{"id":6894,"date":"2020-09-21T13:58:30","date_gmt":"2020-09-21T13:58:30","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2020\/09\/21\/2020-9-21-rare-disease-researchers-gather-virtually-to-discuss-potential-therapies-for-hypothalamic-obesity\/"},"modified":"2023-08-01T19:25:35","modified_gmt":"2023-08-01T19:25:35","slug":"2020-9-21-investigadores-de-enfermedades-raras-se-reunen-virtualmente-para-debatir-posibles-terapias-contra-la-obesidad-hipotalamica","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2020\/09\/21\/2020-9-21-rare-disease-researchers-gather-virtually-to-discuss-potential-therapies-for-hypothalamic-obesity\/","title":{"rendered":"Investigadores de enfermedades raras se re\u00fanen virtualmente para debatir posibles terapias contra la obesidad hipotal\u00e1mica"},"content":{"rendered":"<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space:pre-wrap;\">La obesidad hipotal\u00e1mica (HO) es una afecci\u00f3n devastadora que puede derivarse del tratamiento de un tumor en el eje hipotal\u00e1mico-hipofisario del cerebro. Muchos luchan con diversos grados de este problema, desde aumentos dr\u00e1sticos de peso despu\u00e9s del tratamiento inicial hasta un aumento de peso incontrolable continuo con o sin hiperfagia, que es un t\u00e9rmino para el hambre insaciable.&nbsp; <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Estos problemas se producen porque la lesi\u00f3n del hipot\u00e1lamo altera los procesos metab\u00f3licos que env\u00edan las se\u00f1ales correctas de hambre y saciedad entre el cerebro y el est\u00f3mago. Puede afectar gravemente a la calidad de vida de los supervivientes y de los cuidadores y familiares en su lucha por proteger a su ser querido afectado. Los frigor\u00edficos y armarios cerrados con llave, la imposibilidad de asistir a reuniones sociales o familiares, el robo de alimentos y las afecciones m\u00e9dicas subsiguientes, como la diabetes de tipo 2 y la enfermedad del h\u00edgado graso no alcoh\u00f3lico, pueden ser el resultado, y hasta la fecha no existen tratamientos probados para la HO. <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Sin embargo, hay esperanza en el horizonte, ya que las compa\u00f1\u00edas farmac\u00e9uticas y los investigadores de enfermedades raras est\u00e1n probando varios tratamientos potenciales que pueden aliviar algunos de los problemas de esta enfermedad e incluso causar p\u00e9rdida de peso. En el Panel de Ensayos Cl\u00ednicos sobre el Hipot\u00e1lamo, programado como un <a href=\"https:\/\/www.pituitarybraintumorconference.com\/\">Conferencia virtual para familias sobre tumores cerebrales hipofisarios<\/a> El taller previo a la conferencia, el 28 de octubre, se centra en los \u00faltimos avances y posibles tratamientos. Entre los ponentes figuran Ulla Feldt-Rasmussen, M.D., DMSc, investigadora principal de Tesomet, de Saniona, que iniciar\u00e1 ensayos cl\u00ednicos en Estados Unidos posiblemente a principios de 2021, Roman Dvorak, MD, PhD, director m\u00e9dico de ConSynance, que pronto iniciar\u00e1 ensayos cl\u00ednicos de fase uno de CSTI-500, y Blandine Gatta Cherifi, MD, PhD, de la Universit\u00e9 de Bordeaux, que hablar\u00e1 de los an\u00e1logos del GLP-1 como posible opci\u00f3n de tratamiento de la obesidad hipotal\u00e1mica. <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">El panel estar\u00e1 dirigido por Shana McCormack, MD, MTR, del CHOP, que actualmente dirige un estudio de investigaci\u00f3n sobre la oxitocina intranasal y su impacto en los s\u00edntomas de la HO. <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\"><strong>Para inscribirse en esta y otras sesiones educativas sobre tumores cerebrales que afectan a esta zona del cerebro, visite&nbsp;<\/strong><a href=\"https:\/\/www.pituitarybraintumorconference.com\/\" target=\"_blank\" rel=\"noopener\"><strong>pbtconference.org<\/strong><\/a><strong>.<\/strong><\/p>\n<\/div>\n<div\n        class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\"\n        data-test=\"image-block-inline-outer-wrapper\"\n    ><\/p>\n<figure\n            class=\"sqs-block-image-figure              intrinsic\"\n            style=\"max-width:1200px;\"\n        ><\/p>\n<div\n\n\n              class=\"image-block-wrapper\"\n              data-animation-role=\"image\"\n\n\n\n          ><\/p>\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"                position: relative;                  padding-bottom:52.499996185302734%;                overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black);              \"\n              ><\/p>\n<p>                  <noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1600696557410-BMDATEP51EYQQHFXDWIZ\/HO-PBT.png\" alt=\"HO-PBT.png\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1600696557410-BMDATEP51EYQQHFXDWIZ\/HO-PBT.png\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1600696557410-BMDATEP51EYQQHFXDWIZ\/HO-PBT.png\" data-image-dimensions=\"1200x630\" data-image-focal-point=\"0.5,0.5\" alt=\"HO-PBT.png\" data-load=\"false\" data-image-id=\"5f68b0ec30f837311d17e226\" data-type=\"image\" \/><\/p><\/div>\n<\/p><\/div>\n<\/figure><\/div>\n<div\n  class=\"sqs-block-button-container sqs-block-button-container--center\"\n  data-animation-role=\"button\"\n  data-alignment=\"center\"\n  data-button-size=\"medium\"\n  data-button-type=\"primary\"\n><br \/>\n  <a\n    href=\"https:\/\/www.pituitarybraintumorconference.com\/\"\n    class=\"sqs-block-button-element--medium sqs-button-element--primary sqs-block-button-element\"\n\n  ><br \/>\n    Reg\u00edstrese ahora<br \/>\n  <\/a>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>La obesidad hipotal\u00e1mica (HO) es una afecci\u00f3n devastadora que puede derivarse del tratamiento de un tumor ... <a title=\"Investigadores de enfermedades raras se re\u00fanen virtualmente para debatir posibles terapias contra la obesidad hipotal\u00e1mica\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2020\/09\/21\/2020-9-21-rare-disease-researchers-gather-virtually-to-discuss-potential-therapies-for-hypothalamic-obesity\/\" aria-label=\"Leer m\u00e1s sobre Investigadores de enfermedades raras se re\u00fanen virtualmente para debatir posibles terapias contra la obesidad hipotal\u00e1mica\">Seguir leyendo<\/a><\/p>","protected":false},"author":6,"featured_media":5594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[29],"tags":[],"class_list":["post-6894","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hypothalamic-obesity","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare Disease Researchers Gather Virtually to Discuss Potential Therapies for Hypothalamic Obesity - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2020\/09\/21\/2020-9-21-investigadores-de-enfermedades-raras-se-reunen-virtualmente-para-debatir-posibles-terapias-contra-la-obesidad-hipotalamica\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Disease Researchers Gather Virtually to Discuss Potential Therapies for Hypothalamic Obesity - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Hypothalamic obesity (HO) is a devastating condition that can come from treatment of a tumor ... 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