{"id":53,"date":"2020-04-15T14:12:01","date_gmt":"2020-04-15T14:12:01","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2020\/04\/15\/2020-4-15-hypothalamic-hamartoma-survivor-jaxon-sloat-receives-blood-analyzer\/"},"modified":"2025-12-23T03:32:09","modified_gmt":"2025-12-23T03:32:09","slug":"2020-4-15-jaxon-sloat-superviviente-de-un-hamartoma-hipotalamico-recibe-un-analizador-de-sangre","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2020\/04\/15\/2020-4-15-hypothalamic-hamartoma-survivor-jaxon-sloat-receives-blood-analyzer\/","title":{"rendered":"Jaxon Sloat, superviviente de un hamartoma hipotal\u00e1mico, recibe un analizador de sangre"},"content":{"rendered":"<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Jaxon Sloat , de 5 a\u00f1os, de Macomb, Michigan, se describe como un ni\u00f1o vibrante y decidido. Naci\u00f3 con 30 semanas y, como consecuencia, tiene par\u00e1lisis cerebral. En el momento del diagn\u00f3stico dijeron a la familia que Jaxon no ser\u00eda capaz de andar ni de hablar, pero en los \u00faltimos a\u00f1os se ha esforzado mucho y ha demostrado a muchos que estaban equivocados. Ha tenido contratiempos en el camino, pero su madre, JoAnne Sloat, dice que eso no le frena.<\/p>\n<\/div>\n<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"sqs-block-image-figure              intrinsic\" style=\"max-width: 1500px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"position: relative; padding-bottom: 133.33334350585938%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" alt=\"Jaxon, de 5 a\u00f1os, de Macomb, MI, es el \u00faltimo en recibir un analizador de sangre port\u00e1til.\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" alt=\"Jaxon, de 5 a\u00f1os, de Macomb, MI, es el \u00faltimo en recibir un analizador de sangre port\u00e1til.\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1586959845407-N60LLM7EQE5ZZXPMV9EY\/jaxon.jpg\" data-image-dimensions=\"1500x2000\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"5e9715e29a52bc41b0374abb\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p class=\"\">Jaxon, de 5 a\u00f1os, de Macomb, MI, es el \u00faltimo en recibir un analizador de sangre port\u00e1til.<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">En mayo de 2019, tambi\u00e9n se le diagnostic\u00f3 un hamartoma hipotal\u00e1mico despu\u00e9s de experimentar graves retrasos cognitivos. Un hamartoma hipotal\u00e1mico es un tumor benigno extremadamente raro que se forma en el hipot\u00e1lamo. No era capaz de procesar lo que dec\u00eda la gente durante 20-30 segundos, sufr\u00eda ataques de ira, convulsiones y p\u00e9rdida de visi\u00f3n. Fue el primer paciente sometido a ablaci\u00f3n l\u00e1ser del tumor en el Hospital Infantil de Michigan. Pas\u00f3 casi un mes en la UCI despu\u00e9s de la operaci\u00f3n porque no pod\u00edan regular sus niveles de sodio.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Ha sido un camino largo y dif\u00edcil\", afirma Joanne.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La cirug\u00eda le ha dejado una diabetes ins\u00edpida central (DI), una enfermedad en la que el hipot\u00e1lamo deja de segregar vasopresina, la hormona antidiur\u00e9tica que regulaba el equilibrio de l\u00edquidos del organismo y que puede provocar desequilibrios de sodio en sangre. Los m\u00e9dicos de Jaxon dicen que la presentaci\u00f3n de su DI \"no encaja en el molde\". Sus niveles de sodio siguen siendo altos y bajos con bastante frecuencia, lo que dificulta su control. Tambi\u00e9n tiene obesidad hipotal\u00e1mica, pubertad precoz e hipotiroidismo como resultado de la cirug\u00eda. JoAnn dice que tener un analizador de sangre en casa ayudar\u00e1 a mantener a Jaxon m\u00e1s seguro porque puede vigilar de cerca sus niveles de sodio.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">A pesar de los retos, Jaxon se est\u00e1 entrenando para su primera carrera de 5 km, que corre cogido de la mano de mam\u00e1 para no caerse de bruces debido a su PC, y ha perdido 10 de los 30 kilos que ha engordado desde la operaci\u00f3n.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Nuestro peque\u00f1o est\u00e1 decidido a vencerlo todo\", dice JoAnne. \"Es nuestro h\u00e9roe. Siempre se enfrenta a la vida con una sonrisa que ilumina el mundo y una actitud positiva.\"<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La Fundaci\u00f3n Raymond A. Wood ha enviado esta semana el analizador de sangre de Jaxon. Ahora m\u00e1s que nunca, es importante mantener a nuestros pacientes pedi\u00e1tricos con tumores cerebrales que padecen esta afecci\u00f3n fuera de los laboratorios y hospitales para mantenerlos a salvo. Muchos de estos ni\u00f1os entran en la categor\u00eda de alto riesgo de COVID-19 por sus diversas afecciones. Le agradecemos su continuo apoyo a este programa para ayudar a ni\u00f1os como Jaxon.<\/p>\n<\/div>\n<div class=\"sqs-block-button-container sqs-block-button-container--center\" data-animation-role=\"button\" data-alignment=\"center\" data-button-size=\"medium\" data-button-type=\"primary\"><a class=\"sqs-block-button-element--medium sqs-button-element--primary sqs-block-button-element\" href=\"https:\/\/www.rawoodfoundation.org\/es\/hacer-un-donativo\/\">Apoye este programa<br \/>\n<\/a><\/div>","protected":false},"excerpt":{"rendered":"<p class=\"\">Jaxon Sloat , de 5 a\u00f1os, de Macomb, Michigan, se describe como un ni\u00f1o vibrante y decidido. Naci\u00f3 con 30 semanas y, como consecuencia, tiene par\u00e1lisis cerebral. En el momento del diagn\u00f3stico dijeron a la familia que Jaxon no ser\u00eda capaz de andar ni de hablar, pero en los \u00faltimos a\u00f1os se ha esforzado mucho y ha demostrado a muchos que estaban equivocados. Ha tenido contratiempos en el camino, pero su madre, JoAnne Sloat, dice que eso no le frena.<\/p>","protected":false},"author":6,"featured_media":54,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,1],"tags":[],"class_list":["post-53","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hypothalamic Hamartoma Survivor Jaxon Sloat Receives Blood Analyzer - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2020\/04\/15\/2020-4-15-jaxon-sloat-superviviente-de-un-hamartoma-hipotalamico-recibe-un-analizador-de-sangre\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hypothalamic Hamartoma Survivor Jaxon Sloat Receives Blood Analyzer - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Jaxon Sloat , age 5, of Macomb, Michigan, is described as a vibrant, determined little boy. He was born at 30 weeks and, as a result, he has cerebral palsy. At diagnosis the family was told Jaxon wouldn\u2019t be able to walk or talk but he worked hard over the past few years and has proven many people wrong. He has had setbacks along the way, but his mom JoAnne Sloat, says that doesn\u2019t slow him down.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/es\/2020\/04\/15\/2020-4-15-jaxon-sloat-superviviente-de-un-hamartoma-hipotalamico-recibe-un-analizador-de-sangre\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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