>","protected":false},"excerpt":{"rendered":"

Por qu\u00e9 he creado una camiseta para celebrar la \"cultura\" AVP-D y apoyar el medidor de sodio en sangre de RAWF ... Seguir leyendo<\/a><\/p>","protected":false},"author":4,"featured_media":8877,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[47],"tags":[46,49],"class_list":["post-8876","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-di","tag-avp-d","tag-sodium-meter","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"\nDan's 'Breakthrough' T-Shirt Fundraiser - Raymond A. 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