{"id":37,"date":"2019-08-06T12:56:55","date_gmt":"2019-08-06T12:56:55","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2019\/08\/06\/2019-8-6-lillian-7-battles-back-from-recent-brain-tumor-treatment-and-receives-handheld-blood-analyzer\/"},"modified":"2025-10-14T07:45:11","modified_gmt":"2025-10-14T07:45:11","slug":"2019-8-6-lillian-7-se-recupera-de-un-reciente-tratamiento-contra-un-tumor-cerebral-y-recibe-un-analizador-de-sangre-portatil","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2019\/08\/06\/2019-8-6-lillian-7-battles-back-from-recent-brain-tumor-treatment-and-receives-handheld-blood-analyzer\/","title":{"rendered":"Lillian, de 7 a\u00f1os, se recupera de un reciente tratamiento contra un tumor cerebral y recibe un analizador de sangre port\u00e1til"},"content":{"rendered":"<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"sqs-block-image-figure              intrinsic\" style=\"max-width: 480px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"position: relative; padding-bottom: 133.33334350585938%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1565096079368-VFLGKXDV30H4IU73R5RV\/IMG_0303.jpg\" alt=\"Lillian Knowlton, de Chesapeake (Virginia), ha recibido recientemente un analizador de sangre port\u00e1til.\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1565096079368-VFLGKXDV30H4IU73R5RV\/IMG_0303.jpg\" alt=\"Lillian Knowlton, de Chesapeake (Virginia), ha recibido recientemente un analizador de sangre port\u00e1til.\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1565096079368-VFLGKXDV30H4IU73R5RV\/IMG_0303.jpg\" data-image-dimensions=\"480x640\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"5d49788eb87e040001978e29\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p class=\"\">Lillian Knowlton, de Chesapeake (Virginia), ha recibido recientemente un analizador de sangre port\u00e1til.<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">A Lillian Knowlton, de Chesapeake, Virginia, le diagnosticaron a principios de a\u00f1o un tumor cerebral craneofaringioma. Conocimos a los padres de Lillian en el D\u00eda del Tumor Cerebral Hipofisario del Hospital Infantil de Filadelfia el pasado mes de marzo, mientras estaba ingresada y en el postoperatorio de una resecci\u00f3n tumoral. Recientemente, Jennifer, la madre de Lillian, se puso en contacto con nosotros debido a la lucha por controlar su sodio. Dijo que Lillian estaba b\u00e1sicamente confinada en casa debido a la monitorizaci\u00f3n constante.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">El problema de la diabetes ins\u00edpida (DI) para las personas con mecanismos de la sed alterados debido a una lesi\u00f3n quir\u00fargica del hipot\u00e1lamo es que la sustituci\u00f3n hormonal para controlar los niveles de l\u00edquidos del organismo puede ser muy irregular. Algunos d\u00edas la medicaci\u00f3n cumple su funci\u00f3n y retiene los l\u00edquidos, otros d\u00edas no funciona en absoluto, lo que significa que el paciente puede perder l\u00edquidos y sufrir hipernatremia o deshidrataci\u00f3n grave. Otra posibilidad es que retenga demasiados l\u00edquidos y el sodio baje demasiado. En cualquier caso, el resultado puede ser convulsiones, coma o algo peor. Sin pruebas en casa, las hospitalizaciones pueden ser inevitables. Jennifer ha estado monitoreando las entradas y salidas de Lillian para tratar de manejar su sodio para mantenerla en el rango aceptable.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Es muy similar a la monitorizaci\u00f3n 24\/7 que se hac\u00eda en el hospital, menos las pruebas. As\u00ed que actualmente, estoy ajustando a ciegas sus medicamentos diariamente, dijo Jennifer. \"Me encantar\u00eda tener m\u00e1s libertad y que pudiera volver a la escuela para terminar el primer curso. Desgraciadamente, eso no ser\u00e1 posible hasta que sepamos qu\u00e9 esperar y cu\u00e1l es la dosis m\u00e1s adecuada para su DI\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">A la lucha contra el sodio hay que a\u00f1adir las constantes visitas al laboratorio, en las que estos pacientes pedi\u00e1tricos son sometidos a numerosos pinchazos de aguja para obtener la cantidad de sangre necesaria. Para los ni\u00f1os, los constantes an\u00e1lisis de sangre son traum\u00e1ticos y, muchas veces, se les revientan las venas de tantas extracciones.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Seg\u00fan Jennifer, \"no puedo expresar lo inmensamente agradecidos que estar\u00edamos de poder comprobar sus niveles aqu\u00ed en casa. Para poder evitarle el estr\u00e9s y el dolor que experimenta en sus visitas al laboratorio. Tener sus resultados en cuesti\u00f3n de minutos cuando no est\u00e1 segura de si debe cambiar la dosis\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Lillian recibi\u00f3 su analizador de sangre esta semana, lo que la convierte en la und\u00e9cima beneficiaria. Hasta la fecha, la Fundaci\u00f3n Raymond A. Wood ha proporcionado m\u00e1s de $100.000 en equipos y suministros m\u00e9dicos a pacientes pedi\u00e1tricos con tumores cerebrales que luchan contra los efectos continuos de los tumores y el tratamiento. Esperamos que la familia de Lillian obtenga la tranquilidad que se merece en el cuidado de su hija y que Lillian pueda seguir adelante hasta terminar el primer curso y ser simplemente una ni\u00f1a.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">No podr\u00edamos ayudar a estos ni\u00f1os sin su continuo apoyo. <a href=\"https:\/\/www.rawoodfoundation.org\/es\/hacer-un-donativo\/\">Considere la posibilidad de hacer un donativo para ayudarnos<\/a> proporcionar suministros m\u00e9dicos y poner a las familias en contacto con oportunidades educativas y de apoyo.<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p class=\"\" style=\"white-space:pre-wrap;\">A Lillian Knowlton, de Chesapeake, Virginia, le diagnosticaron a principios de a\u00f1o un tumor cerebral craneofaringioma. Conocimos a los padres de Lillian en el D\u00eda del Tumor Cerebral Hipofisario del Hospital Infantil de Filadelfia el pasado mes de marzo, mientras estaba ingresada y en el postoperatorio de una resecci\u00f3n tumoral. Recientemente, Jennifer, la madre de Lillian, se puso en contacto con nosotros debido a la lucha por controlar su sodio. Dijo que Lillian estaba b\u00e1sicamente confinada en casa debido a la monitorizaci\u00f3n constante.<\/p>","protected":false},"author":6,"featured_media":38,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,1],"tags":[],"class_list":["post-37","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Lillian, 7, Battles Back From Recent Brain Tumor Treatment and Receives Handheld Blood Analyzer - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2019\/08\/06\/2019-8-6-lillian-7-se-recupera-de-un-reciente-tratamiento-contra-un-tumor-cerebral-y-recibe-un-analizador-de-sangre-portatil\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lillian, 7, Battles Back From Recent Brain Tumor Treatment and Receives Handheld Blood Analyzer - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Lillian Knowlton, from Chesapeake, Virginia, was diagnosed earlier this year with a craniopharyngioma brain tumor. We met Lillian\u2019s parents at the Pituitary Brain Tumor Day at Children\u2019s Hospital of Philadelphia this past March while she was inpatient and post-op from a tumor resection. Recently, Jennifer, Lillian\u2019s mother, reach out to us because of the struggle of getting her sodium under control. She said Lillian was basically confined to the house because of the constant monitoring.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/es\/2019\/08\/06\/2019-8-6-lillian-7-se-recupera-de-un-reciente-tratamiento-contra-un-tumor-cerebral-y-recibe-un-analizador-de-sangre-portatil\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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